Category: News

Breast Cancer Patient Education Act of 2015

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The Breast Cancer Patient Education Act of 2015:  Re-introduced May 5, 2015. As stated on the Congress.Gov website: Amends the Public Health Service Act to direct the Department of Health and Human Services to provide for the planning and implementation of an education campaign to inform breast cancer patients anticipating surgery about the availability and coverage of breast reconstruction, prostheses, and other options, with a focus on informing patients who are members of racial and ethnic minority groups. To the Members of the 114th Congress of the United States: Close to 12% of women will develop invasive breast cancer over the course of her lifetime. 2015 alone will bring an estimated 231,840 new cases of invasive breast cancer. According to statistics from Breast cancer.org 60,290 new cases of non-invasive breast cancer will be diagnosed. Surprisingly, and a little known fact, there will be approximately 2,350 new cases of invasive breast Continue Reading →

A Letter to “Life it Up 365”

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To my friends, Dana and Colleen, at Life it Up 365: I found your website, “Life it Up 365” in late July of this year. After reading it I had an idea for my own private Face Book page. I wrote a blog entitled, “Breast Cancer, Breast Reconstruction & New Challenges”. I posted it to my private Face Book page with this comment: What have you done as a result of your cancer diagnosis or finding that you are BRCA positive? Have you tried something new? Has it been fun, frightening or both? Share your story with us at the Journey in a brief comment response. I will compile your responses into another blog and share them with Dana and Colleen at Life It Up 365 in early September. I didn’t get as many responses as I thought I might but the ones I did receive from my members are Continue Reading →

Trending on Twitter #Ilooklikeasurgeon

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Trending on Twitter #Ilooklikeasurgeon Trends on Twitter and much of Social Media go at break neck speeds. Here today and gone tomorrow. There has been something trending on Twitter the past few days that inspired me to write this post. The trend followed the hash tag #Ilooklikeasurgeon and began with an article written about diversity and equality from a London surgeon, Dr. Ed Fitzgerald. A resident in surgery, Heather Logghe, MD, started the trend with pictures on Twitter.  And yes, it exploded on Social Media!  Dr. Kathy Hughes, a surgeon and one of my favorite bloggers,  even started a Facebook page to honor this community.  I was mesmerized and actually found two surgeons I follow on Twitter who posted these two pictures.                 I know Dr. Chrysopoulo personally and many of you who read my blog probably feel like you do, too, as Continue Reading →

Breast Cancer, Breast Reconstruction & New Challenges

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Breast Cancer, Breast Reconstruction & New Challenges What new challenges have you taken on since being diagnosed with breast cancer?  What have you had to deal with after losing your breasts to cancer, or finding out that you are a BRCA gene carrier? I was inspired to write this blog based on an article seen on social media from Living Beyond Breast Cancer. I include my BRCA friends in this post because I advocate for all choices of breast reconstruction and we have all had the perspective of experiencing some difficult decisions regarding our health. Events in life, good or bad, change us. They catapult us into decisions that we likely would not have come to based on the event. Being diagnosed with cancer for the second time in 2014, facing a mastectomy and then delayed DIEP flap reconstruction later that year, reset my compass. A Side Trip on my Continue Reading →

History of DIEP Flap Breast Reconstruction

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  The history of DIEP flap breast reconstruction, as with most medicine and surgery, has certainly evolved over the years. Patient recovery and healing, post operative outcomes and efficacy of the surgery has likely played a significant part in that evolution. The first attempts at flap reconstruction date back as far the 1800s. The advantage of using the deep inferior epigastric perforators (DIEP) as a means of breast reconstruction was primarily promoted by two surgeons in the mid 1990’s. Dr. Phillip Blondeel of Belgium and Dr. Robert Allen of the U.S. were the two surgeons who convinced their fellow plastic surgeons of the advantages of DIEP flap over TRAM flap as it did not use the rectus abdominis muscles thereby giving patients a more desirable outcome by not sacrificing their “sit-up” muscle. Many Must Travel to Find a Qualified Micro-Surgeon DIEP flap surgery is complex and involved.  It takes specialized Continue Reading →

