Category: Breast Reconstruction

Breast Reconstruction Photo Sharing: Should We?

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This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

How to Join the BC3 Twitter Talk in Five Easy Steps

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BC3C is the Breast Cancer Coordinated Care Interdisciplinary Conference being held in Washington, D.C. February 27-29, 2020. This conference includes a wide range of medical specialists who care for breast cancer patients. As an introduction to what the conference will be about, you can join us on January 24, from 1:00 PM – 2:00 PM ET to find out more. This blog will tell you how to join the BC3 Twitter Talk in five easy steps. Step One of Participating in the BC3 Twitter Talk You will need to have a Twitter account. It’s very easy to open one if you do not have one now. Open Twitter from your computer, phone or tablet. You will then need to type in your phone number or email address in the first text box. After that, set up the password you want to use. Participating in Twitter Talk is a bit easier Continue Reading →

Why I Can’t Wait for the New Decade in Breast Reconstruction

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We have sent best wishes for the New Year to our social media friends. This year ushered in a new decade. Many of us wonder how things will change in the next ten years. This blog may be my time capsule for the upcoming decade. I would like to check back in 2030 to see what items in this blog will change and improve and why I can’t wait for the new decade in Breast Reconstruction. A New Decade of Shared Decision Making in Breast Reconstruction The topic of shared decision-making is at the top of my list. The practice of shared decision-making with the plastic surgeon who performed my DIEP flap is what made my breast reconstruction so successful. I see progress! Dr. Chrysopoulo developed a decision making tool, the Breast Advocate app, this past decade to give patients a voice in their decision making with their health care Continue Reading →

A Simple Note of Gratitude

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I was raised to have a grateful heart. I have come to appreciate this value my parents taught me. They modeled the importance of expressing gratitude frequently with friends, family, and even strangers. Mom and Dad always said gratitude should be given freely from the heart, expecting nothing in return. I dedicate this blog to an individual I have known for five years. I encourage the reader to take the time to acknowledge those in your life who have made a difference, large or small, either publicly or privately with a simple note of gratitude from your heart. Moments in life are sweet and precious, tenuous and unpredictable. We don’t always know the direction our lives will take. There are the planners and the gypsies. I have always considered myself a planner with a bit of gypsy spirit. A plan I put in place in 2014 was to complete my Continue Reading →

DiepC Journey Facebook Group Hit 4,000 Members!

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DiepC Journey Facebook Group Hit 4,000 Members! Facebook members on DiepC Journey, Breast Reconstruction after Mastectomy, can be very active in the evenings. This happens when members have some alone time after dinner, work, and putting the children to bed. I hopped on last night. I noticed a lot of activity and questions being asked. Then something incredible happened. I looked at the number of members as I approved some new requests to join. I was a bit shocked to find out the Journey hit 4,000 members. DiepC Journey Facebook Group and 4,000 Members Around the Globe I am in awe of this group because it is specific to breast reconstruction after mastectomy. That is our common bond. On World Kindness Day I asked members to check in to tell each other where they were from. This group continues to practice kindness toward each other in unexpected ways. They checked Continue Reading →

How to Participate in a GRYT Chat in 3 Easy Steps

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Social media and apps give us the ability to participate in key topics related to healthcare. The GRYT Platform is one such opportunity. This statement from the GRYT website explains the importance to patients across healthcare disciplines. “We believe information is an undeniable right, so we’ve created a way for you to connect to people with similar experience, providing inspiration, information, and access options, allowing YOU to choose what’s best for you.” Let’s outline how to participate in a GRYT chat in 3 easy steps. Step 1 of Participating in a GRYT Chat: Downloading the App Begin by downloading the app to your phone or desktop. It can be downloaded from either the iTunes App Store or the Google Play store. Here is a link you can use: https://grythealth.com/the-app Step 2 of Participating in a GRYT Chat: Setting up your Profile Once you have downloaded the app, set up your Continue Reading →

How Shared Decision-Making Works in Breast Reconstruction

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The term shared decision-making can be used across multiple disciplines in medicine. The process of shared decision-making takes place when a patient and their health care provider work together to make a health care plan that is best for the patient. It is a topic I speak of often in my community as a patient advocate for all options of breast reconstruction after mastectomy. Let’s talk about shared decision making and how it works in breast reconstruction. How Shared Decision-Making Works for the Patient Whether implants are chosen or you choose to use your own tissue, being your own best advocate and doing your homework prior to your initial consult is beneficial. Prepare your questions and findings ahead of time. Your physician will go to the consult prepared. Doesn’t it make sense then, that you are just as prepared? This first step will empower you with a voice to communicate Continue Reading →

A Network of Support Through your Breast Reconstruction Journey

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It is an honor to present a project I was asked to participate in. The focus of the project is patient centered stories in breast reconstruction. Emphasis is placed on the shared decision-making model for patients through their own personal breast reconstruction Journey. The program is available in a video presented on a Balancing Act segment of Lifetime Television and embedded in this blog for you to watch. It is truly a network of support through your breast reconstruction Journey. Rebecca’s Network of Support I was approached by Mentor to participate in the project. It did not take me long to know my voice was an important part of the network of support. The story focused on Rebecca, a young woman who tested positive for the BRCA 2 gene. She sought guidance from a genetic counselor after watching her mother go through breast cancer. She knew she was at higher Continue Reading →

Prosthetic Nipples After Non-Nipple Sparing Mastectomy: an Option for All

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A Guest Blog By Naturally Impressive, LLC Some women are able to successfully do nipple sparing mastectomy and some are not, for a variety of reasons. Many of us are surprised to find out how emotional it is to look in the mirror and see a missing nipple (or two!). It’s almost like our reflection is shouting back at us “You’ve had cancer” which can hinder our growth into a more positive self-image.   Most women are aware of the options of surgical nipple reconstruction or nipple-areola tattoos, but an option that is less known and often overlooked is nipple prosthetics as a short or long term option. For any of these scenarios, consider Naturally Impressive nipple prosthetics as an elegant way to “have nipples” that look very real and stay on securely for weeks. You want nipples, but aren’t sure which choice yet. You plan to have surgical nipple Continue Reading →

DiepCFoundation attends the GRYT Virtual Cancer Conference

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I have attended a number of conferences as a patient advocate since opening DiepCFoundation in 2016. Traveling takes time and financial resources. I am happy to share with you a virtual conference you can attend from the comfort of your home. Come with me as DiepCFoundation attends The GRYT Virtual Cancer Conference held Saturday, October 5th, 2019. How to Participate in the GRYT Virtual Cancer Conference The conference will be “open” from 8am-9pm Eastern Standard Time. During this time, you can listen to a variety of speakers and attend breakout sessions from a number of organizations across the cancer community. You can also visit the Exhibit Hall to interact one on one with the hosts of the virtual booths. They will be available during various times of the day to answer questions from participants. Ongoing Resources after the GRYT Virtual Cancer Conference There is an added advantage and ongoing resources Continue Reading →