Tag: breast cancer

Ways of Giving Back

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There are many ways to give back to nonprofit organizations. Whether you are a patient, caregiver, surgeon, individual or corporate entity, or know someone who has been affected by breast cancer, at DiepCFoundation we want to share ways of giving back to the community we serve. Donate Your Time or Share a Testimonial There is nothing more rewarding than standing beside a volunteer at an event we are part of. These are patients who have been through this surgery and know first hand what to say to those who attend these events. We are grateful and will continue to reach out to our volunteers at these events. Writing a Testimonial and sharing it on our social media accounts is so appreciated. You can write it anonymously or we are happy to use your name and tag you on social media. Patients write testimonials telling us that viewing our DiepC Foundation Continue Reading →

Acknowledging Those Who Give Their Time for Breast Reconstruction Patients

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We come to a season of reflection, giving, and gratitude. I want to take a moment to honor all those who give selflessly of their time helping me in my pursuit of educating and supporting those who are affected by breast cancer. Acknowledging those who give their time for breast reconstruction patients is important to me. Those World is Full of Giving People Talk on the street says we have been through a lot the past couple of years. ‘Tis true. I don’t think it is necessary to rehash the events or effect from all that has occurred and shaped our world since early 2020. News headlines inundate us changing our mood, focus, and daily living. And yet, through all of this I continue to witness a world full of giving people. In my corner of the world helping breast reconstruction patients, those giving people seem to come from every Continue Reading →

Opportunities in Patient Advocacy

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I feel so lucky to meet patient advocates who are passionate about their work in various breast cancer communities. Whether we have met in person at a conference, in training, or online I feel the positive impact of their work daily in my work as a patient advocate. I sat down with two of those advocates in this DiepCFoundation educational channel interview to discuss opportunities in patient advocacy. Alamo Breast Cancer Foundation I met Denise Barlow and Sandra Stewart Stanford in December of 2016 at the San Antonio Breast Cancer Symposium after opening DiepCFoundation earlier that year. They both welcomed me with opened arms and guided me through the full week of sessions inviting me to join the patient advocate meetings each evening. It was through them I learned about patient advocacy training at Project LEAD. The Alamo Breast Cancer Foundation was started by Dale Eastman in late 1992-93-time frame. Continue Reading →

The Power of Education, Connections, and Giving

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I moved back to Seattle in late 2018 to be near family. The following year, in October of 2019 I met with a team at Microsoft for the first time to present my story as a patient advocate, nonprofit leader, and two-time breast cancer survivor. Each October since then, I speak to teams at Microsoft providing information and education on the topic of breast reconstruction during their Microsoft Give Day. Each year I do these presentations I am inspired by the power of education, connections, and giving. How is the Power of Education Spreading? I often discuss this with my life-long friend, Thomas, who so generously sets these meetings up for me each year along with his Microsoft colleagues. We know, according to statistic from The National Breast Cancer Foundation, that one in eight women in the United States alone will develop breast cancer in her lifetime. The United States! Continue Reading →

Breast Reconstruction Transitions and Changes

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This week marks the beginning of the autumn equinox when the sun shines directly on the equator and the northern and southern hemisphere get the same amount of sun rays. I live in the Northern hemisphere. The days grow shorter and the nights longer because the Earth begins to tilt away from the sun. Seasons bring changes. There are comparisons to draw with the arrival of fall and with breast reconstruction transitions and changes. Breast Reconstruction Changes in our Bodies Many anticipate the changes fall brings. I look forward to the chill in the air and the warm clothing in my closet waiting to be worn and layered to keep me warm. Just as the leaves change color from green to brilliant hues of orange, golds, and browns, so too our bodies change during breast reconstruction. Leaves transition and let go of the tree, falling gracefully on the ground during Continue Reading →

