Category: Evidence Based Research

Empowering Voices: My Experience as a Patient Advocate at the Binaytara Northwest Women’s Cancer Conference

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On September 27, 2025, I had the privilege of attending the Binaytara Northwest Women’s Cancer Conference in Portland as a patient advocate, accompanied by my dear friend and fellow advocate, Nikki McCoy. This experience was not just an opportunity to connect with medical professionals; it was a chance to amplify the lived experiences of patients navigating the complexities of cancer diagnoses, treatment, and survivorship. As I reflect on our day at the conference, I am filled with gratitude and a renewed sense of purpose in my advocacy journey. The Power of Presence: Representing Patients Walking into the conference venue that morning, I was acutely aware of the significance of my role. Patient advocates hold a unique position: we are the bridge between patients and providers, amplifying voices that might otherwise go unheard. Nikki and I were determined to represent not just ourselves, but the countless people and families affected by Continue Reading →

An Invitation to the DiepCFoundation Breast Symposium

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This is your invitation to the DiepCFoundation Breast Symposium, a valuable gathering for medical professionals, patients, and advocates aiming to advance knowledge and discussions surrounding breast surgery, breast cancer research, breast reconstruction, and patient care. Whether you’re exploring your options or supporting someone on this path, this event is designed to provide clarity, support, and empowerment to make the decision that’s right for you. Details To Prepare for the DiepCFoundation Breast Symposium Seating is limited!! Be sure to register to attend on site by clicking on our Eventbrite page. Can’t Join in Person at the Symposium? Join Us Online by Signing up for the DiepCFoundation Breast Symposium here. Before you sign up: we invite you to make a heartfelt donation to help us continue hosting these meaningful events. Simply click the donation image to support our mission-every gift makes a difference. Online Registration Link and QR Code: Webinar Link to Register See you Continue Reading →

The Voice for a Community in Breast Cancer

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Many people who have had or currently have breast cancer choose to be the voice for a community in breast cancer. This week, as I prepare for Plastic Surgery the Meeting I will be using the hashtag #PSTM24 on my social media platforms to share the latest in surgical techniques and the newest innovations from industry that results in better patient outcomes and care in breast reconstruction. Each Voice in the Breast Cancer Community is Unique My focus is on breast cancer and breast reconstruction surgery after mastectomy. Not all patient advocates and voices in breast cancer identify with the same platform. We have each positioned ourselves through time, training, and passion to share our personal stories while at the same time providing scientific and evidence-based information to the unique communities we serve. It is a robust community with folks that include community voices in: Since opening DiepCFoundation in 2016, Continue Reading →

Symptoms, Diagnosis, and Treatment of BIA/ALCL

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Any surgery is not without risks. Using a medical device like a breast implant is no different. This is the focus of our discussion in a summary of the DiepCJourney podcast, Symptoms, Diagnosis, and Treatment of BIA/ALCL. Four million women across the globe have undergone breast augmentation using a medical device called a breast implant. This is done for reasons such as cosmesis or enhancement of the breast, trauma to the chest wall or for oncological reasons, meaning for breast cancer and the breast implant is used to replace breast tissue affected by or lost due to these two reasons, breast cancer or chest wall trauma. Meet A Leading Expert in the Field I talked to a leading expert in the field about the medical definition of breast implant associated (BIA) anaplastic large cell lymphoma, an uncommon form of ALCL. I interviewed Mark Clemens, MD, MBA, FACS. After receiving his Continue Reading →

Episode 43: The Drain-Free DIEP Flap Concept

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DIEP flap breast reconstruction most often requires surgical drains for post operative care. Patients often mention to me they are awkward, can become infected at the suture site where they are attached, and are cumbersome to hide under clothing after surgery when going out in public. This is a summary of Episode 43: The Drain-Free DIEP flap Concept as it relates specifically to this type of autologous breast reconstruction. My guest on this episode of the DiepCJourney podcast has been in communication with me over the past year in anticipation of his published paper, Are Surgical Drains Needed in DIEP Flap Surgery? The Drain-Free DIEP Flap Concept. Dr. Nanidis and the Motivation for the Drain-Free DIEP Mr. Theo Nanidis, is a Consultant Plastic and Reconstructive surgeon with the NHS and private practice at The Royal Marsden. He graduated with distinctions from University College London Medical School in 2003 and completed Continue Reading →

