A Patient Advocacy Story

Breast Reconstruction Awarenrss Day 2015, a patient advocacy story, begins with an inspirational moment; a moment that was a true catalyst to a new found purpose in my life. Where was the inspiration? Why would a patient become an advocate and subsequently an affiliate to promote a nationwide campaign for breast reconstruction awareness following a cancer diagnosis and mastectomy? Easy answer! The plastic surgeon I chose to do my DIEP flap surgery and the patient liaison that was my first point of contact at their group WAS my starting point. When something feels right, I move on it. It was my moment of inspiration. I was asked to share my reconstruction surgery experience with other women who were considering the same type of surgery. I wanted to pay it forward and let other women know about this group, their skill, success rate, credentials, compassion and the support of all the Continue Reading →

#FlashbackFriday

#FlashbackFriday and A Chance Encounter I wanted to share a chance encounter that I had yesterday and post it for #FlashbackFriday. While I was busy doing what I’ve been calling my “boots on the ground” work to promote Breast Reconstruction Awareness Day 2015, I had a fortuitous circumstance, an encounter of compassion. Tweeting in the Stairwell My Twitter account was full of activity yesterday thanks to some overwhelming support from Social Media friends and supporters. I was at the imaging center to hand out flyers for my Breast Reconstruction Awareness event. It seemed like a logical place to drop off promotional material for women getting mammograms and screenings. I took the stairwell trying to be inconspicuous and out of the way of the patients. OK, so I was also admittedly latching on to the imaging center’s WI-Fi so I could check the craziness of my Tweets coming in. It was Continue Reading →

A Letter to My DIEP Flap Sisters

A Letter to My DIEP Flap Sisters I hear from a number of DIEP flap sisters when they are having upcoming surgery for phase one or two of breast reconstruction. Some currently have cancer. Others have gone through their cancer surgery and treatments and are at the point they can now physically proceed with DIEP flap surgery. There are those of you who are having prophylactic mastectomies due to a gene mutation and still others are ready to complete phase two and finalize their journey. There is excitement and exuberance in their comments. I am so excited I have a date for my surgery! My insurance has been accepted for my DIEP flap! My surgery is just two weeks away! I will be able to look back soon on this entire process and be able to move on! I know how you feel. I sense your anticipation in removal of Continue Reading →

Delayed DIEP flap Breast Reconstruction

Delayed DIEP flap Breast Reconstruction ~ My Story Delayed DIEP flap breast reconstruction, my story, my experience, will hopefully give others considering this method some insight into your planning. In a perfect world immediate breast reconstruction, reconstruction done at the same time as a mastectomy, results in the best possible aesthetic outcomes for a number of reasons.  But, we all know breast cancer is not a perfect world. There are Reasons Patients have Delayed Reconstruction: Adjuvant therapy Adjuvant therapy may be necessary after a mastectomy. If there are lymph nodes that have tested positive for cancer and chemotherapy or radiation is recommended, this could delay your reconstruction. My story: No lymph nodes tested positive and radiation was not deemed necessary. However, because of the type of cancer I had, left breast recurrence from twelve years previously and a new cancer in my right breast, I was encouraged to have the Continue Reading →

A Letter to “Life it Up 365”

To my friends, Dana and Colleen, at Life it Up 365: I found your website, “Life it Up 365” in late July of this year. After reading it I had an idea for my own private Face Book page. I wrote a blog entitled, “Breast Cancer, Breast Reconstruction & New Challenges”. I posted it to my private Face Book page with this comment: What have you done as a result of your cancer diagnosis or finding that you are BRCA positive? Have you tried something new? Has it been fun, frightening or both? Share your story with us at the Journey in a brief comment response. I will compile your responses into another blog and share them with Dana and Colleen at Life It Up 365 in early September. I didn’t get as many responses as I thought I might but the ones I did receive from my members are Continue Reading →

DIEP flap Recovery: the First Week Home

DIEP flap recovery, the first week home from hospital, or in my case back to my rental, was something I called on my best friend and caregiver to help me recount the details of. We had a few good laughs over some events I will share with you in this post. My husband was only able to be there for one week during my hospital stay.  Since I flew over 800 miles to have my DIEP flap surgery I had my best friend fly in to take over for him the week I left hospital. We chose to stay in a Vacation Rental by Owner. Lots of Sleep during DIEP Flap Recovery My surgery was on a Monday and I left hospital on Saturday. The sunshine and fresh air were divine after being in a hospital bed for five days. I got into the apartment rental, changed into my favorite Continue Reading →

DIEP Flap Surgery for Breast Reconstruction

The embedded breast reconstruction options video is one of the reasons I chose the plastic surgery group to perform my DIEP flap breast reconstruction. Since this blog was published, PRMA has now added another microsurgeon to their team, Dr. Ramon Garza III. There are other plastic surgeons across the U.S., highly qualified, who successfully perform flap reconstruction to rebuild breasts for those affected by breast cancer. However, there are few who do it in high volume, have a high success rate, and with great compassion. It is a specialized surgery requiring years of training, practice and skill. It is imperative to know what makes a successful micro-surgeon and what women are looking for when they choose someone to perform this intricate surgery. I have listed on my resource page the following key questions to ask your plastic surgeon. How many procedures have they performed? What is their success rate? Do Continue Reading →

Trending on Twitter #Ilooklikeasurgeon

Trending on Twitter #Ilooklikeasurgeon Trends on Twitter and much of Social Media go at break neck speeds. Here today and gone tomorrow. There has been something trending on Twitter the past few days that inspired me to write this post. The trend followed the hash tag #Ilooklikeasurgeon and began with an article written about diversity and equality from a London surgeon, Dr. Ed Fitzgerald. A resident in surgery, Heather Logghe, MD, started the trend with pictures on Twitter.  And yes, it exploded on Social Media!  Dr. Kathy Hughes, a surgeon and one of my favorite bloggers,  even started a Facebook page to honor this community.  I was mesmerized and actually found two surgeons I follow on Twitter who posted these two pictures.                 I know Dr. Chrysopoulo personally and many of you who read my blog probably feel like you do, too, as Continue Reading →

Breast Cancer, Breast Reconstruction & New Challenges

Breast Cancer, Breast Reconstruction & New Challenges What new challenges have you taken on since being diagnosed with breast cancer?  What have you had to deal with after losing your breasts to cancer, or finding out that you are a BRCA gene carrier? I was inspired to write this blog based on an article seen on social media from Living Beyond Breast Cancer. I include my BRCA friends in this post because I advocate for all choices of breast reconstruction and we have all had the perspective of experiencing some difficult decisions regarding our health. Events in life, good or bad, change us. They catapult us into decisions that we likely would not have come to based on the event. Being diagnosed with cancer for the second time in 2014, facing a mastectomy and then delayed DIEP flap reconstruction later that year, reset my compass. A Side Trip on my Continue Reading →

DIEP Flap Post Surgical Garments

The type of DIEP flap post surgical garments you will wear may very depending on your plastic surgeon. This is a photo I took on my computer. Keep in mind this is from my surgery in 2015 and what they give patients now may be updated. But it is a page taken directly out of the Breast Reconstruction Planner from my surgical group, PRMA in San Antonio. They are very comprehensive helping you plan every step of the way but I wanted you to hear an experience from a patient’s standpoint and the type of DIEP flap post surgical garments I wore. Are they glamorous? No, but you learn to conceal their bulkiness with accessorizing! Here is a picture with my nurse Denise. You can visibly see the outline of my drains but you don’t see any of my post DIEP flap surgical garments.  Are they comfortable? They’re not uncomfortable Continue Reading →