Category: Travel

Hidden Costs of Traveling: Breast Reconstruction Surgery

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Hidden Costs of Traveling: Breast Reconstruction Surgery No one knows the hidden costs of traveling for breast reconstruction surgery more than the patient themselves.  I just returned from recent fat grafting as part of my own my own DIEP flap breast reconstruction. The costs are fresh in my mind and I feel it is an important topic to write about. The WHCRA (Women’s Health and Cancer Rights Act of 1998) is outlined in this article. A portion of the article states: This federal law requires most group insurance plans that cover mastectomies to also cover breast reconstruction. It was signed into law on October 21, 1998. The United States Departments of Labor and Health and Human Services oversee this law. The devil is in the details.  Look carefully at the wording, especially the word, “most”.  Insurance is becoming challenging for both patients and physicians.  Costs, restrictions, increased deductibles and co-pays Continue Reading →

Breast Reconstruction Consult: The Physical and Technical Component

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Breast Reconstruction Consult: The Physical and Technical Component This blog discusses a breast reconstruction consult: the physical and technical component of a DIEP flap surgical visit with the plastic surgeon.  I wrote part a blog dealing with the emotional and psychological aspects of a consult and another one on the abdominal examination component of a consult. A plastic surgeon will work with his nurse at this initial consult to gather all the pertinent information needed to optimize the outcomes of DIEP flap surgery. Each of us goes to this appointment with unique circumstances in terms of both our physical structure and overall health.  I will walk you through my own personal case but know yours will be exclusive to the situation you bring to the initial consult for your breast reconstruction. The hope is to give you an idea of the steps done during this consult and what the purpose of each Continue Reading →

Pregnancy After DIEP flap Breast Reconstruction

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Pregnancy After DIEP flap Breast Reconstruction I meet amazing women and hear inspiring stories of courage in my breast reconstruction education and outreach. We share pictures, laughs, tears, fears, and stories of triumph in my conversations with these women warriors. Chats with these women, not only in the U.S., but across the globe fuels and energizes me to continue this advocacy. This story, pregnancy after DIEP flap breast reconstruction, touched my heart as a mother of two boys. I am fortunate through my travels to meet DIEP flap patients in person. Nothing gives me greater joy than sharing my experience and listening to others’ journeys through their own breast reconstruction process. It is a shared strength and sisterhood few understand and appreciate. One fortunate meeting and follow up story I wrote might seem nothing short of miraculous.  Although for each of us, our stories too, feel miraculous after we’ve reached Continue Reading →

One Year Post DIEP flap Breast Reconstruction

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One Year Post DIEP flap Breast Reconstruction I am now one year post DIEP flap breast reconstruction. I was finalizing my surgical prep exactly one year ago today as I write this blog. My surgery was the morning of December 1, 2014.  So how am I doing now? How does my body feel? Do I have any regrets? Would I suggest having DIEP flap surgery to other women? Was I truly able to “just get on with it”? I’m doing just splendidly! I honestly believe I’m doing quite well, in fact splendidly, and enjoying many benefits from having DIEP flap surgery after a second breast cancer diagnosis and double mastectomy. I want the reader to know so you have hope. I opened my social media accounts today before I began writing this blog post. I read a statement from a woman who was just going in for her DIEP flap Continue Reading →

Traveling with Prosthesis

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Traveling with Prosthesis Traveling with prosthesis of any kind through TSA involves preparation and concerns. I promised a follow-up blog after my post entitled, My Boobs in a Box. There is both a light-hearted side to this story and one that still raises the hairs on my neck when I recall the details of a particular day at the airport. Let’s start with the funny stuff. Altitude and Silicone Inserts for Breast Prosthesis I was told when I picked up my breast prosthesis, the silicone implants I chose could potentially exhibit some odd behaviors when I was at altitude on a flight. I experienced those odd altitude behaviors in my prosthesis twice; once on a flight and the other time when I was visiting the Grand Canyon. The first time I flew with my prosthetic bra I felt the effects of the altitude after we began climbing. I could feel Continue Reading →

