Tag: breast cancer

Episode 24: Sexual Health Program for Cancer Patients

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Sharon Bober, PhD, Psychologist, Dana-Farber Cancer Institute, and Assistant Professor in the department of Psychiatry at Harvard Medical School, chats with us on this episode of the DiepCJourney podcast. I met Sharon through the Scientific Network on Female Sexual Health and Cancer where she is the current chair of this organization. Our topic in this blog summary of the podcast; sexual health program for cancer patients. Why Sexual Health is not Often Talked About I feel the intimate and sometimes uncomfortable nature of the topic, sexual health, is one of the major reasons it is not often talked about at consult for cancer patients. Dr. Bober points out very few medical professionals have formal training in sexual health. Further, she points out managing sexual disfunction remains outside the bounds of normal conversation. A noticeably clear statement she makes is, “We live in a culture that is suffused with images of Continue Reading →

Staying Connected in 2022

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We have rolled over another year of the calendar. Living through two years of a global pandemic has not been easy for any of us. There are traits we have learned about ourselves we did not know we were capable of, like patience and persistence. None of us anywhere on Earth were prepared to deal with all the rapid changes we continue to make because of the pandemic. And yet we have somehow stayed connected. I feel so strongly and see such immense value in staying connected in 2022. Staying Connected Through social media Whether you have one social media account or many, whether you have actually met your social media friends in person or not, Twitter, Facebook, Instagram, LinkedIn, and others, these platforms connect us in valuable ways. I think there are two important questions to ask yourself when using social media. The answer to question number one should Continue Reading →

Is Compassion an Action?

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I promised a dear friend I would write a blog on this topic after a conversation we had online one morning while sipping coffee. We spoke about the numerous ways folks have been off put by the circumstances we have all encountered over the past two years during the global pandemic. It seems fitting to write the blog during the holiday season and ask ourselves the question, is compassion an action? Compassion and the Origin of the Word We think of the word compassionate as being a verb. But the full meaning of the word “compassion” from Meriam’s dictionary states the definition of compassion as a “sympathetic consciousness of others’ distress together with a desire to alleviate it. I can see defined compassion as an action. Have you Ever been Called to Show Compassion Lately? A recent example I encountered myself happened this past week when I stood in line Continue Reading →

My DIEP Flap Breast Reconstruction Seven Years Later

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This morning I began my usual morning routine. I am an early riser. I open my laptop, check my phone for messages, begin sorting out emails to respond to, and begin my workday. But this morning marks a day on my calendar I never forget, or more appropriately, always remember. December 1, 2014, I was sitting on a gurney being marked up for my DIEP flap breast reconstruction. Writing about my DIEP flap breast reconstruction seven years later? How is that possible? Where did the time go? The Days and Months Leading up to my DIEP Flap My coffee is fresh and warm. Thoughts flood through my mind as I recall the events of the morning I showed up at the hospital. Yes, I showed up. But boy did that take a lot of decision making, planning, and a strong dose of physical and emotional fortitude in the days leading Continue Reading →

How to Prepare for and Have a Shared Decision-Making Conversation

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Terri Coutee and Minas Chrysopoulo, MD FACS Shared decision-making occurs when your doctor (or any healthcare professional) collaborates with you to make the best healthcare decision. The optimal decision takes into account evidence-based information about the available treatment options, the clinicians’ knowledge and experience, and any factors you value in your decision-making. The patient brings their preferences, goals, lifestyle, support structure, …whatever they feel is important to them in making a decision. The physician brings evidence-based information and their expertise. Together, they find the “sweet spot” in the middle. Our aim is to offer recommendations for patient and healthcare professionals to prepare for and have a shared decision-making conversation. Most patients prefer this collaborative approach over deferring treatment decisions completely to their doctor. Unfortunately, in many cases patients may be reticent to initiate this type of conversation or simply don’t appreciate that they can. In reality, if the clinician doesn’t Continue Reading →

