Author: Terri

I am a patient educator and advocate for choices in breast reconstruction after a mastectomy. Statistically, many women are not being informed of their choices due to many factors. Breast reconstruction is a personal choice. Providing information and education about those choices is a patient rite. It is the mission and focus of my work to provide that education and information.

Episode 7: Lobular Breast Cancer

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In episode 7 of the DiepCJourney podcast we are discussing lobular breast cancer, also known as invasive lobular carcinoma (ILC), with Leigh Pate. Lobular breast cancer is the second most commonly diagnosed type of invasive breast cancer. Often an understudied subtype of breast cancer I ask Leigh to join me on the podcast to help our followers understand more about it. Leigh founded the Lobular Breast Cancer Alliance (LBCA) in 2017 and continues to work as a research advocate in the breast cancer and ovarian/fallopian tube cancer community. Leigh and I both have had lobular breast cancer. I have tucked my diagnosis, both of them, away in files and don’t pull them out to often. This is my way of coping with two diagnosis of breast cancer. Connecting with Leigh, precipitated my need to talk about this. Our goal is to explain lobular breast cancer to patients who have it Continue Reading →

Time to Consider Things While in Isolation

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I have been fortunate not to have been affected by the Corona virus… until this week. The statement itself poses something of a paradox, “not to have been affected by the Corona virus.”  Our global population has been affected by this since the pandemic began in ways unthinkable, unimaginable. I felt the physical affects this week after testing positive. I have had time to consider things while in isolation. Perspective and the Regrettable Necessities of Life I am on the mend, thankfully. It feels a bit odd to write about this publicly after keeping it on the down low all week. Especially given the other world tragedies we are dealing with and as the pandemic numbers increase… again. Perspective! Folks are pent up, tired, weary of dealing with the isolation. Having celebrated a few trips around the sun, birthdays, and feeling fortunate to recuperate in the care of my mom’s Continue Reading →

A Celebration of 10K Breast Reconstruction Flaps

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On May 21, 2022, I will be back in San Antonio, Texas for a celebration of 10K breast reconstruction flaps. This event is put together by the plastic surgery group who did my DIEP flap surgery in December of 2014. This day holds great significance for me. I am grateful to PRMA for their fantastic efforts and support putting this 10K race together to celebrate the 10K flap surgeries they have performed for those affected by breast cancer. Thank you to the sponsors who are generously supporting this race. Honoring All the Patients Who Have Chosen Flap Surgery The 10K breast reconstruction flaps race is being held in San Antonio. The real honor goes to ladies across the world who have chosen or are planning flap surgery after being affected by breast cancer and losing their breasts to the disease. Over the years since I started my nonprofit organization, DiepCFoundation, Continue Reading →

Lessons from Mom Before, During, and After Breast Cancer

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I want to start with a gentle reminder that not everyone is fortunate enough to have a mom like I do. Some Moms have passed and are missed dearly. Others are not present physically or emotionally even though they are still alive. On Mother’s Day, it is important to be sensitive to this when we speak to others. We cannot assume that they celebrate Mother’s Day. It anguishes me to think what my own sweet mom went through learning I had breast cancer, not once, but twice. I am fortunate to be able to share the experiences and lessons from Mom before, during, and after breast cancer. Lessons from Mom Before Breast Cancer I am one of four girls born to my parents. However, I never knew one of my sisters who died shortly after a full-term pregnancy. My mom sorrowfully anguished over this, most of the time, with dignity Continue Reading →

Can We Drive Change in Breast Sensation Through Webinar Attendance?

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We have become accustomed to attending online webinars. One I have watched from inception is the iBreastBook webinars. It was designed by oncoplastic breast surgeon Yazan Masannat. He is located in Aberdeen, Scotland. I continually learn from these webinars and appreciate the global presence of presenters and attendees. Yazan is driving change in breast surgery by exploring the latest surgical techniques in breast surgery in these online learning opportunities. The most recent one I attended I ask myself; can we drive change in breast sensation through webinar attendance?” Why is Driving Change in Breast Sensation Important to Me? The title of the webinar I am commenting on is, Mastectomy: What is New. The presenters were an impressive group of international surgeons in breast surgery. They are as follows: I am a patient who has experienced successful return of sensation to my breasts after DIEP flap breast reconstruction. It is equally Continue Reading →

