Your Hospital Prep the Morning of Breast Reconstruction

You are diagnosed with breast cancer or are having a prophylactic mastectomy due to a gene mutation putting you at high risk for breast cancer. You spent days, weeks, or perhaps months talking to others and researching the best plastic surgeon because you have decided to have breast reconstruction. Now it’s the morning of surgery and it’s time for your hospital prep. You enter the hospital early in the morning, sometimes before the break of dawn. You have eaten very little. A hundred thoughts run through your head knowing you will soon be put to sleep while your breasts are removed and replaced with either implants or your own tissue. The shower and prep with the antibacterial soap you are instructed to use the morning of surgery is complete. You feel like you are squeaky clean from tip to toe. You might wish you could have on makeup and deodorant. Continue Reading →

Breast Cancer: Why We Choose to Be Patient Advocates

I recently took part in an online meeting with two friends and fellow patient advocates. We met through the Project LEAD Institute program in July of 2017. Why did we apply for scholarship and attend this intensive week of the study of breast cancer biology? We all want further training to improve our advocacy knowledge base, so we could better serve our communities. The focus of our discussion at our online meeting; “Why do we choose to be patient advocates”? Kirstin, Jennifer, and I remain close friends. We talk frequently via phone chats, texts, and emails and ask each other for advice. We seek resources when we cannot find them for our community who might be in need. Opportunities for new learning, conferences to attend, and sharing new studies are just a few of the advocacy tools we share with each other to stay on top of our game. Our Continue Reading →

1900 Patients Share Stories About Breast Reconstruction

Three short years ago in the summer of 2015, I opened a Facebook page dedicated to serve the breast reconstruction community. The Facebook page, https://www.facebook.com/groups/diepcjourney/ grew organically by word of mouth. We started out small, as so many new social media sites do. It is growing daily and now 1900 Patients Share Stories About Breast Reconstruction. What Do We Share? Think about this. You have just been diagnosed with breast cancer. Now you face the tsunami of information about to flood your brain; lab reports and waiting on results, treatment options, surgery, lumpectomy, mastectomy. Some days you feel overwhelmed, depressed, anxious, or even jubilant. Who will understand all these feelings? Who do I talk to who has been on this Journey? Think about this. You are told your best treatment option is to have a mastectomy. Perhaps, for peace of mind, you decide to have a prophylactic mastectomy because you Continue Reading →

I Had DIEP Flap. Do You Know What That Is?

I Had DIEP Flap. Do You Know What That Is? Picture this scenario. You walk into a physician or health care provider’s office after having DIEP flap breast reconstruction. They ask you to discuss your current health and why you came into the office for a visit. A standard question, right?  You are in a gown sitting on the exam table with only your underwear on under the gown. You know they are going to do a full exam and ask you to open the gown. Before they begin the exam, you say, “I had DIEP flap. Do you know what that is?” The answer is often one of two replies, “Oh yes, I see. You had a TRAM Flap.” Or, “No, I have no idea what a DIEP flap is.” This is when the education begins. The physician says, “Well, let’s take a look.” I open my gown and Continue Reading →

Breast Reconstruction. Taking Control Despite the Risks and Complications

Patients who chose breast reconstruction often feel they are taking control despite the risks and complications associated with the surgery. I hear comments from patients after having breast reconstruction who have encountered complications including, seromas, wound healing issues, hernias, multiple surgeries, and yet, are very happy with their decision to reconstruct their breasts. Many feel it gave them control. Why? It gave them the opportunity to rebuild a body part lost after being diagnosed with breast cancer or deciding on prophylactic surgery due to a genetic mutation. An article in the New York Times reported on complications after various types of breast reconstruction surgeries including both implants and numerous forms of autologous (using your own tissue) reconstruction. A multicenter cohort study referenced in the article in JAMA stated: Reconstruction may be associated with a high risk for complications, but successful reconstruction may still be achieved in most patients. Women electing Continue Reading →

Why are We Spending So Much Time with Insurance Calls?

