Category: Breast Cancer Diagnosis

Resilience and Hope in Breast Cancer and Breast Reconstruction

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These seem like very strong words to define one who has been diagnosed with breast cancer or going through breast reconstruction. I believe people in either of these circumstances possess both hope and resilience. There are unpredictable forces in our life that move us forward. I consider resilience and hope in breast cancer and breast reconstruction as two of those forces. Resilience When Diagnosed with Breast Cancer When you hear or read the word, resilience, it seems like a strong word to define someone who has heard the news they have breast cancer. What I am really trying to convey is that whether you think you have resilience or not, you are actively showing that you do. How? By putting one foot in front of the other each moment, each day after being diagnosed. It is not to say you must stay positive, you are being courageous, or acting tough. Continue Reading →

Patient Advocacy in San Antonio

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I am sitting in my office looking out the window at softly falling snow. The cold temperatures of winter have settled in. It is a great day to reflect while sipping on a cup of warm tea after a week at the conference followed by a week spent with family. It is a strong finish wrapping up 2022 and patient advocacy in San Antonio. Patient Advocacy Focus at SABCS The hashtag #SABCS2022 was seen on Instagram, Twitter, and LinkedIn during the first week of December. This was my third time attending the San Antonio Breast Cancer Symposium conference. I was an active part of the Alamo Breast Cancer Foundation (ABCF) Patient Advocacy Program this year. It required a great deal of planning and preparation. The first year I attended in 2016 I was a newbie. I wasn’t even sure if I should be attending after just opening my nonprofit organization, Continue Reading →

Tips for Getting Through the Holidays During Breast Cancer

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I have written about this topic before but each year I seem to learn something new. I hear from other people about being diagnosed or having surgery toward the end of the year. This can throw an extra wrench into holiday plans since so many people celebrate a number of different holidays in December. I learn from them and share my tips for getting through the holidays during breast cancer. My Tips for Managing your Phone Time This Thanksgiving, I gave myself a gift. I called family and close friends in the days leading up to Thanksgiving and told them I was turning my phone off the entire day of Thanksgiving beginning at bedtime the night before. I did not turn it back on until the morning after. They had the ability to get a hold of me in an emergency. I wanted to make sure of that. It was Continue Reading →

Ways of Giving Back

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There are many ways to give back to nonprofit organizations. Whether you are a patient, caregiver, surgeon, individual or corporate entity, or know someone who has been affected by breast cancer, at DiepCFoundation we want to share ways of giving back to the community we serve. Donate Your Time or Share a Testimonial There is nothing more rewarding than standing beside a volunteer at an event we are part of. These are patients who have been through this surgery and know first hand what to say to those who attend these events. We are grateful and will continue to reach out to our volunteers at these events. Writing a Testimonial and sharing it on our social media accounts is so appreciated. You can write it anonymously or we are happy to use your name and tag you on social media. Patients write testimonials telling us that viewing our DiepC Foundation Continue Reading →

Episode 19: Efficient DIEP Flaps

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DIEP flaps are a type of breast reconstruction using a patient’s own tissue to reconstruct breasts after mastectomy for those affected by breast cancer. DIEP stands for deep inferior epigastric perforators. Epigastric refers to the abdominal area. The underlying tissue and perforators (blood vessels) are disconnected by the microsurgeon from the abdominal area and transplanted to the breast area to create soft, warm, tissue much like the breasts removed during mastectomy. We hope Episode 19: Efficient DIEP Flaps, has piqued your curiosity. Efficient DIEP Flaps Study To do an efficient DIEP flap requires years of training, skill, planning, and a team. My guest, Dr. Nicholas Haddock is one of the Breast Reconstruction Team at UT – Southwestern Department of Plastic Surgery in Dallas, TX. He works with Dr. Sumeet Teotia performing state of the art autologous breast reconstruction in the Dallas/Fort Worth area in Texas. In our discussion we reference the PRS Global Continue Reading →

