Tag: breast cancer

Dealing With The Overwhelming Feeling of Loss

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This week has been challenging for so many and for many reasons. The news in the U.S. has focused so much attention on the massive losses in the Los Angeles area from the wildfires. Loss is part of life. But how do people deal with it? This is not a blog to share what you have lost. You will understand why if you read to the end. How are you dealing with the overwhelming feeling of loss? Losses in my World I have received texts every day this week from friends who have loved ones directly affected by the fires in Los Angeles. There have been no lives lost from those I heard from and for that, I am grateful. It began early Monday morning when a dear friend of mine was coping with the news of the fire in the area where her daughters and young grandchildren live. They Continue Reading →

The Gift of Patient Advocacy Wisdom

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This episode of the DiepCJourney Podcast recorded in December of 2024 is a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. I invite you to listen to the podcast embedded in this blog. Together we produced the title, “The Gift of Patient Advocacy Wisdom.” What a gift for me to sit with these two amazing women, Marie Ennis O’Connor and Sue Robins. What Does Patient Advocacy Look Like? Patient advocacy at its very core is giving voice to patients, no matter what healthcare diagnosis or treatment they are facing. “Voice” can take the form of speaking engagements at conferences, writing blogs, consulting, nonprofit work, making policy changes, and much more. All forms of patient advocacy begin with a story. Patient advocacy is also demanding work. To be effective one must commit to this. It means long hours of navigating a Continue Reading →

Celebrating Generosity: An Important Part of Nonprofit Work

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Change is the only constant. How many times have we heard that? In today’s fast-paced world nonprofit organizations must remain nimble when seeking support that includes volunteer and financial support to help run a nonprofit. And yet, it is often the constant supporters over time that make a nonprofit believe their impact is part of the greater community. Celebrating generosity is a very important part of nonprofit work. Giving Season in Nonprofit Work I am writing this blog in the middle of November. Thanksgiving holiday is in November. It is a time when families make the effort to be together and reflect on what they are grateful for and to reminisce about what makes them unique as a family unit. There is great diversity in family units, but it is in the gesture of gratitude that brings us together, no matter what that looks like. Similarly, as nonprofit leaders we Continue Reading →

Art Series by Beth Gainer

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The creative work of Beth Gainer is featured in this summary of the DiepCFoundation educational channel interview we did together. I invited Beth to put together a presentation for the interview to share slides featuring some of the art that she hopes to have in a public space or gallery someday. The title is so inspiring and fitting: Breast Cancer, Female and Young – Art Series by Beth Gainer. Meet Beth Gainer Beth is a breast cancer survivor, a mother, an English professor, writer, book author, and an artist. Her creative writing and artwork speak to so many of us and has been a healing mechanism in her own Journey. She was diagnosed with breast cancer in her thirties and something she found in a self-exam. A mammogram and doctors exams had missed it. What Beth noticed upon self-exam was a slight dimpling. When she brought it to the attention Continue Reading →

Sunflowers and a Tribute to Passion and Purpose

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Each morning when I wake up, I enjoy coffee my husband makes. He’s pretty sure he is THE coffee aficionado in our home. A retired engineer, he carefully crafts the delicious cup of roasted beans I enjoy upon waking up. I open the kitchen window blinds and look out at our garden. He has been planting sunflowers in a spot that frames that window because he knows how much I enjoy looking at them. During the dog days of summer, I offer you my thoughts on sunflowers and a tribute to passion and purpose. Sunflowers and Nature’s Beauty I was born and raised in Kansas. The state flower is the sunflower. This quote is from the Kansas Magazine: A cultural symbol throughout the ages – of faith, longevity, healing, happiness and good luck… The sunflowers in our garden rise to as tall as nine feet, reaching to the sun for Continue Reading →

