Category: Breast Reconstruction

The Importance of Shared Decision Making: Breast Reconstruction

Posted on by

What is the importance of shared decision making in breast reconstruction? A recent study published on the JAMA Network site stated this in the Conclusions and Relevance portion of the article: Shared decision making is needed to support decisions about breast reconstruction. Shared decision making is a daunting, yet attainable task, for both surgeon and patient when discussing the risks associated with breast reconstruction.  The article stated: Breast reconstruction has the potential to improve a person’s body image and quality of life but has important risks. Variations in who undergoes breast reconstruction have led to questions about the quality of patient decisions. My breast reconstruction experience was successful even though met with challenges that included out of pocket costs for travel, planning and recovery, calling on family and friends to help with recovery, and subsequent surgeries for scar revision and symmetry.  It also improved my body image and quality of Continue Reading →

The Story of Two Breast Cancer Survivors

Posted on by

This is a story of two breast cancer survivors who are connected by one song and a passion for dance.  This story is long overdue! I Hope you Dance (IHYD)! The story of two breast cancer survivors. My friend Susan and I met as young mothers.  She had three sweet and charming daughters.  I had two amazing and delightful sons.  We spent many hours watching our youngest children play together.  Time passed and Susan and I parted ways geographically but to this day we remain close friends. I received a dreaded phone call in November of 2000 I never expected to get.  Susan called from across the country to tell me she had breast cancer.  I began to cry on the phone.  What I wanted to do is be there to hug her.  I remember her words exactly.  She said, “Terri, I didn’t call to make you cry.”  This statement Continue Reading →

Finding a Breast Reconstruction Plastic Surgeon

Posted on by

Finding a Breast Reconstruction Plastic Surgeon How did you find your plastic surgeon?  This poll question was posted recently on the closed, private Facebook page supporting breast reconstruction patients.  These were the three response questions to choose from. Recommendation from another physician, if so, which one in comments please. Oncologist, breast surgeon, primary care or other? 64 respondents Online research? 20 respondents Recommendation from a friend? 17 respondents Question 1: Recommendation from another physician. Of the 64 respondents, not all listed the type of physician they received their recommendation from in the comments. Here are the results of the respondents who did comment. Breast surgeon: 37 Oncologist: 4 Primary Care 2 Other listed referrals included the following: Mammography technician Receptionist at an oncology office Nurse practitioner Breast cancer patient navigator Genetic oncologist It is interesting to note that most women got recommendations from their breast surgeons.  I was fortunate to Continue Reading →

You Come First after Breast Reconstruction

Posted on by

One of the best pieces of advice I can give to those I talk to planning their surgery, “You come first after breast reconstruction.”  It is a very difficult concept and mantra to adopt when you are so used to caring for others.  It is particularly challenging for those who go into breast reconstruction feeling healthy and fit, going about their daily routine of cooking, cleaning, carpooling, mothering, caring for others, and working a full-time job.  A sudden change in that routine is hard to wrap your mind around.  Believe me, it stops very suddenly after breast reconstruction but it IS temporary and so worth taking the time to put yourself first. Daily Activity to think about after Breast Reconstruction We don’t realize how much bending, twisting, and lifting we do each day.  I have been on the phone with individuals answering questions about the recovery process.  While I am Continue Reading →

Psychological Benefits of Breast Reconstruction

Posted on by

There have been many articles written over the years regarding the psychological benefits of breast reconstruction.  When a person loses a body part to breast cancer it seems reasonable to expect one would experience upset and psychological trauma no less than any other amputee.  However, the decision to remedy the amputation of the body part through breast reconstruction is not an easy process.  It means more surgery, recovery, dealing with possible side effects and complications, time off work, support from loved ones, research, and acceptance there will be lifelong scars. My Personal Breast Reconstruction Decision One of the driving factors to move forward with my own breast reconstruction after my mastectomy was to remedy the “psychological distress”. I was experiencing distress from the loss of my breasts.  It took a full week after my mastectomy for the psychological anguish to hit home. This was my second diagnosis.  I had a Continue Reading →

