DiepCJourney Celebrating Five Years in Unprecedented Times

Five years ago, on March 17, 2015, I published my first blog for DiepCJourney.com. I felt excited and anxious. Today, on March 17, 2020, those feelings, excitement and being anxious manifest themselves in a completely different way. We are at the tip of the iceberg in the United States as we grapple with how to deal with a global pandemic, the worldwide Coronavirus outbreak. This blog will be marked as a time capsule. I had no idea DiepCJourney would be celebrating five years in unprecedented times. I had an idea what I might write in this blog as 2020 rolled around knowing it was the fifth anniversary year. But now things have changed. I want to share my concerns and gratitude to all of the amazing readers over the past five years. My Concerns for Readers of DiepCJourney at this Unprecedented Time The blog continues to grow and evolve. What Continue Reading →

Can Sensation be Restored to the Breast after Mastectomy?

At a meeting of the American Society for Reconstructive Microsurgery (ASRM), I had the opportunity to interview Dr. James Craigie from the Center for Natural Breast Reconstruction in Charleston, S.C. for this important discussion on restoring sensation to the breast after mastectomy. This is done during breast reconstruction surgery. Women undergoing DIEP flap breast reconstruction frequently ask me, “Can sensation be restored to the breast after mastectomy?” The short answer is yes, it can. However, not all plastic surgeons perform this procedure. In fact, it is done by surgeons trained in a sub-specialty of plastic surgery called microsurgery. Microsurgery requires advanced skills involving the art and science of connecting nerves and blood vessels under high powered microscopes. It takes the trained eye of a microsurgeon to perform nerve reconstruction. What Type of Breast Reconstruction Can Restore Sensation? Dr. Craigie explains that “natural breast reconstruction” involves using the patients own tissue. Continue Reading →

Are All DIEP Flaps the Same?

It is a fair question to ask don’t you think?  It is even a better question to discuss at your initial consult when you want to use your tummy tissue to reconstruct your breasts. If you have been affected by breast cancer and are facing a mastectomy, I think you should ask your plastic surgeon, “Are all DIEP flaps the same? The video embedded in the blog will give you talking points for a discussion with your plastic surgeon. I was fortunate to interview Drs. Pankaj Tiwari and Ergun Kocak of Midwest Breast in Ohio to help the reader understand the nuances and differences in tummy flap breast reconstruction. What are the Differences in Flap Procedures using the Tummy? These surgeons point out the scar on the outside looks similar to a tummy tuck scar. But what happens on the inside as Dr. Kocak says, “it’s entirely different”. Let’s take Continue Reading →

Breast Reconstruction Photo Sharing: Should We?

This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

Microsurgery in Breast Reconstruction after Mastectomy

I had the opportunity to attend the American Society of Reconstructive Microsurgeons meeting recently. As a patient advocate attending, I was particularly focused on microsurgery in breast reconstruction after mastectomy. It gave me the chance to have in depth conversations with plastic surgeons who dedicate intense hours of training to become microsurgeons.  The conference attendees included medical students interested in this specialty, plastic surgeons who are currently in fellowship training for microsurgery, and those seasoned veterans sharing the latest techniques and methods of surgical skills to achieve optimal outcomes for patients. The ASRM conference took place at a hotel with all of the sessions easily accessible. This conference felt comfortable, informal, and intimate to me. These microsurgeons reflected the feeling, this group is like a small tribe who understand the rigors of microsurgical training and how it can positively change the lives of patients. Why Should you Find a Microsurgeon Continue Reading →

A Commentary: A Study Marking Patients for DIEP Flap Surgery

Plastic and Reconstructive Surgery Global Open is an open source journal available for everyone to read. I refer to it frequently. The articles I focus on are those regarding breast reconstruction. The article entitled, “A Standardized Approach to Deep Inferior Epigastric Perforator Flap Marking” was recently brought to my attention by a plastic surgeon, Dr. Roy Kim. I know Dr. Kim via social media and speaking to him at the annual Plastic Surgery conference. I recently had the privilege of meeting two of the authors of the paper, Dr. Edward Reece and Dr. Sebastian Winocour both of Baylor College of Medicine. I think he knew I would find this study fascinating. I decided to write a commentary on this study of marking patients for DIEP flap surgery. A Patient Advocate’s Thoughts: A Study Marking Patients for DIEP Flap Surgery I chose DIEP flap as the method of breast reconstruction after Continue Reading →

A Simple Note of Gratitude

I was raised to have a grateful heart. I have come to appreciate this value my parents taught me. They modeled the importance of expressing gratitude frequently with friends, family, and even strangers. Mom and Dad always said gratitude should be given freely from the heart, expecting nothing in return. I dedicate this blog to an individual I have known for five years. I encourage the reader to take the time to acknowledge those in your life who have made a difference, large or small, either publicly or privately with a simple note of gratitude from your heart. Moments in life are sweet and precious, tenuous and unpredictable. We don’t always know the direction our lives will take. There are the planners and the gypsies. I have always considered myself a planner with a bit of gypsy spirit. A plan I put in place in 2014 was to complete my Continue Reading →

DiepC Journey Facebook Group Hit 4,000 Members!

DiepC Journey Facebook Group Hit 4,000 Members! Facebook members on DiepC Journey, Breast Reconstruction after Mastectomy, can be very active in the evenings. This happens when members have some alone time after dinner, work, and putting the children to bed. I hopped on last night. I noticed a lot of activity and questions being asked. Then something incredible happened. I looked at the number of members as I approved some new requests to join. I was a bit shocked to find out the Journey hit 4,000 members. DiepC Journey Facebook Group and 4,000 Members Around the Globe I am in awe of this group because it is specific to breast reconstruction after mastectomy. That is our common bond. On World Kindness Day I asked members to check in to tell each other where they were from. This group continues to practice kindness toward each other in unexpected ways. They checked Continue Reading →

DiepCFoundation attends the GRYT Virtual Cancer Conference

I have attended a number of conferences as a patient advocate since opening DiepCFoundation in 2016. Traveling takes time and financial resources. I am happy to share with you a virtual conference you can attend from the comfort of your home. Come with me as DiepCFoundation attends The GRYT Virtual Cancer Conference held Saturday, October 5th, 2019. How to Participate in the GRYT Virtual Cancer Conference The conference will be “open” from 8am-9pm Eastern Standard Time. During this time, you can listen to a variety of speakers and attend breakout sessions from a number of organizations across the cancer community. You can also visit the Exhibit Hall to interact one on one with the hosts of the virtual booths. They will be available during various times of the day to answer questions from participants. Ongoing Resources after the GRYT Virtual Cancer Conference There is an added advantage and ongoing resources Continue Reading →

My Journey with Breast Cancer

My journey with breast cancer began as a 6 year old little girl that watched her mother battle the disease in May of 1987. My mom didn’t undergo breast reconstruction (I don’t even know if they gave her the option) so she remained flat after a single mastectomy was performed followed by chemotherapy. In May 1991, the disease returned, and it has metastasized to her bone. She ultimately succumbed to the disease 2 ½ year later in December of 1993. I was 13 years old. I spent a majority of my 30’s undergoing genetic testing, scans, self-breast exams, and biopsies at the recommendation of various physicians including my ob-gyn and a hematologist I had visited due to iron deficiency in my first pregnancy. 2 biopsies had already come back negative. Then on Thursday, November 15th after having undergone a 3rd biopsy on the same breast, I got the call that Continue Reading →