Collaboration in Educating about Breast Reconstruction

My favorite word throughout my education career has always been “collaboration”. So is the case now in my role as Founder of DiepCFoundation.org. I couldn’t feel any stronger about collaboration in educating about breast reconstruction. The change leaders I have met in the past three years on my own personal quest to educate more women and men about options in breast reconstruction motivate me daily to do more, explore new avenues to educate, support them in their mission, and stand beside them collaboratively to continue this work. This week on my social media feeds I have seen an announcement by Patricia Anstett that her book, Breast Cancer Surgery and Reconstruction, What’s Right for You, is now out on paperback on Amazon. Congratulations are in order as this was a professional labor of love for Pat. Full disclosure: Yes! I’m featured in the book and proud of it. However, I have Continue Reading →

Christmas Week: A New Breast Cancer Connection

Christmas Week: A New Breast Cancer Connection I was privileged, during this week prior to Christmas, to make a new breast cancer connection. Coincidentally enough, I learned about Nadia through another breast cancer friend and colleague, Barbara Jacoby. Barbara posted an article on social media about Nadia’s generous work with breast cancer patients through her love of photography. I read that Nadia was right here in my own back yard. I reached out to her for a meeting. As is the case with many breast cancer survivors I speak with, the conversation began with an immediate hug and a feeling of connection. We both encourage moving beyond a breast cancer treatment in our own communities through our separate nonprofit foundations, DiepCFoundation.org and NadiaStrong.org. The purpose of our separate yet similar Foundations seem to collide with the same message: We encourage women and men to move beyond the diagnosis and feel Continue Reading →

Why do I Marvel at Breast Reconstruction & Plastic Surgery?

I ask myself this question often: Why do I marvel at breast reconstruction & plastic surgery? October was a busy month for many who work in this field and educate about this topic. I think it was one of the busiest months I had this year. I was in six states and six different airports engaging with or educating about breast reconstruction with plastic surgeons, patients, advocates, and the public. I was exhausted yet exhilarated to know the innovations and developments in the field of breast reconstruction and plastic surgery continue to keep me motivated and captivated. It has been three years since my own breast reconstruction and yet, thinking back to November of 2014 and having no breasts on my body, it is easy to understand my own fascination with this topic. When you use your own tissue to rebuild your breasts after losing them to breast cancer, that Continue Reading →

Tummy Tightness after DIEP flap Breast Reconstruction

I speak to many women who ask about tummy tightness after DIEP flap breast reconstruction.  The emphasis of the question focuses on how long the tightness will last and how it is adjusting to the new feeling. When DIEP flap breast reconstruction is performed women also have the advantage of getting something mimicking a tummy tuck, also known as abdominoplasty.  The technical aspects of DIEP flap surgery are well explained here at the Microsurgeon.org website.  Here is a quote from the page: The tissue used for DIEP breast reconstruction contains skin, fat, and blood vessels. It is the same tissue area that is discarded in the classical cosmetic surgical abdominoplasty – also known as the tummy tuck. Your Newly Altered Tummy I want to make an analogy about tummy tightness after DIEP flap breast reconstruction.  When you buy a new pair of jeans that are too big in the waist Continue Reading →

Breast Reconstruction Consult: The Physical and Technical Component

Breast Reconstruction Consult: The Physical and Technical Component This blog discusses a breast reconstruction consult: the physical and technical component of a DIEP flap surgical visit with the plastic surgeon.  I wrote part a blog dealing with the emotional and psychological aspects of a consult and another one on the abdominal examination component of a consult. A plastic surgeon will work with his nurse at this initial consult to gather all the pertinent information needed to optimize the outcomes of DIEP flap surgery. Each of us goes to this appointment with unique circumstances in terms of both our physical structure and overall health.  I will walk you through my own personal case but know yours will be exclusive to the situation you bring to the initial consult for your breast reconstruction. The hope is to give you an idea of the steps done during this consult and what the purpose of each Continue Reading →

