The Woman Behind the Mask: Coronavirus

This is the third week I am writing my weekly blog on the topic of the coronavirus. The rapidly evolving events of this global pandemic have caused staggering changes in statistics. We seem to grapple daily with how to deal with the spread of the virus. Wearing a face mask was the most visible symbol coming out of Wuhan, China where the coronavirus began in late December. At the beginning of March here in America, the consensus was not to wear a mask in public. Now in the first days of April, a month later, we are seeing a flood of masks being worn in America. A movement has begun to make homemade masks. This blog is dedicated to a friend, the woman behind the mask, and why she began making them during the coronavirus. Why We Transitioned from No Mask to Wearing Masks During the Coronovirus The growth of Continue Reading →

A Community of Strength Through the Coronavirus Outbreak

I continue to keep up with the evolving changes as each day passes and numbers, plans, surgeries, and lives change due to the coronavirus outbreak. I think it’s fair to say we are called on to change in ways none of us are prepared for. Here is what happened in the past week and what I am grateful for, sad about, and what I have witnessed firsthand in the breast reconstruction community, a community of strength through the coronavirus outbreak. Breast Reconstruction Surgeries Cancelled During the Coronavirus I spent a great deal of time planning for my DIEP flap surgery in the fall of 2014. I traveled for my breast reconstruction. I had to arrange flights for myself and my husband. Asking friends and family to take off work or come to help was a tough one for me. Then there was the anticipation. Oh, the anticipation! All of that Continue Reading →

DiepCJourney Celebrating Five Years in Unprecedented Times

Five years ago, on March 17, 2015, I published my first blog for DiepCJourney.com. I felt excited and anxious. Today, on March 17, 2020, those feelings, excitement and being anxious manifest themselves in a completely different way. We are at the tip of the iceberg in the United States as we grapple with how to deal with a global pandemic, the worldwide Coronavirus outbreak. This blog will be marked as a time capsule. I had no idea DiepCJourney would be celebrating five years in unprecedented times. I had an idea what I might write in this blog as 2020 rolled around knowing it was the fifth anniversary year. But now things have changed. I want to share my concerns and gratitude to all of the amazing readers over the past five years. My Concerns for Readers of DiepCJourney at this Unprecedented Time The blog continues to grow and evolve. What Continue Reading →

Breast Reconstruction Photo Sharing: Should We?

This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

Microsurgery in Breast Reconstruction after Mastectomy

I had the opportunity to attend the American Society of Reconstructive Microsurgeons meeting recently. As a patient advocate attending, I was particularly focused on microsurgery in breast reconstruction after mastectomy. It gave me the chance to have in depth conversations with plastic surgeons who dedicate intense hours of training to become microsurgeons.  The conference attendees included medical students interested in this specialty, plastic surgeons who are currently in fellowship training for microsurgery, and those seasoned veterans sharing the latest techniques and methods of surgical skills to achieve optimal outcomes for patients. The ASRM conference took place at a hotel with all of the sessions easily accessible. This conference felt comfortable, informal, and intimate to me. These microsurgeons reflected the feeling, this group is like a small tribe who understand the rigors of microsurgical training and how it can positively change the lives of patients. Why Should you Find a Microsurgeon Continue Reading →

The Story of the Kindness Tree

Holiday lights are glowing across neighborhoods and cities across the world. Parties, celebrations, friends and family gather as another year ends. On a damp, cool, morning the doorbell rang unexpectedly in the middle of the day. My husband was off work, so he beat me to the front door although I was close behind him. When we opened the door, there stood our neighbor with a long cardboard box. We knew exactly what it was. This is the story of the kindness tree. When we First Saw the Tree A couple of weeks prior to our neighbor bringing this long cardboard box, we were out for a walk. This time of the year where we live, the days are short, often blanketed by fog in the early morning with light mist during the day. I told my husband to look at the tree on our neighbor’s front porch as we Continue Reading →

A Simple Note of Gratitude

I was raised to have a grateful heart. I have come to appreciate this value my parents taught me. They modeled the importance of expressing gratitude frequently with friends, family, and even strangers. Mom and Dad always said gratitude should be given freely from the heart, expecting nothing in return. I dedicate this blog to an individual I have known for five years. I encourage the reader to take the time to acknowledge those in your life who have made a difference, large or small, either publicly or privately with a simple note of gratitude from your heart. Moments in life are sweet and precious, tenuous and unpredictable. We don’t always know the direction our lives will take. There are the planners and the gypsies. I have always considered myself a planner with a bit of gypsy spirit. A plan I put in place in 2014 was to complete my Continue Reading →

Nutrition and Diet after DIEP flap Breast Reconstruction

Are you more aware of your nutrition and diet after DIEP flap breast reconstruction? I certainly am and I hear the same from many women. When breast cancer is the driving reason behind having this intricate surgery, it is little wonder nutrition and diet become a focus for so many. At the same time, I hear a lot of inquiry about what is the best way to eat a healthy nutritious diet after breast reconstruction.  The one factor that changes this is the “tightening down” of the tummy during this surgery. With the tummy tissue being used to reconstruct the breast, the tummy area is pulled down similar to a tummy tuck. Many women talk about the feeling of having less room, filling up quicker, and feeling like they can’t eat as much after DIEP flap breast reconstruction. Where do your Food Values about Nutrition and Diet come from? The Continue Reading →

A Network of Support Through your Breast Reconstruction Journey

It is an honor to present a project I was asked to participate in. The focus of the project is patient centered stories in breast reconstruction. Emphasis is placed on the shared decision-making model for patients through their own personal breast reconstruction Journey. The program is available in a video presented on a Balancing Act segment of Lifetime Television and embedded in this blog for you to watch. It is truly a network of support through your breast reconstruction Journey. Rebecca’s Network of Support I was approached by Mentor to participate in the project. It did not take me long to know my voice was an important part of the network of support. The story focused on Rebecca, a young woman who tested positive for the BRCA 2 gene. She sought guidance from a genetic counselor after watching her mother go through breast cancer. She knew she was at higher Continue Reading →

My Journey with Breast Cancer

My journey with breast cancer began as a 6 year old little girl that watched her mother battle the disease in May of 1987. My mom didn’t undergo breast reconstruction (I don’t even know if they gave her the option) so she remained flat after a single mastectomy was performed followed by chemotherapy. In May 1991, the disease returned, and it has metastasized to her bone. She ultimately succumbed to the disease 2 ½ year later in December of 1993. I was 13 years old. I spent a majority of my 30’s undergoing genetic testing, scans, self-breast exams, and biopsies at the recommendation of various physicians including my ob-gyn and a hematologist I had visited due to iron deficiency in my first pregnancy. 2 biopsies had already come back negative. Then on Thursday, November 15th after having undergone a 3rd biopsy on the same breast, I got the call that Continue Reading →