Father’s Day: The Empty Rocking Chair

My family and I sat on a shaded screened porch for many family occasions, both small and large. A sign, hand painted by Dad, hangs on the patio and reads, “Sit Long, Talk Much, Laugh Often”. On the porch are several comfortable outdoor wicker chairs. One chair, the wicker rocking chair, is where Dad always sat. He held his great grandchildren while he sat in the rocker. Sipping coffee and talking about the morning news was another favorite activity in his chair for Dad when I would go home for visits. In the evening, he sat with his Jack Daniels sipping it slowly imparting the wisdom of a man who lived just a few days short of 89 years. This year on Father’s Day, there is an empty rocking chair. I feel a sense of loneliness. My Dad died of cancer last year. The last time I sat on the Continue Reading →

Healing After Breast Reconstruction is a Journey

Women and men can choose three different types of breast reconstruction. There is implant-based reconstruction. Another type is when a patient can choose to use a variety of skin flaps to rebuild their breasts. This is called autologous, using your own tissue, breast reconstruction. A combination of both autologous and implant-based reconstruction is sometimes chosen and performed after a mastectomy. Any of these type of breast reconstruction options requires time to heal, both emotionally and physically. Healing after breast reconstruction is a Journey. The Unknowns You don’t know what you don’t know. A patient can sit in an initial consult with their plastic surgeon with all their questions in hand. The hope is the consult is done in a shared decision-making fashion where both parties, the patient and plastic surgeon, listen carefully and with intent to each point of discussion then come to the best decision for the patient’s health Continue Reading →

Patient Advocacy at ASBrS

It was an honor to attend the American Society of Breast Surgeons meeting as a patient advocate. I felt welcome from the moment I arrived. The first breast surgeon I met was a past president of ASBrS, Dr. Deanna Attai. I have been interacting with Dr. Attai on Social Media through #bcsm tweet chats but never had the opportunity to meet her in person. We sat in the lobby of the hotel to share a cup of coffee. The first question she asked me was, “Terri, why did you attend the meeting?” I smiled at her because it was the question I wanted to be asked as a patient advocate attending ASBrS. I folded my arms on the table, leaned in as I smiled at Dr. Attai, and answered her question with a question, “Guess who told me about all my options for breast reconstruction?” The smile on her face Continue Reading →

Undeniable Physical and Psychological Changes After Breast Reconstruction

Facing the possibility of mastectomy is frightening for most. You have breast cancer or a genetic mutation putting you at high risk for developing breast cancer. The body parts that are front and center on your body are about to be removed. You are sitting in front of a plastic surgeon as the surgical process is described to you. You know there will be undeniable physical and psychological changes after breast reconstruction. How in the world do you begin to even process all of this? How Will I Feel Physically After Mastectomy? My breasts gave me a sense of balance I didn’t realize until I began to stumble over my own feet after my double mastectomy. I thought I was just recovering from side affects of anesthesiology. Walking through my house I would randomly trip like a baby taking its first steps. I felt clumsy and awkward. My breast surgeon Continue Reading →

Breast Reconstruction Decorative and Restorative Tattoos

Two patient advocates, both breast cancer survivors, walk into a tattoo parlor in downtown Seattle. Sounds like an intriguing story, right? It was. I had the honor to have patient advocate Kirstin Litz join me for an intense day of patient advocacy work in the great city of Seattle. Our day began with a cup of coffee for the road, of course. We arrived in the densely populated district of Capitol Hill early morning to visit Eric Eye. We were there to interview him about his work doing breast reconstruction decorative and restorative tattoos. I have never had a tattoo but after visiting Eric we talked about the possibilities of a decorative tattoo in my future. He asked me what I was thinking about. I told him I have deep Irish heritage and I love to dance. Van Morrison is one of my favorite musical artists. I explained to Eric Continue Reading →