Tribal Unity Sends all the Right Messages in Breast Cancer

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You may be familiar with the long running American television series, “Survivor.” The premise of the show is that each team begins on different tribes. At the end, the real benefits and strength of the team are when the separate tribes join together creating one tribal union. Alliances form and tribes forge through adversity. This is when tribal unity sends all the right messages in breast cancer in my corner of the patient advocate world. This is familiar to me in the world of breast cancer, breast surgery, and breast reconstruction. As a patient advocate, I see a variety of platforms on social media helping communities affected by breast cancer. I watch these separate entities support specific biology types of breast cancer, gender specific breast cancer, ethnic specific breast cancer communities, wellness and survivorship, and the various choices made in the decision process for treatment and surgery. They run a Continue Reading →

Season 2, Episode 1: Breast Reconstruction Awareness in Australia

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It is with great honor I present Season 2, Episode 1: Breast Reconstruction Awareness in Australia of the DiepCJourney podcast. Connections made with patients and surgeons in the world of plastic surgery undoubtedly serve the purpose of improving patient outcomes. It is such a pleasure to be able to present this information and education on a global level from this fine Australian microsurgeon who has ignited breast reconstruction awareness in Australia. Dr. Joe Dusseldorp Ignites Breast Reconstruction Awareness in Australia The overriding mission through these global connections is “upping our game”. My guest, Dr. Joe Dusseldorp has certainly exhibited this. Not only is he an internationally trained microsurgeon, but he is a TEDx Talks presenter on personalizing medicine and how technology is making the incurable curable. I’m passionate about solving some of the difficult problems in plastic surgery, and applying the best that emerging technology can offer to constantly advance Continue Reading →

Episode 19: Delayed and Revision Breast Reconstruction

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Dr. David Light, MD, of NYBRA Plastic Surgery, is a board certified, fellowship trained plastic surgeon with a dual practice focused on breast reconstruction and aesthetic surgery. Our topic on Episode 19: delayed and revision breast reconstruction. Here is the summary of our conversation on the DiepCJourney podcast. Telemedicine for Delayed and Revision Breast Reconstruction Dr. Light performs over three hundred primary and revision breast surgeries per year. Besides DIEPflap, he also performs other microsurgical specialty flaps for breast reconstruction including the SIEA, PAP, LTP, and GAP flap. His practice also includes implant-based breast reconstruction. Microsurgery is a unique subspecialty of plastic surgery requiring further training. It involves anastomosis or tying together of blood vessels among other skills. For this reason, access  to microsurgeons is limited across the U. S. Many patients must travel to have autologous breast reconstruction, reconstruction using your own tissue with a blood source. Microsurgeons have Continue Reading →

Fatigued by Being Affected by Breast Cancer?

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People are affected by breast cancer in many ways. A person diagnosed can be fatigued from treatments. Some effects may seem short-term after finishing chemotherapy, radiation, or having surgery. Those in the metastatic breast cancer community have life-long effects they face for the remainder of their lives. I am speaking of the long-term effects of fatigue and being affected by breast cancer in both of these groups. The Fatigue that Effects Daily Living        Fatigue from breast cancer can come in many forms. You may feel physically fatigued from having surgery or undergoing treatment. It disrupts your body’s system causing it to work overtime during the healing process. As you sit in your chair feeling this way, you may become sad, feeling helpless, as you watch others trying to take care of you when perhaps a week or month before surgery or treatment you were the one taking care of others. Continue Reading →

Episode 17: Journey of the Caregiver

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Caregivers are called upon in the most unexpected ways through disease, an accident, surgery, or treatment. This is the story and journey of a thousand miles, two breast cancer diagnoses, multiple surgeries, and the story of how my son, Brian, taught me more about this role and what it means to be a compassionate caregiver on Episode 17: Journey of the Caregiver, on the DiepCJourney podcast. No Instruction Book for a Caregiver When a friend or loved one faces a health event and you know they will need assistance, your call to duty to be a caregiver begins. There is no payment for this role and certainly no instruction book. Both the patient and the caregiver shift their daily routine and begin to think in terms of strategy to help the patient. Considerations can include any or all of the following: This can all become overwhelming and require a great Continue Reading →