How to Host a Breast Reconstruction Community Gathering

I want to extend a note of gratitude to the members of the DiepCJourney private Facebook page for their inspiration writing this blog, how to host a breast reconstruction community gathering. For the readers, this is a community of learning, support, and sharing. I began “The Journey” Facebook group in 2015 before starting my nonprofit, DiepCFoundation. Now, this community has become an integral part of the Foundation work. I am inspired daily by their curiosity about breast reconstruction surgery, support for each other, and the friendships made along the way. You can see on the Advocacy page I recently held a community gathering of local Journey members. I want to share some tips on how to host your own breast reconstruction community gathering. Tip #1 for you Breast Reconstruction Community Gathering Ask yourself why you are having it. What purpose do you want to accomplish? It might be for the Continue Reading →

Symptoms, Diagnosis, and Treatment of BIA/ALCL

Any surgery is not without risks. Using a medical device like a breast implant is no different. This is the focus of our discussion in a summary of the DiepCJourney podcast, Symptoms, Diagnosis, and Treatment of BIA/ALCL. Four million women across the globe have undergone breast augmentation using a medical device called a breast implant. This is done for reasons such as cosmesis or enhancement of the breast, trauma to the chest wall or for oncological reasons, meaning for breast cancer and the breast implant is used to replace breast tissue affected by or lost due to these two reasons, breast cancer or chest wall trauma. Meet A Leading Expert in the Field I talked to a leading expert in the field about the medical definition of breast implant associated (BIA) anaplastic large cell lymphoma, an uncommon form of ALCL. I interviewed Mark Clemens, MD, MBA, FACS. After receiving his Continue Reading →

The Rewards and Risks of Traveling for Patient Advocacy

Let’s dispense with the not so good news first. It is far less than the good news I will write about regarding the rewards and risks of traveling for patient advocacy. The Risks of Traveling for Patient Advocacy Patient advocates I know go into this work with their eyes wide open when they travel to conferences or events for their work. We know what can and sometimes does happen. I wanted to talk about these first because they are short-lived risks. The fallout from any of the above items passes in a brief time. We deal with them as they happen knowing we will return to our advocacy work in no time because of dealing with any of the above-mentioned events. The Rewards of Traveling for Patient Advocacy This is the real magic sauce of being a patient advocate and traveling on behalf of the communities we serve. My work Continue Reading →

Tapping into Resilience in the New Year

We can write down, talk about, and make all the New Year’s resolutions we want. However, what will sustain us throughout the year is our resilience and responding to situations that set us back or cause us to change direction in our lives unexpectedly. How are you going to be tapping into resilience in the New Year? When Life Events Become a Catalyst to Tap into Resilience There are distinct types of events in life that can cause us to pivot, adjust, and do our best to move forward. I am speaking about health events. A sporting accident, a catastrophic car accident, or finding you have a disease that could either take your life sooner than expected or change your life forever. These are only a few examples of life events that cause one to reexamine how they are going to deal with things moving forward. My experience dealing with Continue Reading →

Achieving Symmetry and Understanding Fat Grafting in Breast Reconstruction

This is a summary of the video and podcast interview with Dr. Tim Matatov of Southwest Breast and Aesthetics in the Phoenix, Scottsdale, Arizona area. When I see hundreds of views of a video and close to two hundred podcast downloads I also like to provide a written summary for readers to hit on all learning modalities and preferences. I will include the YouTube video of Achieving Symmetry and Understanding Fat Grafting in this blog post. You can listen to the podcast here: How Mastopexy Achieves Symmetry in Breast Reconstruction We begin with a topic that is often asked about in the breast cancer community served at DiepCFoundation, mastopexy in the setting of breast reconstruction. A mastopexy is a breast lift. Dr. Matatov points out that whether a person has a single breast reconstruction with their own tissue, and implant, or oncoplastic reconstruction, sometimes the contralateral breast will not match Continue Reading →

