Author: Terri

I am a patient educator and advocate for choices in breast reconstruction after a mastectomy. Statistically, many women are not being informed of their choices due to many factors. Breast reconstruction is a personal choice. Providing information and education about those choices is a patient rite. It is the mission and focus of my work to provide that education and information.

Hidden Costs of Traveling: Breast Reconstruction Surgery

Posted on by

Hidden Costs of Traveling: Breast Reconstruction Surgery No one knows the hidden costs of traveling for breast reconstruction surgery more than the patient themselves.  I just returned from recent fat grafting as part of my own my own DIEP flap breast reconstruction. The costs are fresh in my mind and I feel it is an important topic to write about. The WHCRA (Women’s Health and Cancer Rights Act of 1998) is outlined in this article. A portion of the article states: This federal law requires most group insurance plans that cover mastectomies to also cover breast reconstruction. It was signed into law on October 21, 1998. The United States Departments of Labor and Health and Human Services oversee this law. The devil is in the details.  Look carefully at the wording, especially the word, “most”.  Insurance is becoming challenging for both patients and physicians.  Costs, restrictions, increased deductibles and co-pays Continue Reading →

Breast Reconstruction Consult: The Physical and Technical Component

Posted on by

Breast Reconstruction Consult: The Physical and Technical Component This blog discusses a breast reconstruction consult: the physical and technical component of a DIEP flap surgical visit with the plastic surgeon.  I wrote part a blog dealing with the emotional and psychological aspects of a consult and another one on the abdominal examination component of a consult. A plastic surgeon will work with his nurse at this initial consult to gather all the pertinent information needed to optimize the outcomes of DIEP flap surgery. Each of us goes to this appointment with unique circumstances in terms of both our physical structure and overall health.  I will walk you through my own personal case but know yours will be exclusive to the situation you bring to the initial consult for your breast reconstruction. The hope is to give you an idea of the steps done during this consult and what the purpose of each Continue Reading →

5 Things to Look for: Hospital, PRS: DIEP flap Surgery

Posted on by

5 Things to Look for: Hospital, PRS: DIEP flap Surgery Here is your list of 5 things to look for in a hospital and plastic reconstructive surgeon (PRS) before your DIEP flap surgery.   The list could fill a book; however, the purpose of this blog is to hit on five important topics that may well be priorities on the patients’ list of items to inquire about before surgery. No. 1 ~ Hospital Accreditation This might not be a question that you would even think to ask.  But, the reputation and accreditation of the hospital facility that your plastic surgeon practices at should be of great importance to you for your reconstructive surgery.  Odds are, you have been extremely wrapped up in the details of your breast reconstruction surgery and the outcome itself, but knowing the official endorsement of the facility is just as important.  When hospitals are accredited through national Continue Reading →

Breast Reconstruction Consult DIEP flap Surgery: The Power of Two

Posted on by

Breast Reconstruction Consult DIEP flap Surgery: The Power of Two You may bring someone with you to your breast reconstruction consult for your DIEP flap surgery but it is the power of two, you and your plastic surgeon, who are the two key players at this all important appointment.  This topic is worthy of a two part blog.  Part 1 will touch on the potential emotional and psychological aspects of the visit and part 2 will discuss the actually physical and technical part of the visit.  I have learned a lot reflecting on the experience of my first visit with my plastic surgeon.  I have gained yet a different perspective from speaking with other women about their experience and what this involved for them. What I do know is this; the appointment needs to be a home run for both you and your plastic surgeon.  You need and want to Continue Reading →

Ray of Sunshine after Breast Cancer Diagnosis

Posted on by

It just doesn’t seem a ray of sunshine might even play into the discussion the day I was told I had breast cancer does it?  There actually was a ray of sunshine after a breast cancer diagnosis. This is my story. The Breast Cancer Diagnosis The day of my second breast cancer diagnosis I was sitting in the office of my breast surgeon, Dr. Michele Ley, I saw Dr. Ley about five years previous to my second diagnosis to remove a benign area in my left breast.  I chose to go to her because I was very impressed with her demeanor, compassion, confidence and skill for the minor surgery she performed then.   It was a “steel in my back” kind of day when I was scheduled to go in to see her.  I was alone.  My husband was out of the country on business.  I had been down this road Continue Reading →

National Cancer Survivors Day: Where Do I Begin?