A Letter to My DIEP Flap Sisters

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A Letter to My DIEP Flap Sisters I hear from a number of DIEP flap sisters when they are having upcoming surgery for phase one or two of breast reconstruction. Some currently have cancer. Others have gone through their cancer surgery and treatments and are at the point they can now physically proceed with DIEP flap surgery. There are those of you who are having prophylactic mastectomies due to a gene mutation and still others are ready to complete phase two and finalize their journey. There is excitement and exuberance in their comments. I am so excited I have a date for my surgery! My insurance has been accepted for my DIEP flap! My surgery is just two weeks away! I will be able to look back soon on this entire process and be able to move on! I know how you feel. I sense your anticipation in removal of Continue Reading →

#WorkoutWednesday

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#WorkoutWednesday Exercises Let’s call today’s blog #WorkoutWednesday. I’m back at my desk today after an amazing trip to one of my favorite places on the earth, Seattle, Washington. I was able to enjoy family and friends as well as schedule meetings and dinners to connect with more amazing women in the breast cancer and breast reconstruction community. I unpacked my week and a half’s worth of luggage as well as my “portable office” after my flight yesterday. I was amazed at how happy I was to set my laptop back up in the office space in my home or as I have fondly named it, “The She Shed”. I missed writing, blogging, researching, sharing and reaching out to the on-line community. But the face to face meetings I had last week were invaluable. There will be blogs written as follow-ups to those experiences. It was important for me to get Continue Reading →

Flying Home After DIEP Flap Breast Reconstruction

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Flying home after DIEP flap  breast reconstruction surgery has the potential of both emotional and physical impact for patients. It was for me and I’d like to share my experience with you. I recommend securing a wheelchair to get you to the gate. It was invaluable for me for two reasons. I didn’t have to worry about walking fast to my next connection and it eliminated excess swelling and pain from walking long distances at the airport. It gets you through TSA much faster, too! Physical Impact of Flying Home I highly recommend you have a travel partner for phase one of DIEP flap breast reconstruction surgery. I did and they can do the heavier lifting for you. You will be instructed not to lift anything over ten pounds for six weeks after surgery. Lighten up the purse this one time, ladies. I suggest the following items: Lip balm to Continue Reading →

Delayed DIEP flap Breast Reconstruction

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Delayed DIEP flap Breast Reconstruction ~ My Story Delayed DIEP flap breast reconstruction, my story, my experience, will hopefully give others considering this method some insight into your planning. In a perfect world immediate breast reconstruction, reconstruction done at the same time as a mastectomy, results in the best possible aesthetic outcomes for a number of reasons.  But, we all know breast cancer is not a perfect world. There are Reasons Patients have Delayed Reconstruction: Adjuvant therapy Adjuvant therapy may be necessary after a mastectomy. If there are lymph nodes that have tested positive for cancer and chemotherapy or radiation is recommended, this could delay your reconstruction. My story: No lymph nodes tested positive and radiation was not deemed necessary. However, because of the type of cancer I had, left breast recurrence from twelve years previously and a new cancer in my right breast, I was encouraged to have the Continue Reading →

DIEP flap Recovery: the First Week Home

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DIEP flap recovery, the first week home from hospital, or in my case back to my rental, was something I called on my best friend and caregiver to help me recount the details of. We had a few good laughs over some events I will share with you in this post. My husband was only able to be there for one week during my hospital stay.  Since I flew over 800 miles to have my DIEP flap surgery I had my best friend fly in to take over for him the week I left hospital. We chose to stay in a Vacation Rental by Owner. Lots of Sleep during DIEP Flap Recovery My surgery was on a Monday and I left hospital on Saturday. The sunshine and fresh air were divine after being in a hospital bed for five days. I got into the apartment rental, changed into my favorite Continue Reading →