Category: Breast Reconstruction

The Most Difficult Part About Deciding to Have DIEP Flap Breast Reconstruction

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I always appreciate hearing patient stories and true feelings about why women choose to have DIEP flap breast reconstruction. The decision is not an easy one to make with many factors involved. I recently asked the women of the private Facebook group DiepCJourney, what was the most difficult part about deciding to have DIEP flap breast reconstruction. Here is what they shared. Consideration of Family and Work During Diep Flap Breast Reconstruction Many women who choose to have DIEP flap are mothers, wives, and working full time either at home or outside the home. Imagine their thought process prior to surgery. “How will I handle activities of daily life knowing I will have incisions from hip to hip and at my breast area?” For women with children there are going to be limitations from those activities we do frequently as mothers, bending, lifting, and twisting. When we are used to Continue Reading →

Episode 16: Options for Breast Reconstruction after Mastectomy

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When a person faces a mastectomy due to breast cancer, they have options to reconstruct their breasts. The options include using an implant, using the patients own tissue, or choosing to remain flat with aesthetic flat closure. Dr. Steven Pisano of PRMA, Plastic Reconstructive Microsurgical Associates, in San Antonio, Texas discusses all the options for breast reconstruction after mastectomy in Episode 16 of the DiepCJourney podcast. The Voice of an Expert in Breast Reconstruction after Mastectomy Dr. Pisano is one of the original founders of PRMA in San Antonio. He started the practice in 1994 with partner Dr. Peter Ledoux to serve the San Antonio area with general breast reconstruction surgery. Since that time, they will be on track by the end of 2021 to perform over ten thousand flap breast reconstruction surgeries for patients from all over the world. They now have a team of eight highly skilled microsurgeons Continue Reading →

A Home for the Breast Cancer Quilt

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I first encountered DiepC Journey ~ Breast Reconstruction after Mastectomy Facebook group when researching my options for prophylactic measures due to carrying a BRCA1 gene mutation. I instantly connected with the vibe of the group. What a wealth of information! If you know the founder of DiepC Foundation and the accompanying Facebook group, Terri Coutee, you will know just how welcoming, no-nonsense, and warm she is in all her advice and education pieces. She works to give each member a personalized experience when interacting with her foundation and page and she has helped countless woman and men dealing with breast cancer or breast cancer risk. Terri and I clicked, we’re both in the Pacific Northwest, shared a mutual friend, and both chose the same reconstruction—DIEP flap (using tissue from the belly.) We even made a video together. My Breast Cancer Journey to a Twist But! Here’s where the twist comes Continue Reading →

Global Collaboration and Learning on the Topic of Breast Reconstruction

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Collaboration is defined as an action working together with someone to produce or create something. My chosen profession is education. Working with my team in school districts to share ideas exhilarated me. Now, as a nonprofit leader and Founder of DiepCFoundation, I frequently experience global collaboration and learning on the topic of breast reconstruction. Developing a Community of Collaboration Our geographic world is expansive but our ability to collaborate is only an email, text, or message away. When I opened the DiepCJourney private Facebook page, often referred to by members as “The Journey” in the summer of 2015, I had no idea the global relationships that would develop on this page, let alone the other social media accounts I use for the Foundation. The need for education, support, and resources for all options of breast reconstruction after mastectomy continues. I witness this every day on “The Journey”. I set the Continue Reading →

Twenty Years: My Memories of 9/11 and What I Didn’t Know

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When dates in your life approach on the calendar emotions arise. The events of 9/11 still have great impact on the world. While speaking to friends this week, on the twentieth anniversary of 9/11, we recall exactly where we were and what we were doing the morning we heard the news. Twenty years, my memories of 9/11, and what I didn’t know are told in this blog. Where Were You When You Heard the News on 9/11? September of 2001 brought exciting new beginnings for us. We were new residents to Texas having moved from Seattle to a town north of Houston in the summer of that year. It was a beautiful, warm, fall morning in Texas. Our youngest son was a few blocks away safely tucked in his classes at middle school. My husband was an hour’s drive away in Houston, a large city where the oil and gas Continue Reading →

