Category: DIEP flap Breast Reconstruction

Recycling Thoughts of My Breast Cancer Diagnosis

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It is funny how the daily events of life can conjure up memories from when you were diagnosed with breast cancer. Oh, diagnosed with breast cancer twice in my case. Our community is holding a recycling event this weekend. While clearing out various files I came across some paperwork I saved from my first diagnosis is 2002, my second diagnosis in 2014, and also my DIEP flap breast reconstruction also in 2014. It was like recycling thoughts from my breast cancer diagnosis. The Diagnosis Process Does Not Change Much What was interesting to me was an email I printed from a best friend and survivor herself. She was diagnosed a couple of years before I was. To read more about our connection and understand the meaning behind out song, “I Hope You Dance” you can read this blog. She had great pearls of wisdom to share with me. I speak Continue Reading →

DiepCJourney Private Facebook Group: A Safe Place to Land

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Social Media is a way for others to connect in communities to discuss like-minded topics. I began the private Facebook group, DiepCJourney: Breast Reconstruction after mastectomy, in May of 2015. The purpose of the group is to inform those who are facing or have had a mastectomy about all their breast reconstruction options and choices. This includes the surgical option for no reconstruction, aesthetic flat closure. We are a global community. We want DiepCJourney Facebook group to be your safe place to land. DiepCJourney Facebook Discusses all Options The chest wall is the scaffold of the surgeon. The decision to reconstruct after a mastectomy is supported  whether you choose implants, use your own tissue (autologous reconstruction), a combination of both, a lumpectomy, or no reconstruction, referred to as aesthetic flat closure. This requires decision making. On DiepCJourney and at the Founding organization, DiepCFoundation, we promote the idea of shared decision-making. Continue Reading →

Episode 12: Patient Advocacy and Health Disparities

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Roberta Albany is a formidable breast cancer patient advocate and spokesperson for health disparities. Her work with Living Beyond Breast Cancer and in her own community at Cancer in the Know has gained her great respect and why I am excited to interview this friend and colleague in the breast cancer space for Episode 12: Patient Advocacy and Health Disparities for the DiepCJourney Podcast.  The Making of a Patient Advocate Roberta did not set out to be a spokesperson and patient advocate for the breast cancer community. Her diagnosis defined her role and lead her to this work. She describes her experience with the diagnosis she received in October of 2013. Bobbi found a lump while training for a half marathon with her running group, Black Girls Run. She could not remember if she had done her monthly self-breast exam. She recalls her breast had been bothering her, especially the left side. Upon doing her Continue Reading →

Cancer Survivor’s Day: Thoughts from Personal Journeys

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Days on the calendar reminding us of what we love, embrace, are actively involved in, and remind us that these commemorative days fill us with emotions, good and bad. There are holidays that have been on the calendar throughout history. Social media has caused new and interesting ones celebrating food, fun, and other trivial items uniting those who join in. Cancer Survivor’s Day, from my research, began in 1988. What does it mean to those who have survived? I decided to listen to those in my community and share thoughts on Cancer Survivor’s Day and some thoughts from personal Journeys. DiepCJourney: Thoughts on Cancer Survivor’s Day I began the closed Facebook group, DiepCJourney: Breast Reconstruction after Mastectomy in May of 2015 after my successful DIEP flap breast reconstruction. Being a two-time breast cancer survivor impacts my life daily. I decided support, finding resources, providing education for others would be my Continue Reading →

Breast Cancer: Is it Ever a Side Note?

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A breast cancer diagnosis changes life forever. There is no instruction book on how to deal with a diagnosis, only the glut of information that one attempts to digest after being told they have breast cancer. It can feel like drinking from a fire hose sometimes. Can breast cancer ever be a side note? The diagnosis feels like being sucked into a vortex pulling the patient in along with their family, friends, and caregivers. The cavernous vacuum fills with emotions, appointments, unknown treatment, costs, lifetime side effects from surgery, and create unintended changes in most people’s lives. Unknowns lurk around dark corners. Some are agonizing to deal with. Other unknowns of a breast cancer diagnosis can be quite transforming in an enlightening way. Long lasting impact of Breast Cancer How do you set it aside, so it becomes a side note? Can a breast cancer diagnosis be a less important Continue Reading →

