Episode 17: Journey of the Caregiver

Caregivers are called upon in the most unexpected ways through disease, an accident, surgery, or treatment. This is the story and journey of a thousand miles, two breast cancer diagnoses, multiple surgeries, and the story of how my son, Brian, taught me more about this role and what it means to be a compassionate caregiver on Episode 17: Journey of the Caregiver, on the DiepCJourney podcast. No Instruction Book for a Caregiver When a friend or loved one faces a health event and you know they will need assistance, your call to duty to be a caregiver begins. There is no payment for this role and certainly no instruction book. Both the patient and the caregiver shift their daily routine and begin to think in terms of strategy to help the patient. Considerations can include any or all of the following: This can all become overwhelming and require a great Continue Reading →

How to Care for the Caregiver During Your Breast Reconstruction

How did you care for your own caregiver during your breast reconstruction? Sound a bit strange when everyone is supposed to be caring for you? Whether you choose to have autologous (using your own tissue) or implant-based breast reconstruction, you will need caregivers to help with the following at the very least. Taking you to hospital and staying in communication with the surgical team until you are back in your room to recover. Driving you home, fixing meals, driving, and performing general household responsibilities. Patients voice concerns about their own caregivers for their breast reconstruction surgery. I want to share some tips from my own DIEP flap breast reconstruction surgery. I will also share suggestions discussed on The Journey Facebook group. These gals have some helpful hints based on their own experience. Should a Caregiver Remain at the Hospital All Day for Your DIEP Flap? Spending long hours waiting in Continue Reading →

Breast Reconstruction Surgery Fears

Breast Reconstruction Surgery Fears Why do patients fear surgery for breast reconstruction?  It’s just another piece of the anxiety puzzle after a breast cancer diagnosis.  You’re faced with the dreaded news that a best or only option for your treatment plan is a mastectomy.  Lose my breasts?  Your head starts reeling and you think about what you will look like losing the body parts that most defines you as a woman.  There will be scars, pain, recovery, time away from a job and family, anesthesia, medical and insurance costs, and oh yes, what about getting all that cancer out of my body during surgery!  The list goes.  I decided to explore some of these fears in a poll.  I asked members of a Facebook page I manage in support of those going through breast reconstruction.  What they fear and what they go through in their diagnosis and decision to have Continue Reading →

The Days Before Breast Reconstruction Surgery

The days before Phase 1 of DIEP flap or any breast reconstruction surgery puts many women I’ve spoken with through mental gymnastics , present company included. You have arranged for child-care if you have children at home. If you are traveling for your reconstruction surgery and your children will be traveling with you, chances are you’ve scoped out child-friendly venues in the area. This will help their care-taker keep them occupied while you recover in hospital. You have packed your bags. You probably thoroughly cleaned your home knowing it will not be done, at least by you, for a bit. All of the incidentals are what keeps you busy and occupied before you leave. These are all good things. Mental Clearance Sale ~ Everything Must Go! Whether traveling out of town for your surgery or having it done in the same town you live in I suggest getting those “ducks Continue Reading →

Healing Scars

Healing Scars Healing scars after any surgery is a frequently discussed topic for those of us who have been through it.  The word scar derives from the Greek eskhara, scab. In the present day English language it can be both a noun and a verb. Noun – a mark left on the skin or within body tissue where a wound, burn, or sore has not healed completely and fibrous connective tissue has developed. Verb – a lasting effect of grief, fear, or other emotion left on a person’s character by a traumatic experience Scar – Noun The first definition, a noun, describes fibrous, connective tissue developing. When you think about it in those terms it implies building and getting stronger, fibrous/connective. I still have very young scars from the three surgeries that I have had this past year. The mastectomy scars were the first of those three surgeries. The scars Continue Reading →

Breast Reconstruction Phase 2 ~ Remembering Dates

Today I will be seeing my plastic surgeon for the pre-op appointment for phase 2 of my breast reconstruction. People remember and celebrate dates for various reasons. I don’t know how this happened but I have had a strange collision of dates today. Cancer patients tend to remember significant dates and anniversaries in their minds for various reasons. It might be the day of diagnosis. Perhaps it was the final day of treatment. Today for me, it’s a combination of a couple of significant events and a day to celebrate as well. Memories Evoked I will admit that the final day of radiation and all treatments, October 15, 2002, sans five years of Tamoxifen, from my first diagnosis was very significant to me. I was raised a Catholic and October 15 was the feast day of my patron saint, St. Teresa. That was significant to me that those two dates Continue Reading →

Ta Ta for Now ~ The Double Mastectomy

The days leading up to my mastectomy were a real mix of emotions. Our youngest son was still living with us at the time and finishing up a second degree. Our oldest son came down from Seattle to be here for Mother’s Day prior to my surgery “just because”. He arrived on May 6th, flew home only to return on the 19th to be here for my recovery after surgery. The 19th was his birthday. Who is lucky enough to have sons so great? Me!!   It was a fantastic week before the mastectomy sharing time with the family. Being surrounded by my husband and two sons and talking and decompressing from the events of the past month was cathartic and healing. Our oldest son came up with the saying, “Ta Ta for now referring to my double mastectomy. Let’s Do This I had to take our oldest son back to Continue Reading →