Episode 9: Shared Decision-Making

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When it comes to making decisions in your healthcare, my guest, Dr. Minas Chrysopoulo and I present the first in a series on the topic of shared decision-making in the summary of Episode 9: Shared Decision-Making on the DiepCJourney podcast. Toliman Health was founded by Dr. Minas Chrysopoulo, an internationally recognized expert in breast cancer reconstruction and shared decision-making. Dr. Chrysopoulo is the creator of Toliman’s flagship app, Breast Advocate® As co-leads of the WHIS Shared Decision-Making Expert Group our goal is to facilitate the adoption and practice of shared decision-making (SDM) throughout healthcare systems and across all medical disciplines. The “why” of the informative approach to decisions in healthcare is multi-faceted. It encompasses the patient’s preferences, values, support system, and expectations for outcomes. Back to Our Favorite Topic: Shared Decision-Making It is important in so many ways. Shared decision-making is not actually a new concept. It has been around since the 1980’s. Being one of Continue Reading →

Oncoplastic Surgery after a Breast Cancer Diagnosis

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Dr. Lashan Peiris, an oncoplastic and reconstructive breast and general surgeon in Edmonton, Alberta, Canada, discusses oncoplastic surgery after a breast cancer diagnosis. He defines the term oncoplastic breast surgery, describes the type of conversation he has with his patients, and who might be a candidate for this type of surgery after a breast cancer diagnosis. Shared Decision-Making in Oncoplastic Surgery When a person is diagnosed with breast cancer the healthcare team should work together to coordinate patient care to determine the best long-term survival and quality of life choices in treatment and surgery. Dr. Peiris makes a profound statement, “Gone are the days where we as breast surgeons walk into a room, tell a lady she’s got breast cancer, and walk out five minutes later.” Dr. Peiris continues his discussion by describing the shared decision-making process in breast cancer and breast surgery care. All aspects of the patient’s life Continue Reading →

Episode 2: Sexual Health Needs After Cancer

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Dr. Don Dizon is our guest on season 2, Episode 2: Sexual Health Needs After Cancer, of the DiepCJourney podcast. What are we discussing? Sexual health needs after cancer, a topic patients often have to bring up themselves to discuss with health care providers. Dr. Dizon tells us why this is the case and empowers patients with information to talk about this with specialists in cancer care regarding sexual health needs after cancer.  Don S. Dizon, MD, FACP, FASCO is Director of the Pelvic Malignancies Program and Founder of the Oncology Sexual Health First Responders Program, Lifespan Cancer Institute. He is the director of medical oncology at Rhode Island Hospital. Be sure to check out the DiepCFoundation YouTube video on the same topic with Dr. Dizon. What is the Definition of Sexual Health Needs After Cancer? I begin by recognizing the topic of sexual health is not often spoken about in clinic. Continue Reading →

The Intersection of Research and Decision for Breast Reconstruction

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One day your life is humming along as usual. Work, children, family, friends, school, house cleaning, errands, vacation, cooking, on and on. Then out of nowhere you hear the news that feels like a gut punch. “You have breast cancer.” Perhaps you get genetic test results back and you find out you have a genetic mutation putting you at high risk of getting breast cancer. You are thrust into a new role finding out all you can about your diagnosis. Will I be facing a mastectomy or choose a mastectomy for my treatment? When will the intersection of research and decision for breast reconstruction occur? The Research Process Why am I writing about this? I agonized over this part of my breast cancer diagnosis when I was told my best choice for my long-term survival was a double mastectomy. It was my second diagnosis and now in both breasts vs. Continue Reading →

Episode 5: A Young Breast Cancer Survivor Advocating for Survivorship

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Hil Moss is our guest on Season 2, Episode 5 of the DiepCJourney Podcast. A young breast cancer survivor (diagnosed at 28), Hil is an active patient advocate, mentor, and writer in the cancer community, and dedicates her time to raising awareness around the importance of early detection and longitudinal survivorship care. She is also an MBA/MPH Candidate at Yale University, with a focus on entrepreneurship and innovation in cancer care. She made the choice to leverage her own tissue to reconstruct her breasts having DIEP flap breast reconstruction. Hill shares her story from diagnosis, breast reconstruction, and through to her recovery. She shares her connection to the Breasties community and the advocacy work they share. Our call to action in Episode 5 with Hil, a young breast cancer survivor, is to begin doing breast self-exams at an early age. A breast self-exam for breast awareness helps you understand changes Continue Reading →