Collaboration in Educating about Breast Reconstruction

My favorite word throughout my education career has always been “collaboration”. So is the case now in my role as Founder of DiepCFoundation.org. I couldn’t feel any stronger about collaboration in educating about breast reconstruction. The change leaders I have met in the past three years on my own personal quest to educate more women and men about options in breast reconstruction motivate me daily to do more, explore new avenues to educate, support them in their mission, and stand beside them collaboratively to continue this work. This week on my social media feeds I have seen an announcement by Patricia Anstett that her book, Breast Cancer Surgery and Reconstruction, What’s Right for You, is now out on paperback on Amazon. Congratulations are in order as this was a professional labor of love for Pat. Full disclosure: Yes! I’m featured in the book and proud of it. However, I have Continue Reading →

DIEP flap Breast Reconstruction: Did I make the right choice?

YES! I did make the right choice having DIEP flap breast reconstruction! Each December marks another year and anniversary of my DIEP flap surgery. I remember so much about the dark, cool, morning we left for the hospital, feeling calm, prepared, and ready on December 1, 2014. The time between my double mastectomy in mid-May of 2014 and my breast reconstruction were some of the most trying days of my life. In 2002, after my first breast cancer diagnosis, I had been through 2 surgeries, eighteen weeks of chemotherapy followed by six weeks of daily radiation. This was physically demanding because I was so sick and felt so weak. Fast forward twelve years to 2014. Waiting for my breast reconstruction was psychologically trying. Each month that passed after my double mastectomy only decreased my self-image as a woman due to the loss of my breasts and seeing myself in the Continue Reading →

Why do I Marvel at Breast Reconstruction & Plastic Surgery?

I ask myself this question often: Why do I marvel at breast reconstruction & plastic surgery? October was a busy month for many who work in this field and educate about this topic. I think it was one of the busiest months I had this year. I was in six states and six different airports engaging with or educating about breast reconstruction with plastic surgeons, patients, advocates, and the public. I was exhausted yet exhilarated to know the innovations and developments in the field of breast reconstruction and plastic surgery continue to keep me motivated and captivated. It has been three years since my own breast reconstruction and yet, thinking back to November of 2014 and having no breasts on my body, it is easy to understand my own fascination with this topic. When you use your own tissue to rebuild your breasts after losing them to breast cancer, that Continue Reading →

How Long Does DIEP flap Breast Reconstruction Surgery Take?

This is a question I wanted to write about after attending PSTM17 in Orlando as a patient advocate. Speaking to ASPS board certified plastic surgeons at the meeting afforded me the opportunity to understand the answer to, how long does a DIEP flap breast reconstruction surgery take? It is an intricate, microsurgical procedure that includes incisions and work on both the abdominal area and the breast area. The assumption is, the surgery is long. In fact, when assessing my own DIEP flap, I often report my DIEP flap lasted nine hours. What we don’t often take into consideration is what the surgery entails from start to finish. I reviewed my own surgical report to write this blog and spoke with plastic surgeons at PSTM17 wanting to share some important points of discussion. Gathering information from my sister, a nurse, was helpful. She shared some pre-op and post op data we don’t Continue Reading →

From Nipple Sparing Mastectomy to DIEP flap Breast Reconstruction

A nipple sparing mastectomy to DIEP flap breast reconstruction can be a very successful surgical process after being diagnosed with breast cancer. I want to share my success story and reference articles I have read about nipple sparing mastectomy (NSM). My NSM Experience: Breast Surgeon I credit my breast surgeon, Dr. Michele Boyce Ley, and my plastic surgeon, Dr. Minas Chrysopoulo, for the success of my nipple sparing mastectomy to DIEP flap breast reconstruction. My NSM process began in my breast surgeon’s office the day we consulted about next steps after my second breast cancer diagnosis. She was very hopeful but realistic about saving my nipples while performing my double mastectomy knowing I had plans for DIEP flap later. The MRI scan ordered prior to my mastectomy led her to make this pre-surgical assessment due to the tumor size and location from the nipple as well as techniques she was Continue Reading →

