Tag: Breast Cancer Diagnosis

TruSense℠: Restoring Sensation and Wholeness after Breast Cancer Surgery

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Many women are left numb after mastectomy. At PRMA in San Antonio, Texas they have created the term TruSense℠ that refers to restoring sensation and wholeness after breast cancer surgery. I interviewed Dr. Minas Chrysopoulo to learn why this procedure is important to patients. Maintaining Breast Sensation after Breast Cancer Surgery Dr. Chrysopoulo, Dr. C to his patients, points out the good news first. We now have surgical techniques where there are ways of maintaining sensation and even restoring it. There are variations in mastectomy results. The breast surgeon has a lot to do with how much feeling they have after mastectomy. Thus, this is a breast surgeon issue since they are the ones removing the breast gland that contain the nerves that provide feeling. Dr. C points out they do not do it on purpose it is just the way the nerves travel through the breast tissue. There are Continue Reading →

The Intersection of Research and Decision for Breast Reconstruction

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One day your life is humming along as usual. Work, children, family, friends, school, house cleaning, errands, vacation, cooking, on and on. Then out of nowhere you hear the news that feels like a gut punch. “You have breast cancer.” Perhaps you get genetic test results back and you find out you have a genetic mutation putting you at high risk of getting breast cancer. You are thrust into a new role finding out all you can about your diagnosis. Will I be facing a mastectomy or choose a mastectomy for my treatment? When will the intersection of research and decision for breast reconstruction occur? The Research Process Why am I writing about this? I agonized over this part of my breast cancer diagnosis when I was told my best choice for my long-term survival was a double mastectomy. It was my second diagnosis and now in both breasts vs. Continue Reading →

Recycling Thoughts of My Breast Cancer Diagnosis

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It is funny how the daily events of life can conjure up memories from when you were diagnosed with breast cancer. Oh, diagnosed with breast cancer twice in my case. Our community is holding a recycling event this weekend. While clearing out various files I came across some paperwork I saved from my first diagnosis is 2002, my second diagnosis in 2014, and also my DIEP flap breast reconstruction also in 2014. It was like recycling thoughts from my breast cancer diagnosis. The Diagnosis Process Does Not Change Much What was interesting to me was an email I printed from a best friend and survivor herself. She was diagnosed a couple of years before I was. To read more about our connection and understand the meaning behind out song, “I Hope You Dance” you can read this blog. She had great pearls of wisdom to share with me. I speak Continue Reading →

Episode 7: Newly Diagnosed with Breast Cancer? What are Next Steps?

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Have you been overwhelmed with emotion and information when newly diagnosed with breast cancer? My guest, Dr. Deanna Attai, is an Associate Clinical Professor of Surgery at the David Geffen School of Medicine at the University of California Los Angeles. Episode 7 takes us from being newly diagnosis with breast cancer to the clinical visit and what are next steps. As past president of the American Society of Breast Surgeons I have leaned on Dr. Attai since I first met her in May of 2019 at the ASBrS annual conference. Breast cancer is not one disease and patients bring to their consult with a wide variety of knowledge regarding their diagnosis. Tumor biology, stage, grade, and family history are some of the factors discussed after being newly diagnosed with breast cancer. Step 1: Knowing the Type of Breast Cancer She guides us through how she helps patients who are confused Continue Reading →

Choices: Breast Reconstruction or No Reconstruction after Mastectomy

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Women and men who are diagnosed with breast cancer are generally seen by a team of healthcare providers who treat this specific group of patients. It may include a radiologist, breast surgeon, radiation oncologist, plastic surgeon, or microsurgeon. The patient’s healthcare team may also include a combination of one or more of these specialties. Kim Bowles and I believe it is these physicians who should inform patients newly diagnosed about the surgical choices for breast reconstruction or no reconstruction after mastectomy. Kim and I met on social media.  Although we have never met in person, we have spoken often on the phone and via messages on social media. We are both breast cancer survivors who had to make a choice for breast surgery when a mastectomy was the best oncologic treatment for our respective breast cancers. What we strongly believe in is choice. Kim states,  We are in a position Continue Reading →

Are All DIEP Flaps the Same?

