Tag: Breast Reconstruction

The Story and Tradition of Our Christmas Poinsettia

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This week my husband walked in the door with two beautiful poinsettias to add to the Christmas decorations in our home. It always makes me smile because it is tradition in our home and has been since December of 2014. This is the story and tradition of our Christmas poinsettia. A Look back to Christmas 2014 December 1, 2014, was a significant day in my life. I was wheeled into surgery to have my DIEP flap breast reconstruction with a highly skilled microsurgeon, Dr. Minas Chrysopoulo. We did a special interview looking back at that day that you can listen to on this episode of the DiepCJourney podcast. My husband and I got up before dawn that morning and made our way through the maze at the hospital parking lot and halls to check in. We traveled from Arizona to San Antonio by plane for my surgery. I booked us Continue Reading →

Celebrating Generosity: An Important Part of Nonprofit Work

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Change is the only constant. How many times have we heard that? In today’s fast-paced world nonprofit organizations must remain nimble when seeking support that includes volunteer and financial support to help run a nonprofit. And yet, it is often the constant supporters over time that make a nonprofit believe their impact is part of the greater community. Celebrating generosity is a very important part of nonprofit work. Giving Season in Nonprofit Work I am writing this blog in the middle of November. Thanksgiving holiday is in November. It is a time when families make the effort to be together and reflect on what they are grateful for and to reminisce about what makes them unique as a family unit. There is great diversity in family units, but it is in the gesture of gratitude that brings us together, no matter what that looks like. Similarly, as nonprofit leaders we Continue Reading →

Book Review: Phoenix Rising, Empower & Transform Through Breast Reconstruction

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I like to spend warm, slow, summer days reading. This book review is long overdue. I promised the author, Mark Clemens MD, I would do so, and I even said so in this DiepCFoundation interview we did on BIA/ALCL in early 2024. Dr. Clemens, it is a magnificent addition to my bookshelf and resource page. As promised, a book review: Phoenix Rising, Empower & Transform Through Breast Reconstruction. Phoenix Rising Arrives in the Mail I was very touched to find a lovely gift from Dr. Clemens in the mail soon after we met at the ASPS Fall 2023 conference. On the final day of the conference, I attended a panel discussion with two friends and international microsurgeons, Dr. Anne Dancey and Dr. Ruth Waters. The topic was on BIA/ALCL and Dr. Clemens was the moderator of an all-women scientific panel from around the world. Anne, Ruth, and I went to Continue Reading →

Credibility in the Noise – Social Media, Breast Reconstruction, and Your Experience

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What social media platforms do you use to find information about breast reconstruction? Is it TikTok, Facebook, Pinterest, Instagram, YouTube? This interview summary with Dr. Andrew Gassman of PRMA in San Antonio is about finding credibility in the noise – social media, breast reconstruction, and your experience. Dr. Gassman’s Interest in How Patients are Utilizing Social Media for Breast Reconstruction Dr. Andrew Gassman is a highly skilled and capable individual who knows DIEP flap breast reconstruction well. He joined the group at PRMA in January of 2021 and works with nine other microsurgeons who primarily perform autologous breast reconstruction for those affected by breast cancer. Before his time at PRMA he spent several years as an associate professor teaching future surgeons advanced breast reconstruction technique. He continues to be an active researcher. Our conversation addresses his interest in how patients want to chat, how to reach more people to offer Continue Reading →

A Breast Cancer Patient Intent on Finding Access to Care

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Access to medical care for those affected by breast cancer is crucial, and often life transformative. This is a personal story of a breast cancer patient intent on finding access to care. She is a woman of strength and stopped at nothing to find the best care available for her during her personal journey from diagnosis to recovery from DIEP flap breast reconstructive surgery. I am pleased to offer this summary of the DiepCJourney podcast. Dana’s Diagnosis and Breast Cancer Treatment Dana Brown, PhD., is a 54-year-old wife, mother, and educator. She has been married to her best friend and soulmate for 35 years and they have an amazing son who is twenty-six. Recently, after 30 years in education, after much consideration with her husband, Dana decided to retire. This decision was made based on the reason she is sharing her story with you on the podcast about how she Continue Reading →