Genetic Testing

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Is Genetic Testing A Scary Road to Travel? It is one of the hot topics in the medical world, “Genetic Testing”. A recent report from NBC Nightly News reports on the the risks and benefits of genetic testing.  Why do individuals choose to do it? What are the benefits and risks? What is the cost? Is it covered by insurance? Does it risk an individual’s chances of further insurance coverage in the future if they test positive? My Own Personal Experience I can only speak from my personal experience and reasons to explore genetic testing for myself. There are certain criterion that determines if you are a candidate who will likely benefit from genetic testing. I fit two of those conditions. One, I had breast cancer at a fairly young age, 47. Two, I had a recurrence of the original cancer I had at 47 but more importantly a newly Continue Reading →

The Perfect Breast Shape and Plastic Surgery

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How I got to the “Breast” Shape Ever Twitter is such a valuable tool for me. A year ago my Twitter account was full of nothing but educational websites. I returned to school to attain my M.Ed. and I used it for the sole purpose of gathering information about the latest “speak” in education. I did not tweet, like, retweet, or DM (direct message). I only lurked and learned. The lurking and learning changed in October of 2014. School ended for me to focus on my health.  My Twitter account went from education to all things breast cancer and breast reconstruction. I entered the world of plastic surgery as a breast reconstruction patient after undergoing a double mastectomy following a second breast cancer diagnosis. It was a world I was unfamiliar with and had much to learn about both on an academic and emotional level. I was now following, being Continue Reading →

Bone Density and Aromatase Inhibitors

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The Devil and the Details Today was a four month visit with my oncologist after my second diagnosis of breast cancer one year ago.  One of the purposes of the visit was to discuss bone loss while on Arimidex, the Aromatase Inhibitor I will be taking for ten years, unless of course they come up with something new between now and then. I was diagnosed with both invasive and in situ lobular carcinoma (LCIS) in my left breast twelve years ago. After two lumpectomies to achieve clear margins, eighteen weeks of chemotherapy and six weeks of daily radiation I took Tamoxifen for five years. Last year I had a recurrence of LCIS in the left breast and a new and different cancer, ductal carcinoma in situ (DCIS), in the right breast. Because of the new cancer in the right breast and the fact I had a recurrence in the left Continue Reading →

A Letter to Secretary Sylvia Burwell

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Dear Secretary Burwell, I enjoyed reading your bio on the HHS.gov website because I found we have a few things in common and I value human connections. We are both passionate about ensuring that individuals lead healthy and productive lives. Your outreach is far greater than mine and I am grateful for your passion and mission. My outreach, smaller though no less important, is to breast cancer patients who have been faced with a mastectomy. We are both former Seattle residents. As former President of the Global Development Program for the Bill & Melinda Gates Foundation you focused your efforts again on health.  I was an educator in Seattle at Sacred Heart School in Bellevue and had a brief opportunity to meet Melinda Gates when she visited our school and came into my classroom.  I was struck by her unpretentious manner and was humbled to speak to her and meet Continue Reading →

Breast Cancer Education Act

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A Time to Educate I have spoken to many women in the past six months since I became an advocate for breast reconstruction.  I am frequently reminded by these women that the education, resources and information is simply not being discussed at the first stages of a cancer diagnosis.  I was fortunate to have the information regarding my choices for breast reconstruction the day I was told I was going to have a double mastectomy due to a second recurrence of breast cancer.  I want every woman to be able to have that conversation with their physician.  The front line of education has to start in the health care community.  We can add outreach through support of this bill. A Call for Support Let’s Close the Loop It is time we closed the loop in breast cancer education.  Women have a right to live beyond diagnosis, treatment and survival.  Women Continue Reading →