Episode 18: Breast Cancer, the Patient Voice in Social Media

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Sharing your story as a breast cancer survivor on social media requires authenticity, creativity, vulnerability with keen knowledge of navigating the responsibility of telling stories that benefit the reader. I have learned a lot from my guest on episode 18, breast cancer, and the patient voice in social media with Marie Ennis O’Connor. She guides many breast cancer writers as a social media consultant, keynote speaker, and digital storyteller. Her creative work can be found at Journeying Beyond Breast Cancer. Marie’s work spans the globe, and her impact creating a cross continental family of writers is immeasurable. I am excited to share the summary of the DiepCJourney podcast for her presentation, The Weekly Roundup, on Twitter. How Marie Began to Use her Patient Voice Marie was diagnosed with breast cancer in her early thirties. The two myths she faced and shares with us are: She only knew breast cancer to Continue Reading →

Episode 11: Decorative and Restorative Tattoos for Breast Cancer Patients

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Eric Eye is our guest on Episode 11 discussing decorative and restorative tattoos for breast cancer patients on the DiepCJourney podcast. He is a trained visual artist who performs 3D nipple and areola tattoos for patients who have had mastectomy and breast reconstruction after breast cancer. His work can be found on his Instagram account as well as his Facebook page. He is located in Seattle, Washington but Eric has traveled to other locations to provide services for breast cancer patients. Bringing Art to Life in Decorative and Restorative Tattoos The story of how he transitioned from years of experience in tattooing to providing restorative tattoos for breast cancer patients is a touching one. What are restorative tattoos? Eric’s work includes beautiful and artistic drawings covering a mastectomy or breast reconstruction scar. This can be across the breast area or an abdominal scar from DIEP flap surgery. They are most Continue Reading →

Trusting your Body after Breast Cancer and Breast Reconstruction

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I hear it so often from those affected by breast cancer or breast reconstruction. They experience weakness, loss of muscle mass, sense of balance, and overall strength. I know this feeling. It’s frustrating, feels like a true sense of loss, and sometimes even feels a bit hopeless as if you will never return to the person you were prior to treatment and surgery. I want to share my own experiences, provide hope and why trusting your body after breast cancer and breast reconstruction can be an important part of physical and mental recovery. Loss of Strength after Breast Cancer A breast cancer diagnosis is shocking for most. It is both physically and mentally challenging depleting the body and mind. I remember the absolute fatigue I felt from hearing about the diagnosis, crying, telling my family,  and going to all the subsequent appointments following my first diagnosis. After I had two Continue Reading →

Recycling Thoughts of My Breast Cancer Diagnosis

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It is funny how the daily events of life can conjure up memories from when you were diagnosed with breast cancer. Oh, diagnosed with breast cancer twice in my case. Our community is holding a recycling event this weekend. While clearing out various files I came across some paperwork I saved from my first diagnosis is 2002, my second diagnosis in 2014, and also my DIEP flap breast reconstruction also in 2014. It was like recycling thoughts from my breast cancer diagnosis. The Diagnosis Process Does Not Change Much What was interesting to me was an email I printed from a best friend and survivor herself. She was diagnosed a couple of years before I was. To read more about our connection and understand the meaning behind out song, “I Hope You Dance” you can read this blog. She had great pearls of wisdom to share with me. I speak Continue Reading →

How Digital Health Can Enhance your Breast Reconstruction Decision

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Patients become unintended experts on a topic they likely had no intention of being an authority on. When you receive a diagnosis of breast cancer one of the biggest challenges is understanding the medical information you have to digest and make sense of for your own future health. How will these decisions affect your body, lifestyle, and long-term survival? If you are facing loss of breast due to a mastectomy, things can become a step more complex when digesting and understanding your options. Luckily, we live in an era where we have access to digital tools to assist with these decision processes. Digital health can improve your breast reconstruction decision. Defining Digital Health First let’s define what digital health is. It encompasses many platforms. Digital health can but is not limited to entities such as virtual consultations via your computer or phone and apps specific to a topic you need Continue Reading →