World Cancer Day: United by Unique

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February 4, 2025, marks a notable day in the community I serve at DiepCFoundation.org. Along with the hashtag it is World Cancer Day: United by Unique. I have been receiving emails announcing this day. But, I learned of the hashtag, #UnitedByUnique from a friend and fellow patient advocate, Luan Lawrenson-Woods, who resides in Australia. What I decided to do next is reach out to my community at DiepCJourney, a private Facebook group I set up as part of the services provided by my nonprofit Foundation. Thoughts from the Breast Cancer Community on World Cancer Day I asked “Journey members,” the name I refer to when I address the group, to comment on what the hashtag #United by Unique meant to them in our community. What I read gave me time to contemplate the impact of community and the bond that unites us, breast cancer. The Facebook group I established in Continue Reading →

Dealing With The Overwhelming Feeling of Loss

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This week has been challenging for so many and for many reasons. The news in the U.S. has focused so much attention on the massive losses in the Los Angeles area from the wildfires. Loss is part of life. But how do people deal with it? This is not a blog to share what you have lost. You will understand why if you read to the end. How are you dealing with the overwhelming feeling of loss? Losses in my World I have received texts every day this week from friends who have loved ones directly affected by the fires in Los Angeles. There have been no lives lost from those I heard from and for that, I am grateful. It began early Monday morning when a dear friend of mine was coping with the news of the fire in the area where her daughters and young grandchildren live. They Continue Reading →

The Gift of Patient Advocacy Wisdom

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This episode of the DiepCJourney Podcast recorded in December of 2024 is a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. I invite you to listen to the podcast embedded in this blog. Together we produced the title, “The Gift of Patient Advocacy Wisdom.” What a gift for me to sit with these two amazing women, Marie Ennis O’Connor and Sue Robins. What Does Patient Advocacy Look Like? Patient advocacy at its very core is giving voice to patients, no matter what healthcare diagnosis or treatment they are facing. “Voice” can take the form of speaking engagements at conferences, writing blogs, consulting, nonprofit work, making policy changes, and much more. All forms of patient advocacy begin with a story. Patient advocacy is also demanding work. To be effective one must commit to this. It means long hours of navigating a Continue Reading →

The Story and Tradition of Our Christmas Poinsettia

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This week my husband walked in the door with two beautiful poinsettias to add to the Christmas decorations in our home. It always makes me smile because it is tradition in our home and has been since December of 2014. This is the story and tradition of our Christmas poinsettia. A Look back to Christmas 2014 December 1, 2014, was a significant day in my life. I was wheeled into surgery to have my DIEP flap breast reconstruction with a highly skilled microsurgeon, Dr. Minas Chrysopoulo. We did a special interview looking back at that day that you can listen to on this episode of the DiepCJourney podcast. My husband and I got up before dawn that morning and made our way through the maze at the hospital parking lot and halls to check in. We traveled from Arizona to San Antonio by plane for my surgery. I booked us Continue Reading →

Celebrating Generosity: An Important Part of Nonprofit Work

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Change is the only constant. How many times have we heard that? In today’s fast-paced world nonprofit organizations must remain nimble when seeking support that includes volunteer and financial support to help run a nonprofit. And yet, it is often the constant supporters over time that make a nonprofit believe their impact is part of the greater community. Celebrating generosity is a very important part of nonprofit work. Giving Season in Nonprofit Work I am writing this blog in the middle of November. Thanksgiving holiday is in November. It is a time when families make the effort to be together and reflect on what they are grateful for and to reminisce about what makes them unique as a family unit. There is great diversity in family units, but it is in the gesture of gratitude that brings us together, no matter what that looks like. Similarly, as nonprofit leaders we Continue Reading →

The Difference Between APEX and DIEP Flap Reconstruction

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Dr. Oscar Ochoa discusses the difference between APEX and DIEP flap reconstruction. I am asked this question on the DiepCJourney Facebook page often enough and knew it was time to reach out to an expert. Dr. Ochoa is with PRMA in San Antonio, Texas. They celebrate thirty years of service to the breast cancer community this year. Congratulations to the growing team of surgeons providing breast reconstruction worldwide for patients. Learning About the Philosophy of Plastic Surgery in Breast Reconstruction Dr. Ochoa tells us in the video, Breast reconstruction is a topic that no one really learns about until they are actually dealing with it. ~ Dr. Oscar Ochoa Before we begin the slide presentation discussing the nuances of the APEX vs. the DIEP flap, Dr. Ochoa begins our discussion talking about the overall philosophy of plastic surgery. He tells us this philosophy is based on replacing like with like. Continue Reading →

Reflections as October and Breast Cancer Awareness 2024 Ends

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I have not written one blog this month. This has been the most intense October for me since opening DiepCJourney Foundation in 2016. I can’t say why for sure, but I am exhausted and thought it was time to share some reflections as October and Breast Cancer Awareness 2024 Ends. Some Losses and Some Gains Reflecting this October Has anyone every said, start with the hard part first then finish with the easy stuff? That’s how I’m going to tackle this. The hard part is not that hard, mostly an annoyance. If you are a patient advocate reading this, it may resonate with you. I was an invited speaker at a conference. We were asked to record our presentation and listen to the other speakers for the recorded Q & A session. I worked diligently to prepare my slides and presentation. The first thing I said in my opening remark Continue Reading →

The Voice for a Community in Breast Cancer

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Many people who have had or currently have breast cancer choose to be the voice for a community in breast cancer. This week, as I prepare for Plastic Surgery the Meeting I will be using the hashtag #PSTM24 on my social media platforms to share the latest in surgical techniques and the newest innovations from industry that results in better patient outcomes and care in breast reconstruction. Each Voice in the Breast Cancer Community is Unique My focus is on breast cancer and breast reconstruction surgery after mastectomy. Not all patient advocates and voices in breast cancer identify with the same platform. We have each positioned ourselves through time, training, and passion to share our personal stories while at the same time providing scientific and evidence-based information to the unique communities we serve. It is a robust community with folks that include community voices in: Since opening DiepCFoundation in 2016, Continue Reading →

The Emotional Connection of a Few Drops of Ink

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Ink has long been used to draw, write, create, and document words and pictures. Since ancient times ink has been developed for different purposes. Some inks throughout history are made to be permanent while others, especially today, are disposable, like the ink used in writing tools in distinct types of pens. Consideration for the material the ink is placed upon became a science to create lasting historical documents. What if the “material” the ink is placed on is your skin? I want to share with you the emotional connection of a few drops of ink. Ink Used in Tattoos Let’s talk about the canvas, the material I mentioned, your skin. One of the first tattoos discovered on a human body date back to a mummy found in the Alps. Among the many uses of ink in tattoos, history tells us they were used to mark criminals, recognize a tribe of Continue Reading →

Art Series by Beth Gainer

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The creative work of Beth Gainer is featured in this summary of the DiepCFoundation educational channel interview we did together. I invited Beth to put together a presentation for the interview to share slides featuring some of the art that she hopes to have in a public space or gallery someday. The title is so inspiring and fitting: Breast Cancer, Female and Young – Art Series by Beth Gainer. Meet Beth Gainer Beth is a breast cancer survivor, a mother, an English professor, writer, book author, and an artist. Her creative writing and artwork speak to so many of us and has been a healing mechanism in her own Journey. She was diagnosed with breast cancer in her thirties and something she found in a self-exam. A mammogram and doctors exams had missed it. What Beth noticed upon self-exam was a slight dimpling. When she brought it to the attention Continue Reading →