Tag: Patient Advocacy

Navigating Healthcare as a Patient Advocate

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Patient advocacy shows up in so many meaningful ways, and my guest on this episode of the DiepCJourney® podcast has been part of my own journey since the very beginning. We first connected back in 2015, when I was just starting to write my blog. She offered guidance, encouragement, and wisdom at a time when I was still finding my footing. I’ve followed her story ever since, and her voice has continued to inspire me and so many others. She tells us the challenges of navigating healthcare as a patient advocate. As a valued member of the DiepCJourney® community, it felt only natural to invite her to share her experience with all of you. I’m delighted to share this interview summary of my chat with Rebecca Hogue, Becky to her friends. She shares her many life transitions from professional work, moving from the U.S. and back to Canada, two breast Continue Reading →

Microsurgical Conferences: Why and How

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I still remember attending my first medical conference after launching DiepCFoundation in the summer of 2016. Since then, I’ve participated in more meetings than I can count, each one reinforcing how essential thoughtful preparation is for meaningful patient advocacy, whether the focus is breast cancer or breast reconstruction. My first event of 2026 will be the annual meeting of the American Society for Reconstructive Microsurgery (ASRM), a gathering that always inspires reflection on why microsurgical conferences matter and how to make the most of them. In this blog, I’m sharing the strategies that have helped me prepare, stay grounded, and find success in these dynamic environments. Strategies Preparing for Microsurgical Conferences Registration for ASRM begins months before the actual conference. There is an early registration price and once that passes the cost increases. As a nonprofit, I remain mindful of our budget since I have to justify expenditure to my Continue Reading →

Kindness, Gratitude, Courage: My Compass for 2026

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As I step into 2026, I find myself returning again and again to three simple words. Those words are kindness, gratitude, and courage. They aren’t new concepts. They aren’t complicated. But they have become the compass points guiding how I want to show up in the world, how I want to lead, and how I want to serve the breast cancer community that has shaped my life in ways I never could have imagined. These three words have carried me through seasons of uncertainty, moments of profound connection, and the quiet, steady work of advocacy. They have grounded me when the world felt heavy and lifted me when I needed reminding that hope is not naïve. Hope is necessary. And as I look toward the year ahead, they feel more necessary than ever. Kindness: The Quiet Energy that is Transformative and Contagious Kindness is often underestimated because it’s gentle. It Continue Reading →

Empowering Voices: My Experience as a Patient Advocate at the Binaytara Northwest Women’s Cancer Conference

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On September 27, 2025, I had the privilege of attending the Binaytara Northwest Women’s Cancer Conference in Portland as a patient advocate, accompanied by my dear friend and fellow advocate, Nikki McCoy. This experience was not just an opportunity to connect with medical professionals; it was a chance to amplify the lived experiences of patients navigating the complexities of cancer diagnoses, treatment, and survivorship. As I reflect on our day at the conference, I am filled with gratitude and a renewed sense of purpose in my advocacy journey. The Power of Presence: Representing Patients Walking into the conference venue that morning, I was acutely aware of the significance of my role. Patient advocates hold a unique position: we are the bridge between patients and providers, amplifying voices that might otherwise go unheard. Nikki and I were determined to represent not just ourselves, but the countless people and families affected by Continue Reading →

A Young Nurse and Her DIEP Flap Story

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This episode of the DiepCJourney podcast shares a fascinating story of a young woman who graciously and professionally takes us through her Journey from being diagnosed with breast cancer, cold capping, the effect on her family and young daughters, and to the story of her DIEP flap breast reconstruction. You can sit and watch our conversation on the DiepCFoundation YouTube channel. Lacey is a dear friend, and I am honored to share the story of a young nurse and her DIEP flap story. Meet My Guest Lacey I am speaking with Lacey Terpstra-Reid. She is a registered nurse residing in Guthrie, Oklahoma. In November 2022 she was diagnosed with triple positive breast cancer at age 33. Lacey has over 10 years of bedside experience as a nurse from working in a cardiac ICU where she cared for countless ECMO patients to her current role as an outpatient surgery recovery RN. Continue Reading →

