Tag: Breast Reconstruction

Reflecting on the Pink of October and Breast Cancer

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October and the color pink have been symbolic of breast cancer for many years. It is a color both embraced for its meaning and at the same time despised by what many consider over use and misuse. I understand since I have survived breast cancer twice myself. This year brings me to a personal point of reflection on the pink of October and breast cancer. It has been one of the most rigorous months I’ve experienced in quite some time; mixed with emotions of gratitude, anticipation, new friendships, farewells, sadness, and letting go. The Shared Decision Making Panel at #PSTM18 It began with one of the proudest moments of my professional career as I sat on a panel with my breast reconstruction surgeon, Dr. Minas Chrysopoulo, a dear friend and patient advocate colleague, Kirstin Litz, and a new friend Dr. Hani Sbitany speaking about the importance of shared decision making Continue Reading →

5 Things to Share: My Delayed DIEP Flap Breast Reconstruction

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I am often inspired to write while reading blogs from other sites, reading research papers, or after speaking to patients who ask questions about my experience having delayed DIEP flap breast reconstruction. This week is a mix of all three. I saw a post on the Facebook page from the plastic surgeon I chose for my surgery. The title of the blog post read: Patient Reported Outcomes After Immediate and Delayed DIEP Flap Breast Reconstruction. ~ PRMA Plastic Surgery The blog references an evidence-based study from Plastic and Reconstructive Surgery. It states: The BREAST-Q is an universally accepted tool for evaluation of quality of life and satisfaction in breast surgery. The aim of our study was to identify differences in patient-reported outcomes in immediate and delayed reconstruction with DIEP flap.  ~ Plastic Reconstructive Surgery  During conversations as a patient advocate, I speak to women who ask me to describe what my Continue Reading →

Breast Cancer: Why We Choose to Be Patient Advocates

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I recently took part in an online meeting with two friends and fellow patient advocates. We met through the Project LEAD Institute program in July of 2017. Why did we apply for scholarship and attend this intensive week of the study of breast cancer biology? We all want further training to improve our advocacy knowledge base, so we could better serve our communities. The focus of our discussion at our online meeting; “Why do we choose to be patient advocates”? Kirstin, Jennifer, and I remain close friends. We talk frequently via phone chats, texts, and emails and ask each other for advice. We seek resources when we cannot find them for our community who might be in need. Opportunities for new learning, conferences to attend, and sharing new studies are just a few of the advocacy tools we share with each other to stay on top of our game. Our Continue Reading →

1900 Patients Share Stories About Breast Reconstruction

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Three short years ago in the summer of 2015, I opened a Facebook page dedicated to serve the breast reconstruction community. The Facebook page, https://www.facebook.com/groups/diepcjourney/ grew organically by word of mouth. We started out small, as so many new social media sites do. It is growing daily and now 1900 Patients Share Stories About Breast Reconstruction. What Do We Share? Think about this. You have just been diagnosed with breast cancer. Now you face the tsunami of information about to flood your brain; lab reports and waiting on results, treatment options, surgery, lumpectomy, mastectomy. Some days you feel overwhelmed, depressed, anxious, or even jubilant. Who will understand all these feelings? Who do I talk to who has been on this Journey? Think about this. You are told your best treatment option is to have a mastectomy. Perhaps, for peace of mind, you decide to have a prophylactic mastectomy because you Continue Reading →

Who Inspires You as a Breast Cancer Survivor?

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There are endless topics to write about when you blog as a two-time cancer survivor. Most weeks are planned topics, some topics are fun, and then there are delightful moments in your week leading to an unanticipated topic. You are inspired, and you know what the topic of your blog will be for the week. Who inspires you as a breast cancer survivor? This week it was my two friends, Jim, and Sean, who I met in my Livestrong class at the local YMCA. Both men have survived brain cancer. Both men endured physical impairment and fought to make a comeback to their now “new normal” life. I was at the gym doing my weekly workout. I had completed my cardio on the elliptical machine. I was finishing on weights. I do weights three to four times a week. The prescription I am on to keep my cancer at bay Continue Reading →

