Breast Cancer Patient Education Act of 2015

The Breast Cancer Patient Education Act of 2015:  Re-introduced May 5, 2015. As stated on the Congress.Gov website: Amends the Public Health Service Act to direct the Department of Health and Human Services to provide for the planning and implementation of an education campaign to inform breast cancer patients anticipating surgery about the availability and coverage of breast reconstruction, prostheses, and other options, with a focus on informing patients who are members of racial and ethnic minority groups. To the Members of the 114th Congress of the United States: Close to 12% of women will develop invasive breast cancer over the course of her lifetime. 2015 alone will bring an estimated 231,840 new cases of invasive breast cancer. According to statistics from Breast cancer.org 60,290 new cases of non-invasive breast cancer will be diagnosed. Surprisingly, and a little known fact, there will be approximately 2,350 new cases of invasive breast Continue Reading →

Trending on Twitter #Ilooklikeasurgeon

Trending on Twitter #Ilooklikeasurgeon Trends on Twitter and much of Social Media go at break neck speeds. Here today and gone tomorrow. There has been something trending on Twitter the past few days that inspired me to write this post. The trend followed the hash tag #Ilooklikeasurgeon and began with an article written about diversity and equality from a London surgeon, Dr. Ed Fitzgerald. A resident in surgery, Heather Logghe, MD, started the trend with pictures on Twitter.  And yes, it exploded on Social Media!  Dr. Kathy Hughes, a surgeon and one of my favorite bloggers,  even started a Facebook page to honor this community.  I was mesmerized and actually found two surgeons I follow on Twitter who posted these two pictures.                 I know Dr. Chrysopoulo personally and many of you who read my blog probably feel like you do, too, as Continue Reading →

Body Image After Mastectomy

Body Image After a Mastectomy Body image after mastectomy is difficult for many women. I went through this myself after a bilateral double mastectomy. It is my own definition but I define women who live with mastectomies, “hidden amputees”. No one sees you are missing body parts when you wear prosthesis. No one feels what you feel each time you see a reflection of yourself in the mirror or try to pick out something to make you look feminine or sexy when you want to step out for a social event. Nor does anyone truly understand the desire to just magically want the clock to turn back before you had to have your breasts removed due to cancer; no one except you. What was your personal choice? How did a mastectomy change your body image and how have you dealt with it? Did you decide to have reconstruction, wear prosthesis, Continue Reading →

Exercise After Breast Reconstruction Surgery

Going in DIEP! Exercise after breast reconstruction surgery is a tricky game. You must clear it with your plastic surgeon. Your incisions must be completely healed so that you do not compromise the healing process. One question I asked my PS, Dr. Minas Chrysopoulo of PRMA at my pre-op appointment before the final phase of my reconstruction was when I could get back to swimming. We have a pool in our backyard and I felt it would be good rehab as a post-surgical exercise. His answer, “When you are ready and when the wounds are all healed”. New Sensations and Healing I’ve been working up to this moment today. I emailed the nurse at my plastic surgeon’s office a couple of weeks ago and told her I was feeling some interesting and strange new sensations in my breasts. I couldn’t really put the feelings into words but I think she Continue Reading →

DIEPflap Breast Reconstruction: Aesthetic Questions to Ask Your Plastic Surgeon

DIEPflap Breast Reconstruction: Aesthetic Questions to Ask Your Plastic Surgeon DIEPflap breast reconstruction & aesthetic questions to ask your plastic surgeon involves more than  you may have given much thought to.  You have had a mastectomy due to breast cancer. You have tested positive for the BRCA gene and are facing the decision to have a prophylactic bilateral mastectomy to significantly decrease your chances of getting breast cancer. Perhaps you are even going in for a consult to repair damage done at another practice and are looking for better results.  Now you’re researching and thinking about breast reconstruction options. You found a board certified plastic surgeon with great skill and a high rate of success. The consult appointment has been set up. You write down as many questions as you can and hope beyond hope you will be given the time to have all of them answered.  Your main concern Continue Reading →

