Tag: breast cancer

Episode 4: Coordinated Care in Breast Cancer

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Have you been diagnosed with breast cancer or at high risk of getting breast cancer due to a genetic mutation? Do you remember the day you heard those words and got the news? How many healthcare providers did you have on your team? In Episode 4 we discuss the importance of coordinated care in breast cancer. My guest is an educator, microsurgeon and Director for MedStar Plastic and Reconstruction surgery and Academic Chair for the Department of Plastic Surgery at Georgetown University Medical Center, Dr. David H. Song. He chairs the BC3 Conference in Washington, D. C. The purpose of the conference as stated from the website: Breast cancer is the most common cancer affecting women. Diagnosis and treatments are part of the practice of a wide number of medical specialists and there are national initiatives calling for a multidisciplinary approach to the care of breast cancer patients. The multiple Continue Reading →

Episode 3: Breast Reconstruction and Breast Sensation

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In Episode 3 of the DiepCJourney podcast I discuss breast reconstruction and breast sensation with two surgeons who have performed this procedure together in their practice. Dr. Anne Peled and Dr. Ziv Peled work in tandem in the operating room to preserve and restore sensation to the breast for those affected by breast cancer. The paper published by Dr. Anne and Ziv Peled can be found in the PRS Global Open under the title, Nerve Preservation and Allografting for Sensory Innervation Following Immediate Implant Breast Reconstruction PRS Global Open Dr. Anne Peled, who was diagnosed with breast cancer herself, was torn about what surgical option to choose for her own diagnosis; a lumpectomy, oncoplastic surgery or mastectomy. She was aware, due to standard training of breast surgeons, a mastectomy would mean the likelihood of losing sensation to her breasts. Most patients who undergo mastectomy are left numb and as she Continue Reading →

Sexual Health after Breast surgery and Breast Cancer Treatment

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The words, “You have breast cancer” can be very difficult to come to terms with for women and men. Added to this and what follows is the aftermath from treatment, surgeries, and loss of body parts. Our bodies are physiologically designed for sex with nerves to sexual organs in both male and female bodies. Sex is often associated with an emotional experience for many. For those affected by breast cancer living with scars, loss of body parts, debilitating changes to sexual function, self-image, fatigue, vaginal dryness, loss of libido, to name a few, changes in sexual health after breast surgery and breast cancer treatment are often left to the patient to grapple with. Our guest, Liz O’Riordan, is a breast surgeon, breast cancer survivor, and author who discusses and writes about the topic of sexual health. We invited her for an interview. Liz tells us her medical background and shares Continue Reading →

Breast Reconstruction and Lessons Learned from 2020

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We have come to the end of a historic year, the year of poignant moments far too many to mention. There are stories to tell and a whole lot of reflection to do this year from patients and physicians. In my corner of the universe, I will reflect on breast reconstruction and lessons learned from 2020. Breast cancer, for many, brings a sense of complete loss of control, feelings of helplessness, and something you have little control over. Sound familiar to the events of 2020? There is a lot to understand about the disease of breast cancer, how it challenges scientist spending their lifetime finding a cure, and as we close out 2020, some uplifting news about a new clinical trial for a vaccine focusing on a certain type of breast cancer. A lesson we learned from 2020 and one we marveled at, scientist putting into practice the methodology they Continue Reading →

Health Literacy Impact and What are we Doing to Improve It?

