A Community of Strength Through the Coronavirus Outbreak

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I continue to keep up with the evolving changes as each day passes and numbers, plans, surgeries, and lives change due to the coronavirus outbreak. I think it’s fair to say we are called on to change in ways none of us are prepared for. Here is what happened in the past week and what I am grateful for, sad about, and what I have witnessed firsthand in the breast reconstruction community, a community of strength through the coronavirus outbreak. Breast Reconstruction Surgeries Cancelled During the Coronavirus I spent a great deal of time planning for my DIEP flap surgery in the fall of 2014. I traveled for my breast reconstruction. I had to arrange flights for myself and my husband. Asking friends and family to take off work or come to help was a tough one for me. Then there was the anticipation. Oh, the anticipation! All of that Continue Reading →

DiepCJourney Celebrating Five Years in Unprecedented Times

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Five years ago, on March 17, 2015, I published my first blog for DiepCJourney.com. I felt excited and anxious. Today, on March 17, 2020, those feelings, excitement and being anxious manifest themselves in a completely different way. We are at the tip of the iceberg in the United States as we grapple with how to deal with a global pandemic, the worldwide Coronavirus outbreak. This blog will be marked as a time capsule. I had no idea DiepCJourney would be celebrating five years in unprecedented times. I had an idea what I might write in this blog as 2020 rolled around knowing it was the fifth anniversary year. But now things have changed. I want to share my concerns and gratitude to all of the amazing readers over the past five years. My Concerns for Readers of DiepCJourney at this Unprecedented Time The blog continues to grow and evolve. What Continue Reading →

Breast Advocate App: An Interview with Founder Minas Chrysopoulo, MD

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We are fortunate to live in a time when apps on mobile devices become tools to help us with our treatment options for a number of health-related issues. The focus of my blog and mission of my nonprofit Foundation is to empower women and men with information to make an informed decision about options for breast reconstruction after mastectomy. I have the distinct pleasure to present the reader with a decision tool, the Breast Advocate App and an interview with Founder, Minas Chrysopoulo, MD, FACS. I began my work as a patient advocate in early 2015 shortly after having my successful DIEP flap breast reconstruction. At the time of my second diagnosis in April of 2014, I was given all my options for breast reconstruction by my breast surgeon. I am grateful to her. I was handed a packet of brochures from implant manufacturers, local support groups, photos and explanation Continue Reading →

Can Sensation be Restored to the Breast after Mastectomy?

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At a meeting of the American Society for Reconstructive Microsurgery (ASRM), I had the opportunity to interview Dr. James Craigie from the Center for Natural Breast Reconstruction in Charleston, S.C. for this important discussion on restoring sensation to the breast after mastectomy. This is done during breast reconstruction surgery. Women undergoing DIEP flap breast reconstruction frequently ask me, “Can sensation be restored to the breast after mastectomy?” The short answer is yes, it can. However, not all plastic surgeons perform this procedure. In fact, it is done by surgeons trained in a sub-specialty of plastic surgery called microsurgery. Microsurgery requires advanced skills involving the art and science of connecting nerves and blood vessels under high powered microscopes. It takes the trained eye of a microsurgeon to perform nerve reconstruction. What Type of Breast Reconstruction Can Restore Sensation? Dr. Craigie explains that “natural breast reconstruction” involves using the patients own tissue. Continue Reading →

Are All DIEP Flaps the Same?

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It is a fair question to ask don’t you think?  It is even a better question to discuss at your initial consult when you want to use your tummy tissue to reconstruct your breasts. If you have been affected by breast cancer and are facing a mastectomy, I think you should ask your plastic surgeon, “Are all DIEP flaps the same? The video embedded in the blog will give you talking points for a discussion with your plastic surgeon. I was fortunate to interview Drs. Pankaj Tiwari and Ergun Kocak of Midwest Breast in Ohio to help the reader understand the nuances and differences in tummy flap breast reconstruction. What are the Differences in Flap Procedures using the Tummy? These surgeons point out the scar on the outside looks similar to a tummy tuck scar. But what happens on the inside as Dr. Kocak says, “it’s entirely different”. Let’s take Continue Reading →

Breast Reconstruction Photo Sharing: Should We?

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This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

Microsurgery in Breast Reconstruction after Mastectomy

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I had the opportunity to attend the American Society of Reconstructive Microsurgeons meeting recently. As a patient advocate attending, I was particularly focused on microsurgery in breast reconstruction after mastectomy. It gave me the chance to have in depth conversations with plastic surgeons who dedicate intense hours of training to become microsurgeons.  The conference attendees included medical students interested in this specialty, plastic surgeons who are currently in fellowship training for microsurgery, and those seasoned veterans sharing the latest techniques and methods of surgical skills to achieve optimal outcomes for patients. The ASRM conference took place at a hotel with all of the sessions easily accessible. This conference felt comfortable, informal, and intimate to me. These microsurgeons reflected the feeling, this group is like a small tribe who understand the rigors of microsurgical training and how it can positively change the lives of patients. Why Should you Find a Microsurgeon Continue Reading →

How to Join the BC3 Twitter Talk in Five Easy Steps

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BC3C is the Breast Cancer Coordinated Care Interdisciplinary Conference being held in Washington, D.C. February 27-29, 2020. This conference includes a wide range of medical specialists who care for breast cancer patients. As an introduction to what the conference will be about, you can join us on January 24, from 1:00 PM – 2:00 PM ET to find out more. This blog will tell you how to join the BC3 Twitter Talk in five easy steps. Step One of Participating in the BC3 Twitter Talk You will need to have a Twitter account. It’s very easy to open one if you do not have one now. Open Twitter from your computer, phone or tablet. You will then need to type in your phone number or email address in the first text box. After that, set up the password you want to use. Participating in Twitter Talk is a bit easier Continue Reading →

Why I Can’t Wait for the New Decade in Breast Reconstruction

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We have sent best wishes for the New Year to our social media friends. This year ushered in a new decade. Many of us wonder how things will change in the next ten years. This blog may be my time capsule for the upcoming decade. I would like to check back in 2030 to see what items in this blog will change and improve and why I can’t wait for the new decade in Breast Reconstruction. A New Decade of Shared Decision Making in Breast Reconstruction The topic of shared decision-making is at the top of my list. The practice of shared decision-making with the plastic surgeon who performed my DIEP flap is what made my breast reconstruction so successful. I see progress! Dr. Chrysopoulo developed a decision making tool, the Breast Advocate app, this past decade to give patients a voice in their decision making with their health care Continue Reading →

Breast Cancer: When All is not Merry and Bright

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I do believe remaining positive is an integral part of breast cancer survivor-ship and healing. I hear others say it frequently. However, there are times when all that encompasses this disease as a patient advocate sucks you under. Perhaps it is the short days as the Winter Solstice arrives. The long winter nights glow with holiday lights. At the same time, the events of this month have made me realize with breast cancer, not all is merry and bright. Metastatic Breast Cancer I have spoken with too many friends this month who are stage four metastatic. Some attended the San Antonio Breast Cancer Symposium despite their exhaustion from treatments. They went to make a difference as patient advocates. Even though I didn’t attend this year, it is a grueling conference when you are feeling good. I can only imagine they must have collapsed into their hotel beds at the end Continue Reading →