Category: Evidence Based Research

How Shared Decision-Making Works in Breast Reconstruction

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The term shared decision-making can be used across multiple disciplines in medicine. The process of shared decision-making takes place when a patient and their health care provider work together to make a health care plan that is best for the patient. It is a topic I speak of often in my community as a patient advocate for all options of breast reconstruction after mastectomy. Let’s talk about shared decision making and how it works in breast reconstruction. How Shared Decision-Making Works for the Patient Whether implants are chosen or you choose to use your own tissue, being your own best advocate and doing your homework prior to your initial consult is beneficial. Prepare your questions and findings ahead of time. Your physician will go to the consult prepared. Doesn’t it make sense then, that you are just as prepared? This first step will empower you with a voice to communicate Continue Reading →

Finding Trusted Breast Reconstruction Resources

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You are newly diagnosed with breast cancer, going through treatment, or just found out you carry a gene mutation and are at high risk of developing breast cancer. It seems important to begin  to explore all your options for breast reconstruction. Your mission, finding trusted breast reconstruction resources.   The thought of any surgery is scary to you. You have the information your health care team gave you. Now you want to talk with someone who really gets it but more importantly someone you can trust. Family and friends are there to support you but can sometimes feel smothering. They try their best to help and console you. Sometimes you need time away, to think, to formulate questions, to find firsthand experience about the choices you know you are facing. Can You Find Trusted Breast Reconstruction Resources in Facebook Groups? We live in the age of social media, so you Continue Reading →

Why Should I Ask About Physical Therapy After Breast Surgery?

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I feel extremely fortunate my breast surgeon and plastic surgeon both recommended physical therapy for me after the breast surgeries they performed on me. My breast surgeon, Dr. Michele Ley, prescribed it for me about six weeks after she completed a double mastectomy due to my second occurrence of breast cancer. Dr. Chrysopoulo, my plastic surgeon, prescribed it for me after my DIEP flap breast reconstruction. I hear from many women who have not had the same physical therapy opportunity I did. So, I encourage them to ask their surgeons, “Why Should I Ask About Physical Therapy After Breast Surgery?” Physical Therapy after Mastectomy Surgery I began experiencing shoulder pain about three to four weeks after my double mastectomy. I went in for a follow up appointment to my breast surgeon around the same time. The shoulder pain occurred mainly when I was on my computer. This was during a Continue Reading →

Patient Advocacy at ASBrS

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It was an honor to attend the American Society of Breast Surgeons meeting as a patient advocate. I felt welcome from the moment I arrived. The first breast surgeon I met was a past president of ASBrS, Dr. Deanna Attai. I have been interacting with Dr. Attai on Social Media through #bcsm tweet chats but never had the opportunity to meet her in person. We sat in the lobby of the hotel to share a cup of coffee. The first question she asked me was, “Terri, why did you attend the meeting?” I smiled at her because it was the question I wanted to be asked as a patient advocate attending ASBrS. I folded my arms on the table, leaned in as I smiled at Dr. Attai, and answered her question with a question, “Guess who told me about all my options for breast reconstruction?” The smile on her face Continue Reading →

Patients Share Tips on Finding a Breast Reconstruction Surgeon

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I spent hours, days, and weeks searching for a plastic surgeon to perform my DIEP flap breast reconstruction. It was not an easy task. I learned a lot from three other patients, Whitney, Rene, and Tamara, who share with us their criterion and tips on finding a breast reconstruction surgeon to perform their DIEP flap surgery. Whitney’s Tips for Finding a Breast Reconstruction Surgeon She tells us she had time to look for a plastic surgeon because she chose to have a prophylactic bilateral mastectomy with DIEP flap breast reconstruction. Whitney carries a gene mutation putting her at high risk to develop breast cancer. Watching her own mother pass from breast cancer when Whitney was in her early twenties was instrumental in her decision to have breast reconstruction, especially with two young children at home. The first decision was the type of surgery to have. She chose DIEP flap. It Continue Reading →

Interested in Breast Reconstruction but don’t want Implants? You have Other Options!