Breast Reconstruction. Taking Control Despite the Risks and Complications

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Patients who chose breast reconstruction often feel they are taking control despite the risks and complications associated with the surgery. I hear comments from patients after having breast reconstruction who have encountered complications including, seromas, wound healing issues, hernias, multiple surgeries, and yet, are very happy with their decision to reconstruct their breasts. Many feel it gave them control. Why? It gave them the opportunity to rebuild a body part lost after being diagnosed with breast cancer or deciding on prophylactic surgery due to a genetic mutation. An article in the New York Times reported on complications after various types of breast reconstruction surgeries including both implants and numerous forms of autologous (using your own tissue) reconstruction. A multicenter cohort study referenced in the article in JAMA stated: Reconstruction may be associated with a high risk for complications, but successful reconstruction may still be achieved in most patients. Women electing Continue Reading →

Breast Reconstruction: Seromas Evaluation and Treatment

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We looked at the pre and post-operative assessment of seromas after breast reconstruction in a previous blog and video. Here, Drs. Minas Chrysopoulo and Ramon Garza III of PRMA in San Antonio explain to the viewer how to evaluate and treat a seroma if it occurs after breast reconstruction. Seromas form because of your body’s natural healing processes. Think of a wound you get on the outside of your body. The body produces fluid as part of the healing process. You see fluid as with a scraped knee or a burn. Imagine the wound on the inside of your body that forms because of surgery. Your body is going to produce fluid internally due to the trauma of surgery. This fluid must be managed. Dr. C, as his patients refer to him, explains a seroma can happen anywhere someone has surgery. In breast reconstruction this can be in the breast Continue Reading →

Breast Reconstruction: Seromas Pre and Post-Operative Assessment

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Breast Reconstruction: Seromas Pre and Post-Operative Assessment Breast reconstruction complications are possible as is the case with any surgery. A possible complication in breast reconstruction is the development of a seroma. Here we look at the pre and post-operative assessment of seromas after autologous or implant-based breast reconstruction. I speak to two ASPS board certified plastic surgeons from PRMA in San Antonio, Dr. Ramon Garza III and Dr. Minas Chrysopoulo. I feel fortunate to share this information with the reader. The video in the blog will give a detailed explanation of pre and post-operative assessment of seromas. You can subscribe to DiepCFoundation YouTube channel after watching the video for a variety of educational topics on breast reconstruction. Dr. Garza begins the discussion by explaining who might be more prone than others to complications such as seromas after breast reconstruction. It is important to point out that their practice at PRMA Continue Reading →

What Do Breast Cancer and BRCA Friends Share in Common?

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I know that Heather Barnard and I share a lot in common! We are both educators. Breast cancer has affected Heather and me. Heather and I have had a mastectomy. Heather and I had breast reconstruction. We both write blogs about our breast reconstruction experience. Finally, and most coincidentally, we had the same plastic surgeon perform our breast reconstruction. What makes our friendship unique? We have never met in person. Heather and I live over 9,000 miles apart. Our shared commonalities, however, have bridged those miles and made us friends. Her Twitter handle says it all, @expattravelmom. She teaches in Singapore and in her off time travels extensively with her husband and three great children. I had my DIEP flap breast reconstruction in December of 2014. Heather had a prophylactic mastectomy with immediate implant breast reconstruction in June of 2015. Dr. Chrysopoulo was our connection. Heather would message me asking Continue Reading →

Nipple Reconstruction after Mastectomy

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I am often asked about the process of nipple reconstruction after mastectomy at the time of breast reconstruction. I am grateful to Drs. Minas Chrysopoulo and Ramon Garza III of PRMA in San Antonio who took time to make the video. It can be viewed from this blog explaining the procedure. My own experience during my DIEP flap breast reconstruction was a skin sparring, nipple sparring mastectomy. My breast surgeon clearly explained how she was going to make every attempt to save my nipples during my mastectomy. She also was very forthright in telling me, based on tumor size and location, she may not be able to save my nipples. I felt fortunate she successfully saved my nipples at the time of my double mastectomy. This is not always the case for every woman or man who has a mastectomy. There are reasons nipples cannot be saved. There are also patients Continue Reading →