Category: DIEP flap Breast Reconstruction

A Home for the Breast Cancer Quilt

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I first encountered DiepC Journey ~ Breast Reconstruction after Mastectomy Facebook group when researching my options for prophylactic measures due to carrying a BRCA1 gene mutation. I instantly connected with the vibe of the group. What a wealth of information! If you know the founder of DiepC Foundation and the accompanying Facebook group, Terri Coutee, you will know just how welcoming, no-nonsense, and warm she is in all her advice and education pieces. She works to give each member a personalized experience when interacting with her foundation and page and she has helped countless woman and men dealing with breast cancer or breast cancer risk. Terri and I clicked, we’re both in the Pacific Northwest, shared a mutual friend, and both chose the same reconstruction—DIEP flap (using tissue from the belly.) We even made a video together. My Breast Cancer Journey to a Twist But! Here’s where the twist comes Continue Reading →

Global Collaboration and Learning on the Topic of Breast Reconstruction

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Collaboration is defined as an action working together with someone to produce or create something. My chosen profession is education. Working with my team in school districts to share ideas exhilarated me. Now, as a nonprofit leader and Founder of DiepCFoundation, I frequently experience global collaboration and learning on the topic of breast reconstruction. Developing a Community of Collaboration Our geographic world is expansive but our ability to collaborate is only an email, text, or message away. When I opened the DiepCJourney private Facebook page, often referred to by members as “The Journey” in the summer of 2015, I had no idea the global relationships that would develop on this page, let alone the other social media accounts I use for the Foundation. The need for education, support, and resources for all options of breast reconstruction after mastectomy continues. I witness this every day on “The Journey”. I set the Continue Reading →

Episode 18: Breast Cancer, the Patient Voice in Social Media

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Sharing your story as a breast cancer survivor on social media requires authenticity, creativity, vulnerability with keen knowledge of navigating the responsibility of telling stories that benefit the reader. I have learned a lot from my guest on episode 18, breast cancer, and the patient voice in social media with Marie Ennis O’Connor. She guides many breast cancer writers as a social media consultant, keynote speaker, and digital storyteller. Her creative work can be found at Journeying Beyond Breast Cancer. Marie’s work spans the globe, and her impact creating a cross continental family of writers is immeasurable. I am excited to share the summary of the DiepCJourney podcast for her presentation, The Weekly Roundup, on Twitter. How Marie Began to Use her Patient Voice Marie was diagnosed with breast cancer in her early thirties. The two myths she faced and shares with us are: She only knew breast cancer to Continue Reading →

Episode 11: Decorative and Restorative Tattoos for Breast Cancer Patients

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Eric Eye is our guest on Episode 11 discussing decorative and restorative tattoos for breast cancer patients on the DiepCJourney podcast. He is a trained visual artist who performs 3D nipple and areola tattoos for patients who have had mastectomy and breast reconstruction after breast cancer. His work can be found on his Instagram account as well as his Facebook page. He is located in Seattle, Washington but Eric has traveled to other locations to provide services for breast cancer patients. Bringing Art to Life in Decorative and Restorative Tattoos The story of how he transitioned from years of experience in tattooing to providing restorative tattoos for breast cancer patients is a touching one. What are restorative tattoos? Eric’s work includes beautiful and artistic drawings covering a mastectomy or breast reconstruction scar. This can be across the breast area or an abdominal scar from DIEP flap surgery. They are most Continue Reading →

Trusting your Body after Breast Cancer and Breast Reconstruction

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I hear it so often from those affected by breast cancer or breast reconstruction. They experience weakness, loss of muscle mass, sense of balance, and overall strength. I know this feeling. It’s frustrating, feels like a true sense of loss, and sometimes even feels a bit hopeless as if you will never return to the person you were prior to treatment and surgery. I want to share my own experiences, provide hope and why trusting your body after breast cancer and breast reconstruction can be an important part of physical and mental recovery. Loss of Strength after Breast Cancer A breast cancer diagnosis is shocking for most. It is both physically and mentally challenging depleting the body and mind. I remember the absolute fatigue I felt from hearing about the diagnosis, crying, telling my family,  and going to all the subsequent appointments following my first diagnosis. After I had two Continue Reading →