Ray of Sunshine after Breast Cancer Diagnosis

It just doesn’t seem a ray of sunshine might even play into the discussion the day I was told I had breast cancer does it?  There actually was a ray of sunshine after a breast cancer diagnosis. This is my story. The Breast Cancer Diagnosis The day of my second breast cancer diagnosis I was sitting in the office of my breast surgeon, Dr. Michele Ley, I saw Dr. Ley about five years previous to my second diagnosis to remove a benign area in my left breast.  I chose to go to her because I was very impressed with her demeanor, compassion, confidence and skill for the minor surgery she performed then.   It was a “steel in my back” kind of day when I was scheduled to go in to see her.  I was alone.  My husband was out of the country on business.  I had been down this road Continue Reading →

What to Communicate with the Radiologist when Imaging the DIEP Flap Reconstructed Breast

What to Communicate with the Radiologist when Imaging the DIEP Flap Reconstructed Breast   A Guest blog from Danielle Carroll, MD To image or not to image the reconstructed breast- that is the question…Well, actually the first question.  I am not going to tackle that topic here, but Dr. Chrysopoulo discusses this in his article “Mammograms and MRI after Reconstruction- Are They Needed?” .  However, if you decide to proceed with imaging follow-up, what is important for you to know about imaging the reconstructed breast, and how can you best convey your reconstruction status to the reading radiologist?   The reconstructed breast will undergo many changes over the first several years post reconstruction, some of which will be visible externally, some may only be seen by imaging.  The two most important pieces of information to convey to the scheduler and/or technologist are 1.  Your history of mastectomy with soft tissue Continue Reading →

Pregnancy After DIEP flap Breast Reconstruction

Pregnancy After DIEP flap Breast Reconstruction I meet amazing women and hear inspiring stories of courage in my breast reconstruction education and outreach. We share pictures, laughs, tears, fears, and stories of triumph in my conversations with these women warriors. Chats with these women, not only in the U.S., but across the globe fuels and energizes me to continue this advocacy. This story, pregnancy after DIEP flap breast reconstruction, touched my heart as a mother of two boys. I am fortunate through my travels to meet DIEP flap patients in person. Nothing gives me greater joy than sharing my experience and listening to others’ journeys through their own breast reconstruction process. It is a shared strength and sisterhood few understand and appreciate. One fortunate meeting and follow up story I wrote might seem nothing short of miraculous.  Although for each of us, our stories too, feel miraculous after we’ve reached Continue Reading →

One Year Post DIEP flap Breast Reconstruction

One Year Post DIEP flap Breast Reconstruction I am now one year post DIEP flap breast reconstruction. I was finalizing my surgical prep exactly one year ago today as I write this blog. My surgery was the morning of December 1, 2014.  So how am I doing now? How does my body feel? Do I have any regrets? Would I suggest having DIEP flap surgery to other women? Was I truly able to “just get on with it”? I’m doing just splendidly! I honestly believe I’m doing quite well, in fact splendidly, and enjoying many benefits from having DIEP flap surgery after a second breast cancer diagnosis and double mastectomy. I want the reader to know so you have hope. I opened my social media accounts today before I began writing this blog post. I read a statement from a woman who was just going in for her DIEP flap Continue Reading →

Fears of Breast Cancer Recurrence

Fears of Breast Cancer Recurrence Fears of breast cancer recurrence are palpable for anyone who has been diagnosed with this disease we have yet to find a cure for.  We each handle the fear differently. I had a recurrence.  I’d like to share my own experience, how I faced those fears, and how I dealt with them. As an educator for many years, I have seen the differences in personalities both in students and parents when it comes to handling what is seemingly the simplest of fears. What is catastrophic to one is barely a blip on the radar to another. There are those in life who are simply more fragile than others.  Differences in dealing with this fear of recurrence must not be judged or become fodder for accusations when we don’t always appreciate the circumstances behind. “How Do You Always Stay Positive?” Friends, relatives and family who have so Continue Reading →