Opportunities in Patient Advocacy

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I feel so lucky to meet patient advocates who are passionate about their work in various breast cancer communities. Whether we have met in person at a conference, in training, or online I feel the positive impact of their work daily in my work as a patient advocate. I sat down with two of those advocates in this DiepCFoundation educational channel interview to discuss opportunities in patient advocacy. Alamo Breast Cancer Foundation I met Denise Barlow and Sandra Stewart Stanford in December of 2016 at the San Antonio Breast Cancer Symposium after opening DiepCFoundation earlier that year. They both welcomed me with opened arms and guided me through the full week of sessions inviting me to join the patient advocate meetings each evening. It was through them I learned about patient advocacy training at Project LEAD. The Alamo Breast Cancer Foundation was started by Dale Eastman in late 1992-93-time frame. Continue Reading →

The Power of Education, Connections, and Giving

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I moved back to Seattle in late 2018 to be near family. The following year, in October of 2019 I met with a team at Microsoft for the first time to present my story as a patient advocate, nonprofit leader, and two-time breast cancer survivor. Each October since then, I speak to teams at Microsoft providing information and education on the topic of breast reconstruction during their Microsoft Give Day. Each year I do these presentations I am inspired by the power of education, connections, and giving. How is the Power of Education Spreading? I often discuss this with my life-long friend, Thomas, who so generously sets these meetings up for me each year along with his Microsoft colleagues. We know, according to statistic from The National Breast Cancer Foundation, that one in eight women in the United States alone will develop breast cancer in her lifetime. The United States! Continue Reading →

Breast Reconstruction Transitions and Changes

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This week marks the beginning of the autumn equinox when the sun shines directly on the equator and the northern and southern hemisphere get the same amount of sun rays. I live in the Northern hemisphere. The days grow shorter and the nights longer because the Earth begins to tilt away from the sun. Seasons bring changes. There are comparisons to draw with the arrival of fall and with breast reconstruction transitions and changes. Breast Reconstruction Changes in our Bodies Many anticipate the changes fall brings. I look forward to the chill in the air and the warm clothing in my closet waiting to be worn and layered to keep me warm. Just as the leaves change color from green to brilliant hues of orange, golds, and browns, so too our bodies change during breast reconstruction. Leaves transition and let go of the tree, falling gracefully on the ground during Continue Reading →

Episode 9: Shared Decision-Making

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When it comes to making decisions in your healthcare, my guest, Dr. Minas Chrysopoulo and I present the first in a series on the topic of shared decision-making in the summary of Episode 9: Shared Decision-Making on the DiepCJourney podcast. Toliman Health was founded by Dr. Minas Chrysopoulo, an internationally recognized expert in breast cancer reconstruction and shared decision-making. Dr. Chrysopoulo is the creator of Toliman’s flagship app, Breast Advocate® As co-leads of the WHIS Shared Decision-Making Expert Group our goal is to facilitate the adoption and practice of shared decision-making (SDM) throughout healthcare systems and across all medical disciplines. The “why” of the informative approach to decisions in healthcare is multi-faceted. It encompasses the patient’s preferences, values, support system, and expectations for outcomes. Back to Our Favorite Topic: Shared Decision-Making It is important in so many ways. Shared decision-making is not actually a new concept. It has been around since the 1980’s. Being one of Continue Reading →

Oncoplastic Surgery after a Breast Cancer Diagnosis

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Dr. Lashan Peiris, an oncoplastic and reconstructive breast and general surgeon in Edmonton, Alberta, Canada, discusses oncoplastic surgery after a breast cancer diagnosis. He defines the term oncoplastic breast surgery, describes the type of conversation he has with his patients, and who might be a candidate for this type of surgery after a breast cancer diagnosis. Shared Decision-Making in Oncoplastic Surgery When a person is diagnosed with breast cancer the healthcare team should work together to coordinate patient care to determine the best long-term survival and quality of life choices in treatment and surgery. Dr. Peiris makes a profound statement, “Gone are the days where we as breast surgeons walk into a room, tell a lady she’s got breast cancer, and walk out five minutes later.” Dr. Peiris continues his discussion by describing the shared decision-making process in breast cancer and breast surgery care. All aspects of the patient’s life Continue Reading →