This is What Happens through DIEP flap Connections

Education about breast reconstruction options after breast cancer and mastectomy: This is what happens through DIEP flap connections. Two women living in two different parts of the country, one surgeon, a plastic surgery team, and a desire by all to educate and inform! I traveled to have my DIEP flap breast reconstruction in December of 2014 at PRMA in San Antonio, Texas. I was connected to another woman, Rhonda, now a “breast friend”, through PRMA when she became interested in DIEP flap. I was part of the Pink Ladies Support Group at PRMA.  This group speaks to other women about their own experience and traveling to have DIEP flap. Rhonda, like me, was interested in booking her surgery with Dr. Minas Chrysopoulo. I received the following email the morning of January 25, 2016. Hey gals!  Dr. C has an out of state patient named Rhonda who will be coming here Continue Reading →

Intimacy ~ Touching your breasts after DIEP flap surgery

This blog has been sitting in my archives for quite some time.  Intimacy and touching your breast after DIEP flap surgery seems like an unabashed topic to write about. The intimacy of the content and the shared photos delayed my writing. Respect for my fellow DIEP flap sisters and touching your breasts after this surgery is not something every woman wants to do. I know this to be true because I talk to women who feel this way. I fully respect all the complexities that surround the new sensation of your DIEP flap breasts.  The purpose of my blog is to share my experience and in some way, empower breast reconstruction patients to embrace their new breasts after they have healed from surgery and to feel comfortable touching their newly reconstructed breasts. If my suggestions and story work for you, I am happy.  If they do not, I get it, Continue Reading →

Honoring my Father During my DIEPflap Surgery

This is a perfect weekend to write a tribute honoring my Father and his support during my DIEPflap surgery.  My father is in his late 80’s now so watching me go through DIEPflap breast reconstruction two and half years ago was not an easy process for him.  He knew nothing about this type of surgery.  My Dad’s generation and friends who had radical mastectomies and survived breast cancer never knew of the options to rebuild one’s breasts after they had to be removed after a breast cancer diagnosis.  It was just assumed that the loss was part of the plan and how you would continue to live your life. I gently guided Dad and Mom through the process and why I chose to have DIEPflap breast reconstruction after my second breast cancer diagnosis.  I will admit, it was tough.  His main concern for me was the length of surgery and Continue Reading →

My Double Mastectomy: Three Years Later

Double Mastectomy: Three Years Later May 15, 2014, I was sitting in a hospital room recovering from a double mastectomy.  Why am I smiling so much in the photo?  The answer: I just finished a phone conversation with my parents.  They live a little over one thousand miles from me.  I couldn’t believe how little pain I was in and how good I felt.  It was important to me that they hear my voice. Both my Mother and Father were in disbelief that I was calling them. Just 24 hours before, they were on alert at their home waiting for the phone call to let them know I was out of surgery and doing well.  When I mentioned to them I was heading home in a couple of hours after the call, they were even more surprised.  I could hear the sense of relief in their voices over the phone. Continue Reading →

Finding a Breast Reconstruction Plastic Surgeon

Finding a Breast Reconstruction Plastic Surgeon How did you find your plastic surgeon?  This poll question was posted recently on the closed, private Facebook page supporting breast reconstruction patients.  These were the three response questions to choose from. Recommendation from another physician, if so, which one in comments please. Oncologist, breast surgeon, primary care or other? 64 respondents Online research? 20 respondents Recommendation from a friend? 17 respondents Question 1: Recommendation from another physician. Of the 64 respondents, not all listed the type of physician they received their recommendation from in the comments. Here are the results of the respondents who did comment. Breast surgeon: 37 Oncologist: 4 Primary Care 2 Other listed referrals included the following: Mammography technician Receptionist at an oncology office Nurse practitioner Breast cancer patient navigator Genetic oncologist It is interesting to note that most women got recommendations from their breast surgeons.  I was fortunate to Continue Reading →