Category: Personal Stories

How Do You Maintain Your Health After Breast Cancer?

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Exercise has been part of my routine throughout my life. I am a middle child of three daughters. Dad always called me the tomboy in the family. I was the one he would throw the football to across the yard when I was growing up. He taught me how to throw a pretty good spiral. My family attended my high school track meets. When I was on a collegiate rowing team, they cheered on the sidelines of the river when I had a regatta in our hometown. But as an adult, I have been diagnosed with breast cancer twice. It stopped me in my tracks during various surgeries, chemotherapy, and radiation treatments. Now a healthy Nanna with all of that behind me, it is even more important for me to exercise and maintain my health after breast cancer. My Formula for Maintaining Health after Breast Cancer There are so many Continue Reading →

Learning Together During the Coronavirus

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I am an educator by profession. Although I switched from classroom teaching to becoming a patient advocate after a second breast cancer diagnosis and successful DIEP flap breast reconstruction, I am always energized when I can learn something new. Living through the global pandemic of 2020 has been one adjustment after the other for everyone across the world. It has been downright frustrating for me some days. This week, I felt uplifted. Some new tools and ideas opened up for me. I am grateful a world pandemic can also result in learning together during the coronavirus. Using Instagram LIVE During the Coronavirus Instagram has been a busy platform during the past few weeks. Those little circles at the top of your Instagram feed have been highlighted in red more than I have ever noticed. Notifications of IG LIVE have been frequently lighting up my phone. What is up? I turned Continue Reading →

The Woman Behind the Mask: Coronavirus

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This is the third week I am writing my weekly blog on the topic of the coronavirus. The rapidly evolving events of this global pandemic have caused staggering changes in statistics. We seem to grapple daily with how to deal with the spread of the virus. Wearing a face mask was the most visible symbol coming out of Wuhan, China where the coronavirus began in late December. At the beginning of March here in America, the consensus was not to wear a mask in public. Now in the first days of April, a month later, we are seeing a flood of masks being worn in America. A movement has begun to make homemade masks. This blog is dedicated to a friend, the woman behind the mask, and why she began making them during the coronavirus. Why We Transitioned from No Mask to Wearing Masks During the Coronovirus The growth of Continue Reading →

A Community of Strength Through the Coronavirus Outbreak

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I continue to keep up with the evolving changes as each day passes and numbers, plans, surgeries, and lives change due to the coronavirus outbreak. I think it’s fair to say we are called on to change in ways none of us are prepared for. Here is what happened in the past week and what I am grateful for, sad about, and what I have witnessed firsthand in the breast reconstruction community, a community of strength through the coronavirus outbreak. Breast Reconstruction Surgeries Cancelled During the Coronavirus I spent a great deal of time planning for my DIEP flap surgery in the fall of 2014. I traveled for my breast reconstruction. I had to arrange flights for myself and my husband. Asking friends and family to take off work or come to help was a tough one for me. Then there was the anticipation. Oh, the anticipation! All of that Continue Reading →

DiepCJourney Celebrating Five Years in Unprecedented Times

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Five years ago, on March 17, 2015, I published my first blog for DiepCJourney.com. I felt excited and anxious. Today, on March 17, 2020, those feelings, excitement and being anxious manifest themselves in a completely different way. We are at the tip of the iceberg in the United States as we grapple with how to deal with a global pandemic, the worldwide Coronavirus outbreak. This blog will be marked as a time capsule. I had no idea DiepCJourney would be celebrating five years in unprecedented times. I had an idea what I might write in this blog as 2020 rolled around knowing it was the fifth anniversary year. But now things have changed. I want to share my concerns and gratitude to all of the amazing readers over the past five years. My Concerns for Readers of DiepCJourney at this Unprecedented Time The blog continues to grow and evolve. What Continue Reading →

Breast Reconstruction Photo Sharing: Should We?

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This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

Microsurgery in Breast Reconstruction after Mastectomy

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I had the opportunity to attend the American Society of Reconstructive Microsurgeons meeting recently. As a patient advocate attending, I was particularly focused on microsurgery in breast reconstruction after mastectomy. It gave me the chance to have in depth conversations with plastic surgeons who dedicate intense hours of training to become microsurgeons.  The conference attendees included medical students interested in this specialty, plastic surgeons who are currently in fellowship training for microsurgery, and those seasoned veterans sharing the latest techniques and methods of surgical skills to achieve optimal outcomes for patients. The ASRM conference took place at a hotel with all of the sessions easily accessible. This conference felt comfortable, informal, and intimate to me. These microsurgeons reflected the feeling, this group is like a small tribe who understand the rigors of microsurgical training and how it can positively change the lives of patients. Why Should you Find a Microsurgeon Continue Reading →

The Story of the Kindness Tree

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Holiday lights are glowing across neighborhoods and cities across the world. Parties, celebrations, friends and family gather as another year ends. On a damp, cool, morning the doorbell rang unexpectedly in the middle of the day. My husband was off work, so he beat me to the front door although I was close behind him. When we opened the door, there stood our neighbor with a long cardboard box. We knew exactly what it was. This is the story of the kindness tree. When we First Saw the Tree A couple of weeks prior to our neighbor bringing this long cardboard box, we were out for a walk. This time of the year where we live, the days are short, often blanketed by fog in the early morning with light mist during the day. I told my husband to look at the tree on our neighbor’s front porch as we Continue Reading →

A Simple Note of Gratitude

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I was raised to have a grateful heart. I have come to appreciate this value my parents taught me. They modeled the importance of expressing gratitude frequently with friends, family, and even strangers. Mom and Dad always said gratitude should be given freely from the heart, expecting nothing in return. I dedicate this blog to an individual I have known for five years. I encourage the reader to take the time to acknowledge those in your life who have made a difference, large or small, either publicly or privately with a simple note of gratitude from your heart. Moments in life are sweet and precious, tenuous and unpredictable. We don’t always know the direction our lives will take. There are the planners and the gypsies. I have always considered myself a planner with a bit of gypsy spirit. A plan I put in place in 2014 was to complete my Continue Reading →

Nutrition and Diet after DIEP flap Breast Reconstruction

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Are you more aware of your nutrition and diet after DIEP flap breast reconstruction? I certainly am and I hear the same from many women. When breast cancer is the driving reason behind having this intricate surgery, it is little wonder nutrition and diet become a focus for so many. At the same time, I hear a lot of inquiry about what is the best way to eat a healthy nutritious diet after breast reconstruction.  The one factor that changes this is the “tightening down” of the tummy during this surgery. With the tummy tissue being used to reconstruct the breast, the tummy area is pulled down similar to a tummy tuck. Many women talk about the feeling of having less room, filling up quicker, and feeling like they can’t eat as much after DIEP flap breast reconstruction. Where do your Food Values about Nutrition and Diet come from? The Continue Reading →