The Gift of Patient Advocacy Wisdom

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This episode of the DiepCJourney Podcast recorded in December of 2024 is a discussion across continents with two women leaders I admire who engage in patient advocacy and the patient story. I invite you to listen to the podcast embedded in this blog. Together we produced the title, “The Gift of Patient Advocacy Wisdom.” What a gift for me to sit with these two amazing women, Marie Ennis O’Connor and Sue Robins. What Does Patient Advocacy Look Like? Patient advocacy at its very core is giving voice to patients, no matter what healthcare diagnosis or treatment they are facing. “Voice” can take the form of speaking engagements at conferences, writing blogs, consulting, nonprofit work, making policy changes, and much more. All forms of patient advocacy begin with a story. Patient advocacy is also demanding work. To be effective one must commit to this. It means long hours of navigating a Continue Reading →

The Voice for a Community in Breast Cancer

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Many people who have had or currently have breast cancer choose to be the voice for a community in breast cancer. This week, as I prepare for Plastic Surgery the Meeting I will be using the hashtag #PSTM24 on my social media platforms to share the latest in surgical techniques and the newest innovations from industry that results in better patient outcomes and care in breast reconstruction. Each Voice in the Breast Cancer Community is Unique My focus is on breast cancer and breast reconstruction surgery after mastectomy. Not all patient advocates and voices in breast cancer identify with the same platform. We have each positioned ourselves through time, training, and passion to share our personal stories while at the same time providing scientific and evidence-based information to the unique communities we serve. It is a robust community with folks that include community voices in: Since opening DiepCFoundation in 2016, Continue Reading →

Art Series by Beth Gainer

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The creative work of Beth Gainer is featured in this summary of the DiepCFoundation educational channel interview we did together. I invited Beth to put together a presentation for the interview to share slides featuring some of the art that she hopes to have in a public space or gallery someday. The title is so inspiring and fitting: Breast Cancer, Female and Young – Art Series by Beth Gainer. Meet Beth Gainer Beth is a breast cancer survivor, a mother, an English professor, writer, book author, and an artist. Her creative writing and artwork speak to so many of us and has been a healing mechanism in her own Journey. She was diagnosed with breast cancer in her thirties and something she found in a self-exam. A mammogram and doctors exams had missed it. What Beth noticed upon self-exam was a slight dimpling. When she brought it to the attention Continue Reading →

A Retirement Tribute to Deanna Attai: This Batch is for You!

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Deanna J. Attai, MD announced her retirement this week on what else other than social media? I suspect for many, like me, it feels like a bittersweet announcement. My message to her comes from my experience as a patient advocate and organic gardener. Deanna has lived to work most of her professional life. Now I know she can engage fully in working to live. This is a retirement tribute to Deanna Attai. Dr. Attai, this batch is for you! Dr. Attai, the Breast Surgeon My first recollection of Dr. Attai is through social media. The hashtag #BCSM (breast cancer social media) was created by her, Alicia Staley, and the late Jody Schoger. The first #BCSM tweet chat occurred on July 4, 2011. Over the past thirteen years, a great deal has changed in social media. However, the community created by one hashtag, #BCSM changed the engagement between breast cancer patients Continue Reading →

Should You be Telling Someone What Kind of Reconstruction to Have?

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There are a few layers to peel back when answering this question. It goes without saying I am referring to those affected by breast cancer and are facing a mastectomy. Whether you are a surgeon, patient, family member, or friend, should you be telling someone what kind of reconstruction to have? Understanding the Overwhelming Shock I see some differences but more similarities when I speak to women who are at high risk of getting breast cancer than those with an active diagnosis. Those who are at high risk of getting breast cancer are a those who have a genetic mutation. The first step is knowing your family history. This will be followed by a visit to a genetic counselor or oncologist to begin formulating a plan that might include: People who have just received the news they have a breast cancer diagnosis have considerations for planning their treatment that can Continue Reading →