Undeniable Physical and Psychological Changes After Breast Reconstruction

Facing the possibility of mastectomy is frightening for most. You have breast cancer or a genetic mutation putting you at high risk for developing breast cancer. The body parts that are front and center on your body are about to be removed. You are sitting in front of a plastic surgeon as the surgical process is described to you. You know there will be undeniable physical and psychological changes after breast reconstruction. How in the world do you begin to even process all of this? How Will I Feel Physically After Mastectomy? My breasts gave me a sense of balance I didn’t realize until I began to stumble over my own feet after my double mastectomy. I thought I was just recovering from side affects of anesthesiology. Walking through my house I would randomly trip like a baby taking its first steps. I felt clumsy and awkward. My breast surgeon Continue Reading →

Breast Reconstruction Decorative and Restorative Tattoos

Two patient advocates, both breast cancer survivors, walk into a tattoo parlor in downtown Seattle. Sounds like an intriguing story, right? It was. I had the honor to have patient advocate Kirstin Litz join me for an intense day of patient advocacy work in the great city of Seattle. Our day began with a cup of coffee for the road, of course. We arrived in the densely populated district of Capitol Hill early morning to visit Eric Eye. We were there to interview him about his work doing breast reconstruction decorative and restorative tattoos. I have never had a tattoo but after visiting Eric we talked about the possibilities of a decorative tattoo in my future. He asked me what I was thinking about. I told him I have deep Irish heritage and I love to dance. Van Morrison is one of my favorite musical artists. I explained to Eric Continue Reading →

Sisters Not Twins: Nipple Prosthesis after Unilateral Mastectomy

For women who have a unilateral mastectomy after breast cancer, there are great benefits to maintaining at least one sensate breast and nipple. However, it usually is more challenging to achieve a good symmetrical restoration of breast and nipple. There are plastic surgeons who like to inform us that after reconstruction, our breasts will be “sisters not twins” to help us have realistic expectations. In seeking to restore symmetry and balance for these women, most custom nipple prosthetic companies make an impression of the natural nipple and then seek to match the color.  The cost range for this degree of customization is currently about $480 to $760. That was the approach my husband and I used with Naturally Impressive nipple prosthetics for about 5 years. We learned a lot through this process, but we also discovered some of its limitations. MATCHING A NATURAL NIPPLE IS A MOVING TARGET! From my Continue Reading →

The Eye of a Restorative Tattoo Artist for Breast Cancer Patients

There are those who choose their profession based on their interest and background training. Eric Eye was inspired to expand his practice and professional skill as a tattooer after learning about restorative tattoos for breast cancer patients. This blog is dedicated to Eric Eye after I spent time with him in his Seattle studio on Capitol Hill. Eric is the eye of a restorative tattoo artist for breast cancer patients. The streets of Capitol Hill are an eclectic collection of ethnic restaurants, music shops with vintage albums, coffee shops, parking meters lining the streets waiting to be fed, and above ground wires strung from telephone poles draped like spider webs across the streets. There are businesses sharing the same brick and mortar in a single block separated by walls and glass windows with entrances leading to long narrow hallways and locked corridors. A Breast Cancer Patient’s First Visit to a Continue Reading →

El valor de una 2ª opinión para la reconstrucción mamaria

El valor de una segunda opinión para la reconstrucción mamaria es, afortunadamente, algo que tiene el potencial de dar esperanzas a las mujeres que han sido rechazadas en una consulta inicial para una reconstrucción mamaria autóloga. Tuve la fortuna de hablar con dos cirujanos certificados, el Dr. David Song de MedStar Georgetown y el Dr. Minas Chrysopoulo de PRMA en San Antonio. Ambos son cirujanos plásticos que rutinariamente realizan una variedad de cirugías reconstructivas de mama con tejidos de la propia paciente con gran éxito. ¿Qué es la reconstrucción mamaria autóloga? La reconstrucción mamaria autóloga consiste en utilizar el tejido y los vasos sanguíneos subyacentes de otra área del cuerpo de la propia paciente para crear un seno nuevo y suave después de una mastectomía. ¿Por qué a veces las mujeres son rechazadas por los cirujanos plásticos o se les dicen que no son buenas candidatas para la reconstrucción mamaria Continue Reading →