Posted on by

National Cancer Survivors Day: Where Do I Begin? Today is National Cancer Survivors Day and it is difficult to know where to begin to condense my thoughts about this day as a two time survivor of breast cancer.  There is a very dark side for many survivors.  I’ve had those days; diagnosis, telling your loved ones, surgeries, chemo, radiation, medication, side effects.  But oh those glorious bright days!  Let’s take a look at both. The Dark Side of Cancer Survivor-ship: The Ugly Vortex I have always equated cancer to an ugly vortex.  When you first hear the words that you have cancer that vortex begins its whirling mass of sucking many people into it. Being a cancer survivor does not affect just the individual with the diagnosis. Your spouse, partner, children, family and friends become survivors of sorts as well.  They weren’t asked to take on the role of caregiver Continue Reading →

Managing Surgical Drains with Drain IQ

Posted on by

Managing Surgical Drains with Drain IQ Managing surgical drains post mastectomy and post breast reconstruction is one of the biggest grievances I hear when I speak to women about their surgery after breast cancer.  I was in that club after my own DIEP flap breast reconstruction.  I used the paper recording sheet provided by the hospital to track drain output.  Keeping track of that piece of paper and diligently recording drain output each and every time I stripped those drains was a necessary evil and part of the process for the duration they were stitched to my body. Let’s talk about managing surgical drains with Drain IQ. Managing Output Using your Phone? But, how many of us today have our phones with us almost as an appendage?  I am surprised to hear from ladies while still in hospital after their surgery, texting and posting on social media that they are Continue Reading →

What to Communicate with the Radiologist when Imaging the DIEP Flap Reconstructed Breast

Posted on by

What to Communicate with the Radiologist when Imaging the DIEP Flap Reconstructed Breast   A Guest blog from Danielle Carroll, MD To image or not to image the reconstructed breast- that is the question…Well, actually the first question.  I am not going to tackle that topic here, but Dr. Chrysopoulo discusses this in his article “Mammograms and MRI after Reconstruction- Are They Needed?” .  However, if you decide to proceed with imaging follow-up, what is important for you to know about imaging the reconstructed breast, and how can you best convey your reconstruction status to the reading radiologist?   The reconstructed breast will undergo many changes over the first several years post reconstruction, some of which will be visible externally, some may only be seen by imaging.  The two most important pieces of information to convey to the scheduler and/or technologist are 1.  Your history of mastectomy with soft tissue Continue Reading →

A Mother and her Sons

Posted on by

A Mother and her Sons I was encouraged to write a blog about a Mother and her Sons by a friend of mine who began reading my blog about a year ago.  I have avoided it until now.  Not because I didn’t want to write it but I knew the complete emotional fortitude it would take for me to pen my feelings about my two sons.  Mother’s Day will be celebrated soon.  I love Mother’s Day because of my sons. Writing this blog seems appropriate each and every day I am a mother to these two amazing and imperfectly perfect men. This is not Fair for My  Two Sons! What they have been asked to do as sons is beyond what anyone would want their children to go through.  These two stepped up to the plate and knocked it out of the ball park when it came to taking care Continue Reading →

Road Map to Success for DIEP Flap Surgery: Fluorescence Imaging

Posted on by

Road Map to Success for DIEP Flap Surgery: Fluorescence Imaging A Patient’s Story Would you take a road trip before consulting a map, planning out your best route with the least amount of obstacles to drive around or through? Think of the SPY Elite Fluorescence Imaging System in this way for breast reconstruction surgery.  DIEP flap breast reconstruction surgery is a specialized and intricate process that women have the option of choosing to rebuild their breasts after a mastectomy.  It is what I chose after a second breast cancer diagnosis. Patients are savvy, engaged, customers these days with the internet and social media to guide them in learning about the surgical procedures that they are facing.  DIEP flap surgery is intricate, long and must be done by a well-qualified microsurgeon. Choosing this profession is a passion for a majority of physicians because they are transforming lives after breast cancer.  It Continue Reading →