Bilateral Prophylactic Mastectomy

  Bilateral Prophylactic Mastectomy ~ Is it Right for You? When I read an article about BPM posted on Facebook by my reconstruction surgeon I knew immediately what the letters stood for and so do those in the BRCA and cancer community. Out of pure curiosity I searched on the internet the “meaning of BPM” without adding “medical” to the search. You get some interesting as well as hilarious results: British Prime Minister, Beam Position Monitor, Business Performance Management, Blood Pressure Monitor, Beats per Minute and my favorite, Butt Pumping Music! The Angelina Effect Bilateral prophylactic mastectomy became a popular news topic after Angelina Jolie shared that she reduced her risk by nearly 90% of ever getting breast cancer because of choosing a BPM. She tested positive for the BRCA1 gene mutation and her mother died of ovarian cancer. I wrote a previous blog on this and completely understand why Continue Reading →

The Perfect Breast Shape and Plastic Surgery

How I got to the “Breast” Shape Ever Twitter is such a valuable tool for me. A year ago my Twitter account was full of nothing but educational websites. I returned to school to attain my M.Ed. and I used it for the sole purpose of gathering information about the latest “speak” in education. I did not tweet, like, retweet, or DM (direct message). I only lurked and learned. The lurking and learning changed in October of 2014. School ended for me to focus on my health.  My Twitter account went from education to all things breast cancer and breast reconstruction. I entered the world of plastic surgery as a breast reconstruction patient after undergoing a double mastectomy following a second breast cancer diagnosis. It was a world I was unfamiliar with and had much to learn about both on an academic and emotional level. I was now following, being Continue Reading →

A Letter to Secretary Sylvia Burwell

Dear Secretary Burwell, I enjoyed reading your bio on the HHS.gov website because I found we have a few things in common and I value human connections. We are both passionate about ensuring that individuals lead healthy and productive lives. Your outreach is far greater than mine and I am grateful for your passion and mission. My outreach, smaller though no less important, is to breast cancer patients who have been faced with a mastectomy. We are both former Seattle residents. As former President of the Global Development Program for the Bill & Melinda Gates Foundation you focused your efforts again on health.  I was an educator in Seattle at Sacred Heart School in Bellevue and had a brief opportunity to meet Melinda Gates when she visited our school and came into my classroom.  I was struck by her unpretentious manner and was humbled to speak to her and meet Continue Reading →

The Days Before Breast Reconstruction Surgery

The days before Phase 1 of DIEP flap or any breast reconstruction surgery puts many women I’ve spoken with through mental gymnastics , present company included. You have arranged for child-care if you have children at home. If you are traveling for your reconstruction surgery and your children will be traveling with you, chances are you’ve scoped out child-friendly venues in the area. This will help their care-taker keep them occupied while you recover in hospital. You have packed your bags. You probably thoroughly cleaned your home knowing it will not be done, at least by you, for a bit. All of the incidentals are what keeps you busy and occupied before you leave. These are all good things. Mental Clearance Sale ~ Everything Must Go! Whether traveling out of town for your surgery or having it done in the same town you live in I suggest getting those “ducks Continue Reading →

How Has Breast Cancer Changed You?

Cancer: Connections & Catalyst Many articles and questions are posed:   “How has breast cancer changed you?” Here is one example  from the About Health website, just one from a myriad of articles published after doing a quick search on the topic. I think it’s fair to ask that question to anyone in any phase of life. How has the news of the day changed you? How has having children changed you? How has visiting a foreign country changed you? How has being married changed you? How has being divorced changed you? How has changing your hair color changed you? How has losing weight changed you? How has becoming a vegan changed you? Blah, blah, blah and on and on…… Individuals and Change Individuals are affected by events in life in either very positive ways or extremely negative ways.  So OK!! We’re all individuals and I get it.  My feeling Continue Reading →