A Mother’s Day Tribute

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When I think of all the mothers who are involved with those having DIEP flap breast reconstruction or any kind of breast surgery, it warms my heart. There are those Moms who are no longer with us who are so deeply rooted to their daughters they have inspired them to make this tough choice when affected by breast cancer. They are worthy of a Mother’s Day tribute. Mothers Having Breast Reconstruction Your arms are used for hugging, wiping tears, working, cleaning, and caring. It may be tender moments, angry moments, gross and disgusting moments but you chose this title and roll with the punches. For Moms who have been diagnosed with breast cancer or having surgery to reduce their risk of getting breast cancer you are thrown into a world you never intended to be in. You wonder how you will even tell your children you may have to lose Continue Reading →

Episode 8: ERAS Protocol in Breast Reconstruction

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Are fear of pain and time of recovery after breast reconstruction surgery some of your biggest concerns? If so, Episode 8: ERAS Protocol in Breast Reconstruction, with Dr. Minas Chrysopoulo will give you information about ERAS (Enhanced Recovery after Surgery) protocol many large volume centers are now using for DIEP flap and other types of breast reconstruction. Dr. C is the president of  PRMA in San Antonio and the developer of the Breast Advocate app. Both of these sites have more information about ERAS protocol as well as the DiepCJourney blog and  DiepC Foundation YouTube channel.  Why Use ERAS? There is a shared interest Dr. C and I share in having this conversation. He states it very clearly at the beginning of the podcast. The number one beneficiary is patient experience and patient outcomes. There are substantial data and evidence-based studies about results of using ERAS and the benefits it offers patients. In fact, follow the directions below and Continue Reading →

What Patients Can Teach You About Breast Cancer PTSD

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I wrote a blog on this topic regarding my own experience with PTSD after a breast cancer diagnosis. In fact, it was after my second breast cancer diagnosis. There are times when blogs are inspired in ways I did not see coming. After sharing it in my closed Facebook group my heart dropped reading the comments from others about their experience. I was amazed at what patients can teach you about breast cancer PTSD. I asked them how they deal with PTSD after breast cancer. They provided honest answers, some heart wrenching and some with resources to share within the group. Here is some what some patients shared about their own struggles. Sleep Deprivation and PTSD after Breast Cancer Sleep seemed to be illusive to some. They reported crying all day exhausting themselves into a nap. But then they did not sleep at night. This became a vicious cycle. One Continue Reading →

Sexual Health after Breast surgery and Breast Cancer Treatment

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The words, “You have breast cancer” can be very difficult to come to terms with for women and men. Added to this and what follows is the aftermath from treatment, surgeries, and loss of body parts. Our bodies are physiologically designed for sex with nerves to sexual organs in both male and female bodies. Sex is often associated with an emotional experience for many. For those affected by breast cancer living with scars, loss of body parts, debilitating changes to sexual function, self-image, fatigue, vaginal dryness, loss of libido, to name a few, changes in sexual health after breast surgery and breast cancer treatment are often left to the patient to grapple with. Our guest, Liz O’Riordan, is a breast surgeon, breast cancer survivor, and author who discusses and writes about the topic of sexual health. We invited her for an interview. Liz tells us her medical background and shares Continue Reading →

Episode 2: Blood Vessels in Breast Reconstruction

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I take you on a Journey of the amazing and complex system of blood vessels used in breast reconstruction in Episode 2. My “guest navigator” is Dr. Tim Matatov, a board-certified trained microsurgeon whose professional focus is performing autologous breast reconstruction for those affected by breast cancer. Let’s dive into to this podcast, Blood Vessels in Breast Reconstruction. Learning the Blood Vessels in Microsurgery Microsurgery is a subspeciality of plastic surgery and takes additional years of training and practice. Microsurgeons, like Dr. Matatov, perform a variety of autologous breast reconstruction using various flaps comprising this system of blood vessels. These flaps are often referred to using acronyms to describe the part of the body they come from. Here is a list of breast reconstruction flaps performed at Dr. Matatov’s practice. DIEP flap: deep inferior epigastric perforators using the tummy tissue. TDAP: Thoracodorsal artery perforator using tissue from the back. DCIA: Continue Reading →