Recycling Thoughts of My Breast Cancer Diagnosis

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It is funny how the daily events of life can conjure up memories from when you were diagnosed with breast cancer. Oh, diagnosed with breast cancer twice in my case. Our community is holding a recycling event this weekend. While clearing out various files I came across some paperwork I saved from my first diagnosis is 2002, my second diagnosis in 2014, and also my DIEP flap breast reconstruction also in 2014. It was like recycling thoughts from my breast cancer diagnosis. The Diagnosis Process Does Not Change Much What was interesting to me was an email I printed from a best friend and survivor herself. She was diagnosed a couple of years before I was. To read more about our connection and understand the meaning behind out song, “I Hope You Dance” you can read this blog. She had great pearls of wisdom to share with me. I speak Continue Reading →

DiepCJourney Private Facebook Group: A Safe Place to Land

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Social Media is a way for others to connect in communities to discuss like-minded topics. I began the private Facebook group, DiepCJourney: Breast Reconstruction after mastectomy, in May of 2015. The purpose of the group is to inform those who are facing or have had a mastectomy about all their breast reconstruction options and choices. This includes the surgical option for no reconstruction, aesthetic flat closure. We are a global community. We want DiepCJourney Facebook group to be your safe place to land. DiepCJourney Facebook Discusses all Options The chest wall is the scaffold of the surgeon. The decision to reconstruct after a mastectomy is supported  whether you choose implants, use your own tissue (autologous reconstruction), a combination of both, a lumpectomy, or no reconstruction, referred to as aesthetic flat closure. This requires decision making. On DiepCJourney and at the Founding organization, DiepCFoundation, we promote the idea of shared decision-making. Continue Reading →

Episode 12: Patient Advocacy and Health Disparities

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Roberta Albany is a formidable breast cancer patient advocate and spokesperson for health disparities. Her work with Living Beyond Breast Cancer and in her own community at Cancer in the Know has gained her great respect and why I am excited to interview this friend and colleague in the breast cancer space for Episode 12: Patient Advocacy and Health Disparities for the DiepCJourney Podcast.  The Making of a Patient Advocate Roberta did not set out to be a spokesperson and patient advocate for the breast cancer community. Her diagnosis defined her role and lead her to this work. She describes her experience with the diagnosis she received in October of 2013. Bobbi found a lump while training for a half marathon with her running group, Black Girls Run. She could not remember if she had done her monthly self-breast exam. She recalls her breast had been bothering her, especially the left side. Upon doing her Continue Reading →

Cancer Survivor’s Day: Thoughts from Personal Journeys

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Days on the calendar reminding us of what we love, embrace, are actively involved in, and remind us that these commemorative days fill us with emotions, good and bad. There are holidays that have been on the calendar throughout history. Social media has caused new and interesting ones celebrating food, fun, and other trivial items uniting those who join in. Cancer Survivor’s Day, from my research, began in 1988. What does it mean to those who have survived? I decided to listen to those in my community and share thoughts on Cancer Survivor’s Day and some thoughts from personal Journeys. DiepCJourney: Thoughts on Cancer Survivor’s Day I began the closed Facebook group, DiepCJourney: Breast Reconstruction after Mastectomy in May of 2015 after my successful DIEP flap breast reconstruction. Being a two-time breast cancer survivor impacts my life daily. I decided support, finding resources, providing education for others would be my Continue Reading →

Breast Cancer: Is it Ever a Side Note?

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A breast cancer diagnosis changes life forever. There is no instruction book on how to deal with a diagnosis, only the glut of information that one attempts to digest after being told they have breast cancer. It can feel like drinking from a fire hose sometimes. Can breast cancer ever be a side note? The diagnosis feels like being sucked into a vortex pulling the patient in along with their family, friends, and caregivers. The cavernous vacuum fills with emotions, appointments, unknown treatment, costs, lifetime side effects from surgery, and create unintended changes in most people’s lives. Unknowns lurk around dark corners. Some are agonizing to deal with. Other unknowns of a breast cancer diagnosis can be quite transforming in an enlightening way. Long lasting impact of Breast Cancer How do you set it aside, so it becomes a side note? Can a breast cancer diagnosis be a less important Continue Reading →