A Network of Support Through your Breast Reconstruction Journey

It is an honor to present a project I was asked to participate in. The focus of the project is patient centered stories in breast reconstruction. Emphasis is placed on the shared decision-making model for patients through their own personal breast reconstruction Journey. The program is available in a video presented on a Balancing Act segment of Lifetime Television and embedded in this blog for you to watch. It is truly a network of support through your breast reconstruction Journey. Rebecca’s Network of Support I was approached by Mentor to participate in the project. It did not take me long to know my voice was an important part of the network of support. The story focused on Rebecca, a young woman who tested positive for the BRCA 2 gene. She sought guidance from a genetic counselor after watching her mother go through breast cancer. She knew she was at higher Continue Reading →

Patient Advocacy at Plastic Surgery the Meeting

Preparations begin for the fourth year in a row for me to attend PSTM, Plastic Surgery the Meeting in San Diego. This is the annual national conference of plastic surgeons both nationally and internationally to present the latest in plastic surgery techniques. It includes all aspects of plastic surgery, including aesthetic and reconstructive practices. My patient advocacy at Plastic Surgery the Meeting will focus on breast reconstruction. The Value of Social Media and Patient Advocacy at Plastic Surgery the Meeting The first year I attended I was the tenderfoot, the novice, wandering the expansive convention center in downtown Los Angeles not even knowing the layout, what sessions I could attend, or the flow of the conference. I opened my nonprofit, DIEPCFoundation.org the month before I attended my first PSTM in September of 2016. Many attendees did not know who I was. However, they recognized me because of my presence on Continue Reading →

Trust in your Breast Reconstruction Surgeon

How do you know when you have complete trust in your breast reconstruction surgeon? I can share my experience, but I am not you. My breast cancer experience was unique to my circumstances. It was my second occurrence of breast cancer. I had a double mastectomy and for seven long months lived without my breasts. Then I had what is known as delayed DIEP flap breast reconstruction. I honestly felt like a mangled mess the day I first saw my plastic reconstructive surgeon for my initial consult. I had skin sparing, nipple sparing mastectomy. Looking down at the folds of skin laying on my now breast-less chest wall always made me towel off quickly after each shower to put something over the area left marred by breast cancer. Each side of my chest looked different since I had radiation twelve years previous on my left side only. Scarring, tightness, and Continue Reading →

Breast Reconstruction From the Clinic to the Canvas

It is a remarkable patient experience from the clinical consult for breast reconstruction to the day the plastic surgeon begins the process of rebuilding a patient’s breasts. Whether you have breast cancer or are having a prophylactic mastectomy to reduce your risk of getting breast cancer, breast reconstruction begins the day of your initial clinic visit. It culminates the day of surgery, on the canvas, the skin and tissue your plastic surgeon has to work with. The Journey from the Clinic to the Canvas A plastic surgeon begins to look at all aspects of the canvas. They work with different coloration from pale white to the deepest hues of browns and everything in between. Is the canvas rough, smooth, or does it have its own unique characteristics; previous scars, moles, stretch marks? What is the suppleness of the skin, the canvas? The surgeon might be working with young, taut skin, Continue Reading →

Why Should I Ask About Physical Therapy After Breast Surgery?

I feel extremely fortunate my breast surgeon and plastic surgeon both recommended physical therapy for me after the breast surgeries they performed on me. My breast surgeon, Dr. Michele Ley, prescribed it for me about six weeks after she completed a double mastectomy due to my second occurrence of breast cancer. Dr. Chrysopoulo, my plastic surgeon, prescribed it for me after my DIEP flap breast reconstruction. I hear from many women who have not had the same physical therapy opportunity I did. So, I encourage them to ask their surgeons, “Why Should I Ask About Physical Therapy After Breast Surgery?” Physical Therapy after Mastectomy Surgery I began experiencing shoulder pain about three to four weeks after my double mastectomy. I went in for a follow up appointment to my breast surgeon around the same time. The shoulder pain occurred mainly when I was on my computer. This was during a Continue Reading →

