Tag: Social Media

Tribal Unity Sends all the Right Messages in Breast Cancer

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You may be familiar with the long running American television series, “Survivor.” The premise of the show is that each team begins on different tribes. At the end, the real benefits and strength of the team are when the separate tribes join together creating one tribal union. Alliances form and tribes forge through adversity. This is when tribal unity sends all the right messages in breast cancer in my corner of the patient advocate world. This is familiar to me in the world of breast cancer, breast surgery, and breast reconstruction. As a patient advocate, I see a variety of platforms on social media helping communities affected by breast cancer. I watch these separate entities support specific biology types of breast cancer, gender specific breast cancer, ethnic specific breast cancer communities, wellness and survivorship, and the various choices made in the decision process for treatment and surgery. They run a Continue Reading →

Episode 18: Breast Cancer, the Patient Voice in Social Media

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Sharing your story as a breast cancer survivor on social media requires authenticity, creativity, vulnerability with keen knowledge of navigating the responsibility of telling stories that benefit the reader. I have learned a lot from my guest on episode 18, breast cancer, and the patient voice in social media with Marie Ennis O’Connor. She guides many breast cancer writers as a social media consultant, keynote speaker, and digital storyteller. Her creative work can be found at Journeying Beyond Breast Cancer. Marie’s work spans the globe, and her impact creating a cross continental family of writers is immeasurable. I am excited to share the summary of the DiepCJourney podcast for her presentation, The Weekly Roundup, on Twitter. How Marie Began to Use her Patient Voice Marie was diagnosed with breast cancer in her early thirties. The two myths she faced and shares with us are: She only knew breast cancer to Continue Reading →

Learning Together During the Coronavirus

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I am an educator by profession. Although I switched from classroom teaching to becoming a patient advocate after a second breast cancer diagnosis and successful DIEP flap breast reconstruction, I am always energized when I can learn something new. Living through the global pandemic of 2020 has been one adjustment after the other for everyone across the world. It has been downright frustrating for me some days. This week, I felt uplifted. Some new tools and ideas opened up for me. I am grateful a world pandemic can also result in learning together during the coronavirus. Using Instagram LIVE During the Coronavirus Instagram has been a busy platform during the past few weeks. Those little circles at the top of your Instagram feed have been highlighted in red more than I have ever noticed. Notifications of IG LIVE have been frequently lighting up my phone. What is up? I turned Continue Reading →

How to Participate in a GRYT Chat in 3 Easy Steps

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Social media and apps give us the ability to participate in key topics related to healthcare. The GRYT Platform is one such opportunity. This statement from the GRYT website explains the importance to patients across healthcare disciplines. “We believe information is an undeniable right, so we’ve created a way for you to connect to people with similar experience, providing inspiration, information, and access options, allowing YOU to choose what’s best for you.” Let’s outline how to participate in a GRYT chat in 3 easy steps. Step 1 of Participating in a GRYT Chat: Downloading the App Begin by downloading the app to your phone or desktop. It can be downloaded from either the iTunes App Store or the Google Play store. Here is a link you can use: https://grythealth.com/the-app Step 2 of Participating in a GRYT Chat: Setting up your Profile Once you have downloaded the app, set up your Continue Reading →

Participating in a Breast Reconstruction Tweet Chat

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I invite you to join me and Dr. Minas Chrysopoulo of PRMA in San Antonio for a BCSM (breast cancer social media) tweet chat. It will be held on Monday evening, July 29th for an hour beginning at 9 pm Eastern / 8 pm Central / 6 pm Pacific on Twitter. Let’s go over the who, what, when, where, why, and how of participating in a breast reconstruction tweet chat. Who Can Participate in the Tweet Chat? Those who have a Twitter account can participate. Co-moderators of the #BCSM tweet chats, Dr. Deanna Attai, @DrAttai, and Alicia Staley, @stales, will guide the conversation the evening of July 29. They have graciously invited Dr. C and me as guests that evening.  My Twitter handle is @6state and Dr. Minas Chrysopoulo’s Twitter handle is @drchrysopoulo. What is a Breast Reconstruction Tweet Chat? The BCSM community picks a topic to focus on each Continue Reading →

My #Tweet Story from Science Camp

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This is my #Tweet Story from science camp, otherwise known as Project LEAD you will not believe what happened.  Before I get to that part of the story let me back up a little and fill in some details. Years ago, when I started my Twitter account I was attempting to bring more attention to a non-profit.  I was a board member and wanted to spread the word about what we did.  I mainly followed on local businesses with hopes of finding sponsors.  I soon learned Twitter was for more than finding sponsors. Twitter is a wealth of knowledge in 140 words or less, commercials of sorts that did not make noise.  I could browse and tweet without anyone knowing.  No noise and a cancer diagnosis brought me to the new reason I was on Twitter.  There were positive quotes and cancer information.  New resources emerged and I was no Continue Reading →

A Patient Advocacy Story

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Breast Reconstruction Awarenrss Day 2015, a patient advocacy story, begins with an inspirational moment; a moment that was a true catalyst to a new found purpose in my life. Where was the inspiration? Why would a patient become an advocate and subsequently an affiliate to promote a nationwide campaign for breast reconstruction awareness following a cancer diagnosis and mastectomy? Easy answer! The plastic surgeon I chose to do my DIEP flap surgery and the patient liaison that was my first point of contact at their group WAS my starting point. When something feels right, I move on it. It was my moment of inspiration. I was asked to share my reconstruction surgery experience with other women who were considering the same type of surgery. I wanted to pay it forward and let other women know about this group, their skill, success rate, credentials, compassion and the support of all the Continue Reading →

Guest Blog ~ World Health Innovation Summit & Gareth Presch

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Guest Blog ~ World Health Innovation Summit & Gareth Presch I am pleased to share a guest blog from the World Health Innovation Summit and Mr. Gareth Presch .  Through the power and connection of Social Media across the globe I am pleased to present the work that Gareth is doing.  Through shared vision and outreach we are like-minded in our enthusiasm to reach communities to improve the health care experience.  Thank you Gareth for your work and for sharing this blog! Health touches us all, every sector, and we support sharing knowledge between those sectors to improve health and social care around the world – Gareth Presch It started with a tweet! – Gareth Presch Posted on October 11, 2015 by World Health Innovation Summit “Together, We Inspire” World Health Innovation Summit CIC – Community Led “Patients, Clinicians, Managers, Voluntary Sector, Education and Businesses” Supporting the sharing of knowledge to Continue Reading →