A Home for the Breast Cancer Quilt

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I first encountered DiepC Journey ~ Breast Reconstruction after Mastectomy Facebook group when researching my options for prophylactic measures due to carrying a BRCA1 gene mutation. I instantly connected with the vibe of the group. What a wealth of information! If you know the founder of DiepC Foundation and the accompanying Facebook group, Terri Coutee, you will know just how welcoming, no-nonsense, and warm she is in all her advice and education pieces. She works to give each member a personalized experience when interacting with her foundation and page and she has helped countless woman and men dealing with breast cancer or breast cancer risk. Terri and I clicked, we’re both in the Pacific Northwest, shared a mutual friend, and both chose the same reconstruction—DIEP flap (using tissue from the belly.) We even made a video together. My Breast Cancer Journey to a Twist But! Here’s where the twist comes Continue Reading →

Twenty Years: My Memories of 9/11 and What I Didn’t Know

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When dates in your life approach on the calendar emotions arise. The events of 9/11 still have great impact on the world. While speaking to friends this week, on the twentieth anniversary of 9/11, we recall exactly where we were and what we were doing the morning we heard the news. Twenty years, my memories of 9/11, and what I didn’t know are told in this blog. Where Were You When You Heard the News on 9/11? September of 2001 brought exciting new beginnings for us. We were new residents to Texas having moved from Seattle to a town north of Houston in the summer of that year. It was a beautiful, warm, fall morning in Texas. Our youngest son was a few blocks away safely tucked in his classes at middle school. My husband was an hour’s drive away in Houston, a large city where the oil and gas Continue Reading →

Episode 18: Breast Cancer, the Patient Voice in Social Media

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Sharing your story as a breast cancer survivor on social media requires authenticity, creativity, vulnerability with keen knowledge of navigating the responsibility of telling stories that benefit the reader. I have learned a lot from my guest on episode 18, breast cancer, and the patient voice in social media with Marie Ennis O’Connor. She guides many breast cancer writers as a social media consultant, keynote speaker, and digital storyteller. Her creative work can be found at Journeying Beyond Breast Cancer. Marie’s work spans the globe, and her impact creating a cross continental family of writers is immeasurable. I am excited to share the summary of the DiepCJourney podcast for her presentation, The Weekly Roundup, on Twitter. How Marie Began to Use her Patient Voice Marie was diagnosed with breast cancer in her early thirties. The two myths she faced and shares with us are: She only knew breast cancer to Continue Reading →

Episode 15: Lymphedema Treatment and Surgery

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Lymphedema. It is not a disease. It is a condition breast cancer patients can experience. Skill, knowledge, expertise, experience, and compassionate care all matter when you are seeking any treatment for lymphedema. Our guest, Dr. Ramon Garza III, is well-qualified to discuss the topic of lymphedema treatment and surgery and possesses all of those characteristics. This is Episode 15 of the DiepCJourney podcast. Dr. Garza is a board certified plastic surgeon in San Antonio who practices at PRMA (Plastic Reconstructive Microsurgical Associates) and performs both surgical and non-surgical treatment for those affected by lymphedema. We discuss the value of finding a certified lymphedema therapist. You can search the LANA website for one in your area.  Understanding the Lymphatic System When Considering Treatment and Surgery The function of the lymphatic system is to move excess fluid out of our bodies. It works in unison with the immune system. It is the mismanagement of fluid that causes lymphedema. Continue Reading →

Episode 11: Decorative and Restorative Tattoos for Breast Cancer Patients

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Eric Eye is our guest on Episode 11 discussing decorative and restorative tattoos for breast cancer patients on the DiepCJourney podcast. He is a trained visual artist who performs 3D nipple and areola tattoos for patients who have had mastectomy and breast reconstruction after breast cancer. His work can be found on his Instagram account as well as his Facebook page. He is located in Seattle, Washington but Eric has traveled to other locations to provide services for breast cancer patients. Bringing Art to Life in Decorative and Restorative Tattoos The story of how he transitioned from years of experience in tattooing to providing restorative tattoos for breast cancer patients is a touching one. What are restorative tattoos? Eric’s work includes beautiful and artistic drawings covering a mastectomy or breast reconstruction scar. This can be across the breast area or an abdominal scar from DIEP flap surgery. They are most Continue Reading →