Healing After Breast Reconstruction is a Journey

Women and men can choose three different types of breast reconstruction. There is implant-based reconstruction. Another type is when a patient can choose to use a variety of skin flaps to rebuild their breasts. This is called autologous, using your own tissue, breast reconstruction. A combination of both autologous and implant-based reconstruction is sometimes chosen and performed after a mastectomy. Any of these type of breast reconstruction options requires time to heal, both emotionally and physically. Healing after breast reconstruction is a Journey. The Unknowns You don’t know what you don’t know. A patient can sit in an initial consult with their plastic surgeon with all their questions in hand. The hope is the consult is done in a shared decision-making fashion where both parties, the patient and plastic surgeon, listen carefully and with intent to each point of discussion then come to the best decision for the patient’s health Continue Reading →

Breast Reconstruction Wounds and Management

I derive a great deal of information from the surgeons and patient members of the Journey Facebook group. The questions they ask are pertinent to the healing process as well as various aspects and the decision to have breast reconstruction. When I have an opportunity to visit our physician members, I schedule time to do videos to answer questions patient members are asking. Knowing how demanding the schedule of plastic surgeons can be, I am honored once again to sit with Dr. Minas Chrysopoulo of PRMA in San Antonio at the end of his long clinic day to talk about the topic of breast reconstruction wounds and management, dedication I am grateful for. Thanks Dr. C! Medical Comorbidities to Consider We begin our discussion with a patient inquiry about a medical comorbidity (condition) called Factor V Leiden. Dr. C clarifies this is a clotting problem not a wound healing issue. Continue Reading →

Breast Reconstruction Patients Sharing Their Journeys

A group of women joined each other for an evening of friendship and support. Sounds like great fun, doesn’t it? It went far deeper than that. Or perhaps I should say, it went far “DIEP-er” than that. Each of the women who gathered for the event were scheduled for or had DIEP flap breast reconstruction. They all belonged to the Facebook group, DiepCJourney, known simply as “The Journey” to many. These women were all breast reconstruction patients supporting each other and sharing their Journeys. Social Media Breast Reconstruction Group: The Journey Social media holds great value finding like-minded people you can connect with. But little compares to personal connections, meeting someone in person, sharing a hug, and lending special individual and emotional support. The group of women I met in San Antonio on a warm April evening shared stories they understood before they met in person. Most of us were Continue Reading →

Come with Me to my Breast Reconstruction Consult

Yes, that is correct. I’m inviting you along to my breast reconstruction consult. Why? Because I want you to learn what I learned. This was not an easy day leading up to my DIEP flap plastic surgery consult in early October of 2014. I prepared months in advance. It was important for me to find a microsurgeon who was going to know what my expectations were from pre-surgical planning, understanding the surgery, aesthetic outcomes, and how I would be after having this intricate surgery to replace my breasts lost to breast cancer. The Morning of my Breast Reconstruction Consult I traveled for my breast reconstruction, so my husband and I stayed in a hotel. We were both fairly quiet the morning of my consult. He watched me prepare physically for the consult; hair, make up, nice outfit. I suppose it was my way of putting forth the message to my Continue Reading →

Patients Share Tips on Finding a Breast Reconstruction Surgeon

I spent hours, days, and weeks searching for a plastic surgeon to perform my DIEP flap breast reconstruction. It was not an easy task. I learned a lot from three other patients, Whitney, Rene, and Tamara, who share with us their criterion and tips on finding a breast reconstruction surgeon to perform their DIEP flap surgery. Whitney’s Tips for Finding a Breast Reconstruction Surgeon She tells us she had time to look for a plastic surgeon because she chose to have a prophylactic bilateral mastectomy with DIEP flap breast reconstruction. Whitney carries a gene mutation putting her at high risk to develop breast cancer. Watching her own mother pass from breast cancer when Whitney was in her early twenties was instrumental in her decision to have breast reconstruction, especially with two young children at home. The first decision was the type of surgery to have. She chose DIEP flap. It Continue Reading →