Episode 43: The Drain-Free DIEP Flap Concept

DIEP flap breast reconstruction most often requires surgical drains for post operative care. Patients often mention to me they are awkward, can become infected at the suture site where they are attached, and are cumbersome to hide under clothing after surgery when going out in public. This is a summary of Episode 43: The Drain-Free DIEP flap Concept as it relates specifically to this type of autologous breast reconstruction. My guest on this episode of the DiepCJourney podcast has been in communication with me over the past year in anticipation of his published paper, Are Surgical Drains Needed in DIEP Flap Surgery? The Drain-Free DIEP Flap Concept. Dr. Nanidis and the Motivation for the Drain-Free DIEP Mr. Theo Nanidis, is a Consultant Plastic and Reconstructive surgeon with the NHS and private practice at The Royal Marsden. He graduated with distinctions from University College London Medical School in 2003 and completed Continue Reading →

A Counterpoint to a Recent Breast Cancer News Article

I want to begin by saying the overarching message of the article is hopeful and promising news in breast cancer survival. A recent report, October 23, 2023, in Penn Medicine News, announced that a research team from the Perelman School of Medicine at the University of Pennsylvania and the Abramson Cancer Center received a $10 million Department of Defense (DoD) grant. However, I would like to present a counterpoint to the opening statement of this recent breast cancer news article. Project LEAD Guides Me in This Counterpoint to the Article I attended NBCC’s Project LEAD in 2017 along with many other patient advocates. This program continues today training breast cancer advocates in the science, biology, and dissemination of information to the breast cancer communities we serve. I keep the well-organized, three-ring binder close at hand to this day to reference topics and sessions presented by world leading scientists and researchers Continue Reading →

Microsoft Give, Breast Cancer, Our True Outreach and Influence

Five years ago, I began making yearly presentations at Microsoft in Redmond, Washington for their volunteer days known as Microsoft Give. Give days are part of their corporate responsibility when employees share time, donations, and skill. It was a sunny day in the Pacific Northwest as I rolled into the massive new parking lot of the Microsoft campus in Redmond in mid-October of 2023. My car was loaded with care package items the Microsoft team would be assembling after I presented my talk entitled, “Microsoft Give, Breast Cancer, Our True Outreach and Influence”. From their website this phrase could not have been more accurate the day I was there. Microsoft employees are passionate about giving time, money, and skills to address the issues facing our world. Microsoft Corporate Social Responsibility Breast Cancer Call to Action at Microsoft Give Day What is the issue facing our world attendees would be helping Continue Reading →

Episode 39 The London Breast Meeting Recap

This podcast was recorded prior to The London Breast Meeting with the Rob Pupelis and Elizabeth Van Thillo of T-Stat along with Dr. Minas Chrysopoulo of PRMA. The meeting took place in early September at the Royal College of Physicians. Shortly after the recording this summer, Dr. C posted on his LinkedIn account. He stated, “Great way to kick off a Saturday! Looking forward to part two at the London Breast Meeting!” This blog summary of Episode 39 of the DiepCJourney podcast is the London Breast Meeting Recap and what took place those fantastic days during the conference. We will call it part three! Rob Shares His Thoughts on Discovery at the London Breast Meeting I invited my guests to share a realistic analysis of what they expected to get from the conference. Beyond the travel, there is a great amount of thought and preparation that goes into attending conferences optimizing Continue Reading →

Assessing Your Decision Making in Breast Reconstruction

Decision making is a process we use every day. When faced with a mastectomy for those affected by breast cancer, decision making can become emotionally complex and sometimes physically exhausting. Assessing your decision making in breast reconstruction can help you understand the deliberate and thoughtful work you put into this critical time in your life. First Steps in Decision Making in Breast Reconstruction This topic has come to my attention this week while supporting a newly diagnosed woman. Her process resonates with me as I recall my own process of decision making in breast reconstruction after my second breast cancer diagnosis. Here are pertinent steps to consider. How Are You Doing So Far? These six steps are key but certainly not all inclusive in the decision-making process for breast reconstruction. When you step back and look at them collectively you should be giving yourself quite a bit of credit at Continue Reading →