A Counterpoint to a Recent Breast Cancer News Article

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I want to begin by saying the overarching message of the article is hopeful and promising news in breast cancer survival. A recent report, October 23, 2023, in Penn Medicine News, announced that a research team from the Perelman School of Medicine at the University of Pennsylvania and the Abramson Cancer Center received a $10 million Department of Defense (DoD) grant. However, I would like to present a counterpoint to the opening statement of this recent breast cancer news article. Project LEAD Guides Me in This Counterpoint to the Article I attended NBCC’s Project LEAD in 2017 along with many other patient advocates. This program continues today training breast cancer advocates in the science, biology, and dissemination of information to the breast cancer communities we serve. I keep the well-organized, three-ring binder close at hand to this day to reference topics and sessions presented by world leading scientists and researchers Continue Reading →

Education about DIEP Flap: One Simple Rule

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Can we assign one simple rule regarding education about DIEP flap breast reconstruction? Yes, this one simple rule is to listen. This is where it begins. I have learned from patients and surgeons that listening is the first action required to educate. It reveals what is important for patients and what they desire to understand about the process and decision to have DIEP flap. I have learned from surgeons it is important for patients to take the time to listen to surgeons to understand what they can achieve for a patient in a DIEP flap consultation.   My Introduction and Education about DIEP Flap I was a student in April of 2014 during my second diagnosis of breast cancer. In the months following my double mastectomy I did what I now tell others to do. “Do your homework to find the right plastic surgeon”. I listened to all breast reconstruction Continue Reading →

Breast Reconstruction for Stage IV Breast Cancer

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I have embedded a video with my guest Dr. Minas Chrysopoulo, current president of PRMA in San Antonio, Texas on the topic of breast reconstruction for stage IV breast cancer. We share our common thinking that we do not believe we would have been having this conversation ten, or even as recently as five years ago. It is a topic worthy of discussion. Dr. C shares information in the slides to guide those with stage IV breast cancer through the decisional process of considering their options for breast reconstruction. Development of Decisional Apps and Treatment for Stage IV Breast Cancer A convincing motivation for me having this conversation with Dr. C is that he is the developer of the Breast Advocate® app. This free app is co-created by leading specialists and patient advocates. I have been on Dr. C’s advisory team since the inception of the app and have watched Continue Reading →

TruSense℠: Restoring Sensation and Wholeness after Breast Cancer Surgery

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Many women are left numb after mastectomy. At PRMA in San Antonio, Texas they have created the term TruSense℠ that refers to restoring sensation and wholeness after breast cancer surgery. I interviewed Dr. Minas Chrysopoulo to learn why this procedure is important to patients. Maintaining Breast Sensation after Breast Cancer Surgery Dr. Chrysopoulo, Dr. C to his patients, points out the good news first. We now have surgical techniques where there are ways of maintaining sensation and even restoring it. There are variations in mastectomy results. The breast surgeon has a lot to do with how much feeling they have after mastectomy. Thus, this is a breast surgeon issue since they are the ones removing the breast gland that contain the nerves that provide feeling. Dr. C points out they do not do it on purpose it is just the way the nerves travel through the breast tissue. There are Continue Reading →

DIEP Flap Reducing Abdominal Wall Complications

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Looking at the analytics on the DiepCFoundation YouTube channel I realized this video, DIEP Flap reducing abdominal wall complications with Dr. Minas Chrysopoulo is worthy of a blog summary. For our viewers, some value watching the video while others find it helpful to read the information. Having in a blog will allow you to print it if you feel it will help you at your surgical consult. Speaking to your surgeon about reducing abdominal complications in DIEP flap breast reconstruction is an important part of the conversation. Hernia and Bulging in DIEP flap Breast Reconstruction Dr. C begins our conversation with “Well, you know how I feel about the belly”. I agree and point out the other video we did on the topic, “The Aesthetics of the Belly in DIEP flap Breast Reconstruction”. Dr. C and I like to share these across multiple channels. This video can also be found Continue Reading →