Possible Risks and Complications of Breast Reconstruction

Posted on by

Possible Risks and Complications of Breast Reconstruction I recently had the privilege of discussing some of the of possible risks and complications of breast reconstruction with Dr. Minas Chrysopoulo from PRMA plastic surgery.  The interview was done for #AllThingsCancer a program put out by the Anti-Cancer Club.  The two basic choices for breast reconstruction after mastectomy are implant based and autologous breast reconstruction (“flaps”).  There are pros and cons to each option.  What is important to emphasize is that for most patients, each option usually includes a staged approach involving more than one procedure for the best results. Implant breast reconstruction involves replacing the tissue removed by the mastectomy with a saline or silicone filled implant.  In most cases, a temporary implant known as a tissue expander is placed first to help shape the new breast.  The tissue expander is then replaced by a permanent implant at a second surgery. Autologous “flap” techniques Continue Reading →

Breast Reconstruction Travel & Post-op Visits

Posted on by

Breast Reconstruction Travel & Post-op Visits A question was posed to me recently about breast reconstruction travel and post-op visits. The question was this: Terri – when you traveled for your DIEP, did you travel back/ forth for all the follow up visits also?  So, wondering how all the follow up visits go in a situation like this? How long did you stay in SA while recovering? It is an important question to ask. I had the same question before my own DIEP flap surgery.  DIEP flap is a very specialized breast reconstruction surgery using the patient’s own tissue.  There are few qualified micro-surgeons who perform it with a high rate of success and have amassed a great number of flap surgeries performed.  When the numbers are extrapolated, there is not even one in every state.  It makes sense, then, that to find a highly-qualified micro-surgeon, patients frequently must travel for Continue Reading →

DIEP flap Breast Reconstruction: Sights and Sounds of the Hospital

Posted on by

DIEP flap Breast Reconstruction: Sights and Sounds of the Hospital Your senses can become fine tuned to the sights and sounds of the hospital stay after your DIEP flap breast reconstruction.  Whether you have been in hospital before or not there are many things to deal with when you are out of the comfortable environment of your own home and bed.  Our five senses, taste, touch, sight, smell, hearing, connect us to everything around us.  Let’s look at what that means while recovering from DIEP flap breast reconstruction during your hospital stay. Tastes The taste that you have in your mouth post-surgery can only be described by the individual.  My perception is one of a medicinal, antiseptic taste.  You have been anesthetized for a long period and the drugs used will linger on the tongue.  Your mouth will be dry and you will not be allowed fluids of any kind Continue Reading →

Burns in Reconstructed Breasts after Mastectomy and Breast Reconstruction

Posted on by

Burns in Reconstructed Breasts after Mastectomy and Breast Reconstruction An article published in Medscape.com on burns in breasts after mastectomy which also included after breast reconstruction admittedly left me riveted.  Look at this statement from the article: Together with this case series, the literature suggests the most common heat sources responsible for the identified burns included: Heat conduction: using heating pads, hot liquids, and hyperthermia devices. Solar radiation: sunbathing with a dark swimsuit or using a sun lamp. Heat convection: using hair dryers. A close examination of this article and the above-mentioned items leads me to conclude that the most common culprits are household items and sunbathing.  I was given literature regarding post-surgical care from the plastic surgeon who performed my DIEP flap breast reconstruction to clearly avoid heat of any kind to my reconstructed breast, including standing with my back to the shower as well as sunbathing. I personally Continue Reading →

Restored Sensation: Breast Reconstruction

Posted on by

I am a patient who has restored breast sensation after breast reconstruction.  As a patient advocate who educates and speaks to hundreds of women and men about all options for breast reconstruction I am aware that many who choose breast reconstruction experience numbness and a variety of new sensations in their reconstructed breasts. I am referencing a recent article in the New York Times, After Mastectomies, An Unexpected Blow: Numb New Breasts. I respect but don’t fully understand the statements from patients experiencing numbness regarding their experience with their own reconstructed breasts.  Specifically, these: The statement under the photo taken from the article Re “Mastectomy, Then Shock: Lost Feeling” (front page, Jan. 30): Dane’e McCree with her daughters, Marleigh, left, and Brooklyn, in Grand Junction, Colo. “I can’t even feel it when my kids hug me,” Ms. McCree said after a breast reconstruction surgery. Credit Barton Glasser for The New Continue Reading →