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Coauthored by Terri Coutee and Minas Chrysopoulo, MD 2020 has been a disruptive year in health care. We are learning a great deal from the avalanche of stresses put upon our health care during the global pandemic. One thing remains a constant and important cog in the wheel, the impact and importance of health literacy. I had an opportunity to engage in conversation recently with Gareth Presch and Dr. Minas Chrysopoulo, founder of – Toliman Health. Let’s look at the key elements. Access to information Understanding Information Using the Information These three basic components are what patients actively engage in to make the appropriate decisions for their health. Although looking at it on paper this seems simple enough, the act of engaging in health literacy becomes far more complex for a patient diagnosed with a any condition. It is the process patients must understand and actively take part in. Often Continue Reading →

Ethical Responsibility of the Breast Cancer Story

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Have you ever been asked to share the personal story about your diagnosis of breast cancer? I have plenty of times and do not mind doing it but … I always want to know why and what the purpose of telling it is. Industry leaders pay attention! Please do not tell a story of a survivor to tug at the heart strings or grab the attention of the audience. It happens and I feel strongly about speaking up about the ethical responsibility of the breast cancer story. Breast cancer survivors often feel they have been sucked into a drama in life they did not want to be a part of. It feels like going to a bad movie you want to get up and walk out of even when you paid the money to get in. There are emotions, many tangled emotions involving more than just the survivor. Well meaning Continue Reading →

DiepCJourney: What’s in the Name?

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Breast reconstruction awareness day, #BRADay2020 is this Wednesday, October 21st. I have cordially been invited to make a presentation at Microsoft this week to educate the attendees on options for breast reconstruction after mastectomy. I was asked by a dear friend, Thomas, a Microsoft employee, what the meaning was behind all of the DIEPC platform I began to build in January of 2015. So, I will begin by telling you about DiepCJourney: What’s in the name? After a second breast cancer diagnosis, I chose to have DIEP flap breast reconstruction after a double mastectomy in May of 2014. When I returned from my surgery, I began to write about it for more of a cathartic experience. I then discovered less than 25% of women and men are aware or told about their options for breast reconstruction after mastectomy. I began to think about how I could educate others about options, Continue Reading →

Dealing with the Aftermath of Breast Cancer and Surgery

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There is no instruction book for this. You are diagnosed with a potentially life-threatening disease. Yes, I know, our survivor rates and treatment have both improved over the years. But what those years mean to a person going through treatment or healing from surgery has an entirely different meaning. It is a difficult Journey dealing with the aftermath of breast cancer and surgery. Dealing with Breast Cancer Emotions Take a bag of rocks, all different sizes, colors, and shapes. Put them in a box and shake them. Shake them loud and hard. It is sometimes the internal noise, like shaking this bag of rocks, that gets to you after a breast cancer diagnosis and surgery. Anger, fear, unknowns, disbelief, shame, guilt. There is your bag of rocks. You feel all of these emotions, sometimes more. Were you equipped to deal with this? Did you expect this to happen in your Continue Reading →

WHISTalks Live: Shared Decision Making

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Gareth Presch is Founder and CEO of World Health Innovation Summit (WHIS). As part of his work he curates WHISTalks sharing a variety of topics to reach a global audience on various themes. He invited Dr. Minas Chrysopoulo, Founder of the Breast Advocate app, and me to the program for an interview.  The video can be viewed in this blog. Here is a summary and highlights of our WHISTalks Live on shared decision-making. The Importance of the Patient Voice in Shared Decision Making Dr. Chrysopoulo mentions that shared decision making provides opportunity across a variety of health specialties for patients to have a voice in their health care decisions. He points out that in breast cancer 40% of patients do not feel they have had a voice in their treatment decision making. In breast reconstruction 57% of patients do not feel they make a high-quality decision as they define it. Continue Reading →

Telemedicine: Patient Care During COVID-19

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I recently interviewed a friend and patient advocate, Kirstin Litz, to find out how she successfully set up her first telemedicine appointment in the time of COVID-19. This was her oncology appointment for follow up breast cancer care. I also asked others for tips on how best to conduct telemedicine and optimize patient care in the time of COVID-19. Landline Vs. Mobile Phones for Messages Most of us use mobile phones for the bulk of our everyday communication with friends and businesses. However, home phones and landlines are sometimes a preferred number to reference when filling out contact forms for medical offices to use as an answering system. This was the case for Kirstin. She knew when her oncologist told her the appointment would be a video call, the landline number was not going to work. In addition to the message left on her landline, she received emails via the Continue Reading →