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It is a fair question to ask don’t you think?  It is even a better question to discuss at your initial consult when you want to use your tummy tissue to reconstruct your breasts. If you have been affected by breast cancer and are facing a mastectomy, I think you should ask your plastic surgeon, “Are all DIEP flaps the same? The video embedded in the blog will give you talking points for a discussion with your plastic surgeon. I was fortunate to interview Drs. Pankaj Tiwari and Ergun Kocak of Midwest Breast in Ohio to help the reader understand the nuances and differences in tummy flap breast reconstruction. What are the Differences in Flap Procedures using the Tummy? These surgeons point out the scar on the outside looks similar to a tummy tuck scar. But what happens on the inside as Dr. Kocak says, “it’s entirely different”. Let’s take Continue Reading →

The Story of the Kindness Tree

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Holiday lights are glowing across neighborhoods and cities across the world. Parties, celebrations, friends and family gather as another year ends. On a damp, cool, morning the doorbell rang unexpectedly in the middle of the day. My husband was off work, so he beat me to the front door although I was close behind him. When we opened the door, there stood our neighbor with a long cardboard box. We knew exactly what it was. This is the story of the kindness tree. When we First Saw the Tree A couple of weeks prior to our neighbor bringing this long cardboard box, we were out for a walk. This time of the year where we live, the days are short, often blanketed by fog in the early morning with light mist during the day. I told my husband to look at the tree on our neighbor’s front porch as we Continue Reading →

My Journey with Breast Cancer

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My journey with breast cancer began as a 6 year old little girl that watched her mother battle the disease in May of 1987. My mom didn’t undergo breast reconstruction (I don’t even know if they gave her the option) so she remained flat after a single mastectomy was performed followed by chemotherapy. In May 1991, the disease returned, and it has metastasized to her bone. She ultimately succumbed to the disease 2 ½ year later in December of 1993. I was 13 years old. I spent a majority of my 30’s undergoing genetic testing, scans, self-breast exams, and biopsies at the recommendation of various physicians including my ob-gyn and a hematologist I had visited due to iron deficiency in my first pregnancy. 2 biopsies had already come back negative. Then on Thursday, November 15th after having undergone a 3rd biopsy on the same breast, I got the call that Continue Reading →

How Difficult is the Decision to Have DIEP flap Breast Reconstruction?

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A Difficult Decision for Me to Have DIEP flap It is very difficult to make the decision to have DIEP flap breast reconstruction. I had this surgery in 2014 after a second breast cancer diagnosis and losing my breasts after a double mastectomy. I want to share what other women go through to have this amazing yet complex surgery. Who Might Consider Having DIEP flap Surgery? I listen to stories from basically two groups. The first group are women who have been diagnosed with breast cancer.  It is not always the case, but the hope is I hear these women are given all their options for breast reconstruction. Otherwise, how could they even make an informed decision about their choices to reconstruct their breasts? It is most important all options for breast reconstruction are presented after careful assessment of biopsies, various imaging procedures, that should include a shared decision-making conversation Continue Reading →

Five of My Favorite Gift Ideas from a Patient Advocate

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There are a variety of celebrations across the globe as the year ends. Holidays, giving, tangible gifts! We love to wrap packages in pretty bows and paper to give to family and friends. I want to talk about the intangible gifts of the holidays. The gifts that are in our hearts. Gifts not always easy to find or give. Perhaps this is my reflection on the gifts I have received from so many this past year. What are my five favorite gift ideas from a patient advocate? The Gift of Compassion Whether you have been newly diagnosed with breast cancer or are considering breast reconstruction after mastectomy, the gift of compassion is priceless. The most well-meaning friends and family can say comments we don’t always appreciate. The truth is, friends and family do not always know what to say. What can you do? Hold a hand if you are with Continue Reading →