Book Review: Phoenix Rising, Empower & Transform Through Breast Reconstruction

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I like to spend warm, slow, summer days reading. This book review is long overdue. I promised the author, Mark Clemens MD, I would do so, and I even said so in this DiepCFoundation interview we did on BIA/ALCL in early 2024. Dr. Clemens, it is a magnificent addition to my bookshelf and resource page. As promised, a book review: Phoenix Rising, Empower & Transform Through Breast Reconstruction. Phoenix Rising Arrives in the Mail I was very touched to find a lovely gift from Dr. Clemens in the mail soon after we met at the ASPS Fall 2023 conference. On the final day of the conference, I attended a panel discussion with two friends and international microsurgeons, Dr. Anne Dancey and Dr. Ruth Waters. The topic was on BIA/ALCL and Dr. Clemens was the moderator of an all-women scientific panel from around the world. Anne, Ruth, and I went to Continue Reading →

Credibility in the Noise – Social Media, Breast Reconstruction, and Your Experience

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What social media platforms do you use to find information about breast reconstruction? Is it TikTok, Facebook, Pinterest, Instagram, YouTube? This interview summary with Dr. Andrew Gassman of PRMA in San Antonio is about finding credibility in the noise – social media, breast reconstruction, and your experience. Dr. Gassman’s Interest in How Patients are Utilizing Social Media for Breast Reconstruction Dr. Andrew Gassman is a highly skilled and capable individual who knows DIEP flap breast reconstruction well. He joined the group at PRMA in January of 2021 and works with nine other microsurgeons who primarily perform autologous breast reconstruction for those affected by breast cancer. Before his time at PRMA he spent several years as an associate professor teaching future surgeons advanced breast reconstruction technique. He continues to be an active researcher. Our conversation addresses his interest in how patients want to chat, how to reach more people to offer Continue Reading →

A Retirement Tribute to Deanna Attai: This Batch is for You!

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Deanna J. Attai, MD announced her retirement this week on what else other than social media? I suspect for many, like me, it feels like a bittersweet announcement. My message to her comes from my experience as a patient advocate and organic gardener. Deanna has lived to work most of her professional life. Now I know she can engage fully in working to live. This is a retirement tribute to Deanna Attai. Dr. Attai, this batch is for you! Dr. Attai, the Breast Surgeon My first recollection of Dr. Attai is through social media. The hashtag #BCSM (breast cancer social media) was created by her, Alicia Staley, and the late Jody Schoger. The first #BCSM tweet chat occurred on July 4, 2011. Over the past thirteen years, a great deal has changed in social media. However, the community created by one hashtag, #BCSM changed the engagement between breast cancer patients Continue Reading →

A Breast Cancer Patient Intent on Finding Access to Care

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Access to medical care for those affected by breast cancer is crucial, and often life transformative. This is a personal story of a breast cancer patient intent on finding access to care. She is a woman of strength and stopped at nothing to find the best care available for her during her personal journey from diagnosis to recovery from DIEP flap breast reconstructive surgery. I am pleased to offer this summary of the DiepCJourney podcast. Dana’s Diagnosis and Breast Cancer Treatment Dana Brown, PhD., is a 54-year-old wife, mother, and educator. She has been married to her best friend and soulmate for 35 years and they have an amazing son who is twenty-six. Recently, after 30 years in education, after much consideration with her husband, Dana decided to retire. This decision was made based on the reason she is sharing her story with you on the podcast about how she Continue Reading →

Father’s Day 2024 with Fond Memories and Love

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When I think of the stories others have told me about their dads it varies greatly. This Father’s Day I look back at some of the great influencers, dads I have known in my life. Not everyone has fond memories of their dad, but this is a day set aside to honor those who are privileged enough to call themselves dad and will celebrate Father’s Day 2024 with fond memories and love. My Dad It is only fitting that I begin with a tribute to my own father who sadly is no longer with us. Dad had four daughters. He anguished at the loss of my older sister, Mary, who lived a short, brief time after birth. In those days, bonding with a lost child in hospital was not something practiced yet. They quickly whisked the baby away from my mom who carried Mary full term only to be lost Continue Reading →