Empowering Voices: My Experience as a Patient Advocate at the Binaytara Northwest Women’s Cancer Conference

On September 27, 2025, I had the privilege of attending the Binaytara Northwest Women’s Cancer Conference in Portland as a patient advocate, accompanied by my dear friend and fellow advocate, Nikki McCoy. This experience was not just an opportunity to connect with medical professionals; it was a chance to amplify the lived experiences of patients navigating the complexities of cancer diagnoses, treatment, and survivorship. As I reflect on our day at the conference, I am filled with gratitude and a renewed sense of purpose in my advocacy journey.

The Power of Presence: Representing Patients

Walking into the conference venue that morning, I was acutely aware of the significance of my role. Patient advocates hold a unique position: we are the bridge between patients and providers, amplifying voices that might otherwise go unheard. Nikki and I were determined to represent not just ourselves, but the countless people and families affected by cancer. Our shared experiences and different perspectives made our partnership even more meaningful. From the outset, we felt welcomed by both the event organizers and attendees, a testament to the increasing recognition of the value patient advocates bring to such events.

Each of us was featured in The Cancer News, a publication by Binaytara sharing our unique and individual stories. You can read my interview here: https://binaytara.org/cancernews/article/from-patient-to-advocate-how-one-woman-s-breast-cancer-journey-created-a-global-community?utm_source=diepcfoundation&utm_medium=social&utm_campaign=cancer_education&utm_content=terri_coutee_share

You won’t want to miss Nikki’s interview in this post.

https://binaytara.org/cancernews/article/storytelling-as-advocacy-a-breast-cancer-survivor-s-journey

Keynote Speakers and Sessions: Learning and Sharing

The day was filled with informative sessions led by oncologists, surgeons, researchers, and healthcare professionals. Topics ranged from the latest advances in women’s cancers to the importance of mental health and survivorship care. As a patient advocate, I appreciated the way presenters not only shared cutting-edge medical knowledge but also acknowledged the emotional and psychosocial challenges patients face. Nikki and I took abundant notes, eager to bring these insights back to our respective support communities.

What stood out most was the willingness of doctors and researchers to listen. During Q&A sessions, Nikki and I asked questions rooted in patient concerns approaching the mic with thoughtful inquiries about communication gaps, and how the decisions in the clinic bare careful consideration between the patient and clinician. Our questions were met with thoughtful, respectful responses.

Workshops: From Knowledge to Action

The workshops at the conference provided some of the most meaningful and practical experiences of the day. One session that stood out was the lunch focused on the clinical utility of circulating tumor DNA (ctDNA)-based minimal residual disease (MRD) testing with Signatera in breast cancer. This workshop brought together both scientists and patient advocates, fostering an environment where collaboration was encouraged and valued.

During the discussion, it was inspiring to hear about ongoing efforts to design clinical trials that truly put patient needs at the center. The dialogue highlighted the importance of advocates working alongside researchers to ensure that studies reflect real-world concerns and priorities.

We learned that, while ctDNA-based MRD testing shows promise—particularly in identifying patients who may be at higher risk for recurrence—there remain important questions about its impact. The consensus was clear: additional prospective clinical trials are required to determine whether this testing can meaningfully improve patient outcomes. Furthermore, establishing clear guidelines will be essential for its widespread and effective use in clinical practice.

Looking Forward: Renewed Commitment to Advocacy

As the conference drew to a close, Nikki and I sat together, reflecting on all we had learned and the connections we had made. We talked about the importance of continuing to advocate for patient-centered care and making sure that the next generation of patients and families have even stronger support systems. The Binaytara Northwest Women’s Cancer Conference was more than just an event—it was a catalyst for growth, collaboration, and hope.

I left Portland feeling energized and empowered, grateful for the opportunity to stand alongside Nikki and so many other passionate attendees. Together, we reaffirmed our commitment to making a difference, one conversation and one conference at a time.

Disclaimer

References made to my surgical group, surgeon and healthcare team are made because they are aligned with my values and met my criterion after I did research of their practices and success rates. Any other healthcare provider that displays the same skill, compassion education and outreach to patients will be given consideration and recognition on this website.  The information contained on this website is not a substitute for or should be construed as medical advice. Please consult a licensed physician for medical advice.