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I was given all my options for breast reconstruction the day my breast surgeon told me I would be facing a double mastectomy after my second breast cancer diagnosis. I was fortunate. However, I had to dig deep and spend hours of research to find the specifics of what type of reconstruction I felt was going to work best for me. At first, like many women, I thought implants were my only option. I ultimately decided I wanted to use my own tissue. But where could I find those alternative choices to implants for breast reconstruction? It took me time and asking a lot of questions. It was important to me to find medically backed information and evidence-based articles about alternatives to implants for breast reconstruction. I did not find all this information in one place nor did I have access to what many women have available today. What am Continue Reading →

Breast Reconstruction and New Genetic Testing Guidelines

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As a patient advocate who provides resources for breast reconstruction, I am paying close attention to the new updated genetic testing guidelines issued by the American Society of Breast Surgeons. The information needed to make an informed decision is multi-faceted. Without providing updated information to the community I serve, those affected by breast cancer, some will remain uninformed. Being uninformed translates into not being able to have a shared decision-making conversation with any health care provider about genetic testing if you are affected by breast cancer. Being aware of these new updated guidelines can be a pivotal point in your decision to move forward with breast reconstruction or not. Surveillance, surgery, treatment, or future testing are decisions often made based on genetic test results. Therefore, writing about this topic is important to me. Understanding the Information on Updated Genetic Testing Guidelines There have been several articles written this week on Continue Reading →

Medical Comorbidities in Breast Reconstruction

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Medical Comorbidities in Breast Reconstruction I discuss medical comorbidities and how they relate to healing and outcomes in breast reconstruction with ASPS board certified plastic reconstructive surgeon, Dr. Daniel Liu from Cancer Treatment Centers of America in Chicago. I would like to begin by giving you a definition of what medical comorbidities are from the interview with Dr. Liu. Definition of Medical Comorbidities Medical comorbidities are usually chronic health problems, often pre-existing, a person might have before the diagnosis of breast cancer. Dr. Liu points out for patients who have breast cancer, coming into the diagnosis does not always mean a patient will be without any other health issues, or comorbidities. When patients come to their plastic surgeon seeking medical advice for breast reconstruction Dr. Liu points out what is necessary during the patient consult in the video. Here is what he tells us. Review the patient’s medical history. Evaluate Continue Reading →

Breast Reconstruction Recovery and ERAS Protocol

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Breast Reconstruction Recovery and ERAS Protocol When I attend medical conferences, I take the opportunity to interview plastic surgeons about topics related to breast reconstruction. Breast reconstruction recovery and ERAS protocol is a topic I want readers to know about. Why? I feel it is an important part of a shared decision-making conversation with your plastic surgeon at the time of your consult. You simply ask, “Do you use the Enhanced Recovery after Surgery (ERAS) protocol in breast reconstruction?” Dr. Minas Chrysopoulo from PRMA in San Antonio was the plastic reconstructive microsurgeon who performed my DIEP flap surgery. Although ERAS was not in place at the time of my breast reconstruction, I am excited to let others know PRMA and others are using this protocol now. The interview unfolds as we make comparisons between my recovery without ERAS and what Dr. C and his practicing partners now use to improve Continue Reading →

The Latest on BIA-ALCL and What A Patient Advocate Reports to Her Community 

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The Latest on BIA-ALCL and What A Patient Advocate Reports to Her Community As a patient advocate for breast reconstruction I am often asked questions about recent findings and reports in the news. This week I was asked questions about the latest NBC News article, and the same topic reported in other media outlets. Theses stories were on the safety of breast implants and a rare disease, BIA-ALCL, Breast Implant-associated Anaplastic Large Cell Lymphoma. I listened attentively as I watched the nightly news and read articles across other media venues. I immediately thought to myself, this was going to understandably stir concern and controversy in my community. It did. I was asked questions about the reports presented this week in the news media from women who currently have implants or are planning to for breast reconstruction after breast cancer. My immediate concern was to calm their fears and share what I Continue Reading →