National Doctor’s Day

Celebrate National Doctor’s Day? I’m in. These folks deserve a day of honor. Why? Long days and sometimes into the night in hospital and clinic. Hours of paperwork after time spent with their patients. Calming the fears of their patients. After hours calls from concerned patients. Putting back together diseased, damaged body parts. Comforting family members concerned about loved ones. Continued study and refresher courses to maintain licenses, expand knowledge, and improve skills. The list is exhaustive. The profession is noble. The talent is admirable. A Personal Note of Gratitude to Doctors I want to share a personal note of gratitude. My professional life has always focused on education. I was accustomed to interaction was with students, parents, colleagues, and administrators. My professional life took on a different role after a second breast cancer diagnosis, double mastectomy, and successful DIEP flap breast reconstruction. I felt it was important to educate Continue Reading →

DiepCJourney Celebrates a Four-Year Anniversary of Educating About Breast Reconstruction

Four years ago, on March 17, 2015, an idea was launched. DiepCJourney blog began as a cathartic writing exercise, detailing my Journey of being diagnosed with breast cancer twice and the choice to undergo DIEPflap breast reconstruction. DiepCJourney soon transformed into a passion, a mission to educate others about my successful experience and what I continue to learn on this amazing Journey. I am grateful to celebrate the four-year anniversary of DiepCJourney, the blog that launched a Foundation to educate others about all their options for breast reconstruction after mastectomy. The Celtic symbol and backdrop for DiepCJourney was developed with a dear friend, Meagan. Both of us embrace our rich Irish heritage. We met several times at quaint coffee houses in early January of 2015 discussing the design, meaning, and an appropriate launch date for the blog. The sketch she drew of me was something I had to consider for Continue Reading →

Laura’s Journey Through Breast Reconstruction

I am honored to share another one of our Personal Stories featuring Laura’s Journey through breast reconstruction. On September 25th, 2017 I had two biopsies on calcifications in my right breast.  I had a biopsy on that same breast 5 years ago and it was negative for cancer.  It was a very unpleasant experience and I was quite aggravated that there was nothing wrong and I had such a bad time recovering that the whole event went into my book as awful.  But my OB-GYN called me the next afternoon after this biopsy and said “Well we weren’t so lucky this time.  They found cancer in both samples.”  But wait!  I have zero risk!  I have no family history!  I nursed all my babies for a year after they were born!  I don’t smoke! This can’t be right!! On September 28th, Hollis and I met with a wonderful surgeon named Richard Continue Reading →

Sisters Not Twins: Nipple Prosthesis after Unilateral Mastectomy

For women who have a unilateral mastectomy after breast cancer, there are great benefits to maintaining at least one sensate breast and nipple. However, it usually is more challenging to achieve a good symmetrical restoration of breast and nipple. There are plastic surgeons who like to inform us that after reconstruction, our breasts will be “sisters not twins” to help us have realistic expectations. In seeking to restore symmetry and balance for these women, most custom nipple prosthetic companies make an impression of the natural nipple and then seek to match the color.  The cost range for this degree of customization is currently about $480 to $760. That was the approach my husband and I used with Naturally Impressive nipple prosthetics for about 5 years. We learned a lot through this process, but we also discovered some of its limitations. MATCHING A NATURAL NIPPLE IS A MOVING TARGET! From my Continue Reading →

Interested in Breast Reconstruction but don’t want Implants? You have Other Options!

I was given all my options for breast reconstruction the day my breast surgeon told me I would be facing a double mastectomy after my second breast cancer diagnosis. I was fortunate. However, I had to dig deep and spend hours of research to find the specifics of what type of reconstruction I felt was going to work best for me. At first, like many women, I thought implants were my only option. I ultimately decided I wanted to use my own tissue. But where could I find those alternative choices to implants for breast reconstruction? It took me time and asking a lot of questions. It was important to me to find medically backed information and evidence-based articles about alternatives to implants for breast reconstruction. I did not find all this information in one place nor did I have access to what many women have available today. What am Continue Reading →