Breast Reconstruction and Lessons Learned from 2020

We have come to the end of a historic year, the year of poignant moments far too many to mention. There are stories to tell and a whole lot of reflection to do this year from patients and physicians. In my corner of the universe, I will reflect on breast reconstruction and lessons learned from 2020. Breast cancer, for many, brings a sense of complete loss of control, feelings of helplessness, and something you have little control over. Sound familiar to the events of 2020? There is a lot to understand about the disease of breast cancer, how it challenges scientist spending their lifetime finding a cure, and as we close out 2020, some uplifting news about a new clinical trial for a vaccine focusing on a certain type of breast cancer. A lesson we learned from 2020 and one we marveled at, scientist putting into practice the methodology they Continue Reading →

Curious How to Set up a Birthday Fundraiser?

Each year as December rolls around and I celebrate another trip around the sun, I am reminding of the many blessings bestowed on me. I witness a great deal of generosity during the holidays and toward the end of the year during giving season. There are simple ways to help organizations and I would like to share one easy example. Are you curious how to set up a birthday fundraiser? Easy Steps for Fundraising Step One: Log into your Facebook page. Step Two: In the top search bar, type in the words, “Fundraisers”. Step Three: Click the “>” arrow to go to this page: Step Four: Click on the blue bar that says, “Select Nonprofit”. Step Five: In the search engine on Facebook, type in the name of a nonprofit of your choice you would like to support and click on the nonprofit with the photo of their logo. Last Continue Reading →

Health Literacy Impact and What are we Doing to Improve It?

Coauthored by Terri Coutee and Minas Chrysopoulo, MD 2020 has been a disruptive year in health care. We are learning a great deal from the avalanche of stresses put upon our health care during the global pandemic. One thing remains a constant and important cog in the wheel, the impact and importance of health literacy. I had an opportunity to engage in conversation recently with Gareth Presch and Dr. Minas Chrysopoulo, founder of – Toliman Health. Let’s look at the key elements. Access to information Understanding Information Using the Information These three basic components are what patients actively engage in to make the appropriate decisions for their health. Although looking at it on paper this seems simple enough, the act of engaging in health literacy becomes far more complex for a patient diagnosed with a any condition. It is the process patients must understand and actively take part in. Often Continue Reading →

Breast Reconstruction Education and the Circle of Giving

Wednesday of this past week, October 21, 2002, was BRADay2020. BRADay is a daily event for me, providing education and resources to empower women and men with information to make an informed decision about options for breast reconstruction after mastectomy. For the second year in a row, I was graciously invited by Microsoft to make a presentation about my personal Journey for their Microsoft Gives campaign but more importantly to educate . I left there with a full heart. This is what happened after my presentation on breast reconstruction education and the circle of giving. The presentation was conducted using the Microsoft Teams program. Since I have been using ZOOM to record videos for the Foundation, this was a new platform for me. Thomas set up a one on one meeting with me before the formal presentation to walk me through the ins and outs of Microsoft Teams. He made Continue Reading →

WHISTalks Live: Shared Decision Making

Gareth Presch is Founder and CEO of World Health Innovation Summit (WHIS). As part of his work he curates WHISTalks sharing a variety of topics to reach a global audience on various themes. He invited Dr. Minas Chrysopoulo, Founder of the Breast Advocate app, and me to the program for an interview.  The video can be viewed in this blog. Here is a summary and highlights of our WHISTalks Live on shared decision-making. The Importance of the Patient Voice in Shared Decision Making Dr. Chrysopoulo mentions that shared decision making provides opportunity across a variety of health specialties for patients to have a voice in their health care decisions. He points out that in breast cancer 40% of patients do not feel they have had a voice in their treatment decision making. In breast reconstruction 57% of patients do not feel they make a high-quality decision as they define it. Continue Reading →

The Power of Patience in the Pandemic

Do you feel like you are tapped out as we enter into the second half of 2020 continuing to adapt to a new kind of society since the coronavirus outbreak? I seem to have felt it more this week than any other. The common question starting most conversations seems to be, “How are you doing?” This is really asking, “How are you holding up through the pandemic?” How are you practicing the power of patience in the pandemic? A bit of Pandemic History The plague, a fatal infection arrived in Constantinople in 541 CE, Common Era, sometime used in place of AD. The plague spread across Europe, Asia, north Africa, and Arabia killing nearly 30 to 50 million people. This was half the world’s population.    The Black Death, a pandemic in Europe in 1347, took a shocking 200 million lives all in just four years. Science, not being as Continue Reading →

Telemedicine: Patient Care During COVID-19

I recently interviewed a friend and patient advocate, Kirstin Litz, to find out how she successfully set up her first telemedicine appointment in the time of COVID-19. This was her oncology appointment for follow up breast cancer care. I also asked others for tips on how best to conduct telemedicine and optimize patient care in the time of COVID-19. Landline Vs. Mobile Phones for Messages Most of us use mobile phones for the bulk of our everyday communication with friends and businesses. However, home phones and landlines are sometimes a preferred number to reference when filling out contact forms for medical offices to use as an answering system. This was the case for Kirstin. She knew when her oncologist told her the appointment would be a video call, the landline number was not going to work. In addition to the message left on her landline, she received emails via the Continue Reading →

What Inspired You to Choose Plastic Surgery? A Father’s Day Tribute

I have interviewed a number of notable plastic surgeons on the DiepC Foundation YouTube channel about topics related to breast reconstruction. This interview evokes a special, more personal feeling. I interviewed my own reconstructive plastic surgeon, Dr. Minas Chrysopoulo, for this special Father’s Day Tribute. He discusses the reason, inspiration, and why he chose plastic surgery. It was time spent with his father watching the history of plastic surgery on “the tellie” growing up as a young boy in London. His profession in life has truly become his passion and it is evident as the video conversation unfolds. What inspired you to choose plastic surgery? A Father’s Day Tribute. The History of Microsurgery Imagine a young lad spending time with his dad, “a massive history buff”, as Dr. C says, watching World War I and World War II programs. It was their bonding time. He points out plastic surgical procedures Continue Reading →

A Paradigm Shift: Looking at the World Through a New Lens

2020. A year like no other. I have been on the planet Earth for six decades. I have spoken to those who lived through World Wars, polio, and the Great Depression. My own children lived through the shock and trauma of 911. Nothing, nothing, has compared to what we have experienced in the six months of the year 2020. There has been a rare paradigm shift and now we are looking at the world through a different lens. A Shift in our Daily Emotions We have experienced a global pandemic, political unrest, loss of jobs, loss of lives, racial injustice, and social isolation. There seems to be so much blame. With all that has happened I have witnessed quick judgement. People are judged if they say too much or remain silent. Emotions are shattered. People may express gratitude one moment and by the end of the day after watching the Continue Reading →

Please Do not Tell Me Not to Worry

You arrive for your yearly mammogram, CT scan, ultrasound, or blood work. It could be any number of medical tests to determine if you have breast cancer, your breast cancer has metastasized, you are called back to have further testing, the list goes on. The appointment can elicit worry days before when you view it on your calendar knowing it is coming up. Then you wait for results. Or you wait a few more days for a recall on a mammogram when they “find something suspicious” that was not there a year ago. What do you say to someone who shares this news with you? Did you tell them not to worry? They are probably thinking, “please don’t tell me not to worry”. Mammograms can Cause Worry There are those who are having their first mammogram ever. Whether you are 24, 40 or 84 is really does not matter. The Continue Reading →