Whitney’s Story: Prophylactic Mastectomy and DIEP Flap Breast Reconstruction

Our Journey personal story takes place this week with my neighbor. It is Whitney’s story of prophylactic mastectomy and DIEP flap breast reconstruction. Whitney has the genetic mutation for ATM and CHEK2 putting her at very high risk for breast cancer. She is a young woman in her mid-thirties who very much wants to be a part of her children’s’ lives. She will be having her surgery when they are one and four years old.  Whitney was the tender age of 24 when she watched her own mother die of breast cancer. She was her caregiver so her decision to undergo prophylactic mastectomy and DIEP flap has not been easy. Here is her story. A Neighbor on the Journey from Mastectomy to Breast Reconstruction I am blessed. Each day I engage with an amazing group of women on the Facebook page I administer, The Journey. When I found out Whitney Continue Reading →

Recovery from Breast Reconstruction: A bit like the Winter Doldrums?

Does recovery from breast reconstruction seem a bit like making it through the winter doldrums? Sometimes, yes, it does. The recovery period, for any breast reconstruction takes a bit of time. However, if you have had any type of autologous (using your own tissue) breast reconstruction you will be recovering for a few weeks. Long, cold, snowy, winter days when you can’t get out of the house reminds me of my own recovery from DIEP flap surgery. Fatigue and Recovery from Breast Reconstruction You will be fatigued for a few weeks after surgery. Your body is working overtime to rid itself of the effects of anesthesia. You are also in healing mode so it will take a lot out of you when you are released from hospital. I often tell women I knew when I was getting back to normal when suddenly one day, I no longer needed my daily Continue Reading →

Post Breast Reconstruction Nips that Stick

Wouldn’t it be nice if prosthetic nipples would stick just like window cling? You simply slap them on and they stay on until you peeled them off.  Newsflash: skin isn’t like glass! Our marvelous, living, breathing skin with natural oils and sweat glands just isn’t like the surface of glass – thank goodness! “Nips that don’t stick” is a common and frustrating problem for many types of prosthetic nipples. Falling off at embarrassing moments or potentially getting lost can understandably be deal breakers for women considering nipple prosthetics after breast cancer surgery. Finding a way to provide secure adhesion for Naturally Impressive nipples sticking securely on the breast was one of our first big challenges. We had developed a nipple that looked fantastically real, but when using Pros-Aide water based adhesive, they only stayed on a few days, at best. Often I’d find them in the bed sheets in the morning Continue Reading →

Waiting for a DIEP Flap Surgery Date

Ruth is one of over 2,400 global members of DiepCJourney Facebook group. I am honored to share her story here. The wait for her DIEP flap breast reconstruction surgery has been challenging for Ruth on many levels. She tells us her personal story and what it means waiting for a DIEP flap surgery date. Delayed DIEP Flap: The Wait Begins It was October 2014 when I received my breast cancer diagnosis. I live in a small beautiful, city tucked away in the south east corner of British Columbia. Though I was able to have a mastectomy and chemotherapy locally, unfortunately our hospital does not have the facilities to offer either radiation or reconstructive surgery. It was decided having a mastectomy would be the first course in my treatment. Opting for immediate reconstructive surgery would have meant a delay as well as travelling over 500km to Kelowna or over 800km to Continue Reading →

How Difficult is the Decision to Have DIEP flap Breast Reconstruction?

A Difficult Decision for Me to Have DIEP flap It is very difficult to make the decision to have DIEP flap breast reconstruction. I had this surgery in 2014 after a second breast cancer diagnosis and losing my breasts after a double mastectomy. I want to share what other women go through to have this amazing yet complex surgery. Who Might Consider Having DIEP flap Surgery? I listen to stories from basically two groups. The first group are women who have been diagnosed with breast cancer.  It is not always the case, but the hope is I hear these women are given all their options for breast reconstruction. Otherwise, how could they even make an informed decision about their choices to reconstruct their breasts? It is most important all options for breast reconstruction are presented after careful assessment of biopsies, various imaging procedures, that should include a shared decision-making conversation Continue Reading →