I truly believe this is a question both patients and physicians ask themselves quite frequently; Why are we spending so much time on insurance calls? This week alone, I spent upwards of three hours battling my insurance company to reinstate a medication that has proven to work for me for the past four years and suddenly is no longer covered by them. I found this out at my oncologist’s office recently when I went in to get my Prolia injection. Since my second breast cancer diagnosis in 2014 I have successfully, with little or no side effects, taken this injection to prevent bone loss from the medication I am on, AI, to prevent my cancer from recurring. One of the side effects of the AI is bone loss and why I was prescribed Prolia. The Prolia was working! I was even on their Patient Co-Pay Program greatly reducing my out-of-pocket Continue Reading →

Breast Reconstruction: Seromas Evaluation and Treatment

We looked at the pre and post-operative assessment of seromas after breast reconstruction in a previous blog and video. Here, Drs. Minas Chrysopoulo and Ramon Garza III of PRMA in San Antonio explain to the viewer how to evaluate and treat a seroma if it occurs after breast reconstruction. Seromas form because of your body’s natural healing processes. Think of a wound you get on the outside of your body. The body produces fluid as part of the healing process. You see fluid as with a scraped knee or a burn. Imagine the wound on the inside of your body that forms because of surgery. Your body is going to produce fluid internally due to the trauma of surgery. This fluid must be managed. Dr. C, as his patients refer to him, explains a seroma can happen anywhere someone has surgery. In breast reconstruction this can be in the breast Continue Reading →

Breast Reconstruction: Seromas Pre and Post-Operative Assessment

Breast Reconstruction: Seromas Pre and Post-Operative Assessment Breast reconstruction complications are possible as is the case with any surgery. A possible complication in breast reconstruction is the development of a seroma. Here we look at the pre and post-operative assessment of seromas after autologous or implant-based breast reconstruction. I speak to two ASPS board certified plastic surgeons from PRMA in San Antonio, Dr. Ramon Garza III and Dr. Minas Chrysopoulo. I feel fortunate to share this information with the reader. The video in the blog will give a detailed explanation of pre and post-operative assessment of seromas. You can subscribe to DiepCFoundation YouTube channel after watching the video for a variety of educational topics on breast reconstruction. Dr. Garza begins the discussion by explaining who might be more prone than others to complications such as seromas after breast reconstruction. It is important to point out that their practice at PRMA Continue Reading →

What Do Breast Cancer and BRCA Friends Share in Common?

I know that Heather Barnard and I share a lot in common! We are both educators. Breast cancer has affected Heather and me. Heather and I have had a mastectomy. Heather and I had breast reconstruction. We both write blogs about our breast reconstruction experience. Finally, and most coincidentally, we had the same plastic surgeon perform our breast reconstruction. What makes our friendship unique? We have never met in person. Heather and I live over 9,000 miles apart. Our shared commonalities, however, have bridged those miles and made us friends. Her Twitter handle says it all, @expattravelmom. She teaches in Singapore and in her off time travels extensively with her husband and three great children. I had my DIEP flap breast reconstruction in December of 2014. Heather had a prophylactic mastectomy with immediate implant breast reconstruction in June of 2015. Dr. Chrysopoulo was our connection. Heather would message me asking Continue Reading →

Nipple Reconstruction after Mastectomy

I am often asked about the process of nipple reconstruction after mastectomy at the time of breast reconstruction. I am grateful to Drs. Minas Chrysopoulo and Ramon Garza III of PRMA in San Antonio who took time to make the video. It can be viewed from this blog explaining the procedure. My own experience during my DIEP flap breast reconstruction was a skin sparring, nipple sparring mastectomy. My breast surgeon clearly explained how she was going to make every attempt to save my nipples during my mastectomy. She also was very forthright in telling me, based on tumor size and location, she may not be able to save my nipples. I felt fortunate she successfully saved my nipples at the time of my double mastectomy. This is not always the case for every woman or man who has a mastectomy. There are reasons nipples cannot be saved. There are also patients Continue Reading →