A Patient Story: Transitioning from Implants to DIEP Flap

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Whether you have had a breast cancer diagnosis, have a genetic mutation placing you at high risk of getting breast cancer, have had or are facing a mastectomy due to either of these situations you will want to listen to this episode of the DiepCJourney podcast, A Patient Story: Transitioning from Implants to DIEP Flap. The time has come to share a personal story of a woman I interviewed twice about her decision to have a prophylactic mastectomy and implant reconstruction. This is the continuation of her Journey. She came to a decision to exchange the implants she never quite felt comfortable in and transition to DIEP flap breast reconstruction and use her own tissue this time around. An Unexpected DIEP Flap Reunion with a Friend Margaret Tueller Proffitt has a delightful Instagram account and describes herself as a lover of books, learning and travel. She is a Mom to four, Continue Reading →

Should You be Telling Someone What Kind of Reconstruction to Have?

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There are a few layers to peel back when answering this question. It goes without saying I am referring to those affected by breast cancer and are facing a mastectomy. Whether you are a surgeon, patient, family member, or friend, should you be telling someone what kind of reconstruction to have? Understanding the Overwhelming Shock I see some differences but more similarities when I speak to women who are at high risk of getting breast cancer than those with an active diagnosis. Those who are at high risk of getting breast cancer are a those who have a genetic mutation. The first step is knowing your family history. This will be followed by a visit to a genetic counselor or oncologist to begin formulating a plan that might include: People who have just received the news they have a breast cancer diagnosis have considerations for planning their treatment that can Continue Reading →

Challenges, Accomplishments, and Understanding the Worth of Being A Caregiver

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A guest blog by Richard A. Coutee I asked our oldest son to write a guest blog about his experience with both my breast cancer diagnosis and my recovery through DIEP flap surgery. I cried when I read it. He hit the mark on the challenges, accomplishments, and understanding the worth of being a caregiver. In his words… My First Challenge as a Caregiver In 2001, I was a freshman at Washington State University. I remember a chilly day in January, I was in class shortly after returning from Christmas break. The professor teaching the class that day paused when a teaching assistant came in and handed her a note. “Richard Coutee? You need to call home as soon as you can.”  I was embarrassed that I was called out in front of everyone and wondered what news was so important that it couldn’t wait for me. That’s when I Continue Reading →

Symptoms, Diagnosis, and Treatment of BIA/ALCL

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Any surgery is not without risks. Using a medical device like a breast implant is no different. This is the focus of our discussion in a summary of the DiepCJourney podcast, Symptoms, Diagnosis, and Treatment of BIA/ALCL. Four million women across the globe have undergone breast augmentation using a medical device called a breast implant. This is done for reasons such as cosmesis or enhancement of the breast, trauma to the chest wall or for oncological reasons, meaning for breast cancer and the breast implant is used to replace breast tissue affected by or lost due to these two reasons, breast cancer or chest wall trauma. Meet A Leading Expert in the Field I talked to a leading expert in the field about the medical definition of breast implant associated (BIA) anaplastic large cell lymphoma, an uncommon form of ALCL. I interviewed Mark Clemens, MD, MBA, FACS. After receiving his Continue Reading →

The Rewards and Risks of Traveling for Patient Advocacy

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Let’s dispense with the not so good news first. It is far less than the good news I will write about regarding the rewards and risks of traveling for patient advocacy. The Risks of Traveling for Patient Advocacy Patient advocates I know go into this work with their eyes wide open when they travel to conferences or events for their work. We know what can and sometimes does happen. I wanted to talk about these first because they are short-lived risks. The fallout from any of the above items passes in a brief time. We deal with them as they happen knowing we will return to our advocacy work in no time because of dealing with any of the above-mentioned events. The Rewards of Traveling for Patient Advocacy This is the real magic sauce of being a patient advocate and traveling on behalf of the communities we serve. My work Continue Reading →