Category: Personal Stories

A Retirement Tribute to Deanna Attai: This Batch is for You!

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Deanna J. Attai, MD announced her retirement this week on what else other than social media? I suspect for many, like me, it feels like a bittersweet announcement. My message to her comes from my experience as a patient advocate and organic gardener. Deanna has lived to work most of her professional life. Now I know she can engage fully in working to live. This is a retirement tribute to Deanna Attai. Dr. Attai, this batch is for you! Dr. Attai, the Breast Surgeon My first recollection of Dr. Attai is through social media. The hashtag #BCSM (breast cancer social media) was created by her, Alicia Staley, and the late Jody Schoger. The first #BCSM tweet chat occurred on July 4, 2011. Over the past thirteen years, a great deal has changed in social media. However, the community created by one hashtag, #BCSM changed the engagement between breast cancer patients Continue Reading →

A Breast Cancer Patient Intent on Finding Access to Care

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Access to medical care for those affected by breast cancer is crucial, and often life transformative. This is a personal story of a breast cancer patient intent on finding access to care. She is a woman of strength and stopped at nothing to find the best care available for her during her personal journey from diagnosis to recovery from DIEP flap breast reconstructive surgery. I am pleased to offer this summary of the DiepCJourney podcast. Dana’s Diagnosis and Breast Cancer Treatment Dana Brown, PhD., is a 54-year-old wife, mother, and educator. She has been married to her best friend and soulmate for 35 years and they have an amazing son who is twenty-six. Recently, after 30 years in education, after much consideration with her husband, Dana decided to retire. This decision was made based on the reason she is sharing her story with you on the podcast about how she Continue Reading →

Father’s Day 2024 with Fond Memories and Love

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When I think of the stories others have told me about their dads it varies greatly. This Father’s Day I look back at some of the great influencers, dads I have known in my life. Not everyone has fond memories of their dad, but this is a day set aside to honor those who are privileged enough to call themselves dad and will celebrate Father’s Day 2024 with fond memories and love. My Dad It is only fitting that I begin with a tribute to my own father who sadly is no longer with us. Dad had four daughters. He anguished at the loss of my older sister, Mary, who lived a short, brief time after birth. In those days, bonding with a lost child in hospital was not something practiced yet. They quickly whisked the baby away from my mom who carried Mary full term only to be lost Continue Reading →

A Patient Story: Transitioning from Implants to DIEP Flap

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Whether you have had a breast cancer diagnosis, have a genetic mutation placing you at high risk of getting breast cancer, have had or are facing a mastectomy due to either of these situations you will want to listen to this episode of the DiepCJourney podcast, A Patient Story: Transitioning from Implants to DIEP Flap. The time has come to share a personal story of a woman I interviewed twice about her decision to have a prophylactic mastectomy and implant reconstruction. This is the continuation of her Journey. She came to a decision to exchange the implants she never quite felt comfortable in and transition to DIEP flap breast reconstruction and use her own tissue this time around. An Unexpected DIEP Flap Reunion with a Friend Margaret Tueller Proffitt has a delightful Instagram account and describes herself as a lover of books, learning and travel. She is a Mom to four, Continue Reading →

Can the Emotional Toll of Breast Cancer be Measured?

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Measured how you might ask. In number of years, you survived? Perhaps it is the impact of the treatment and how you are called to endure discomfort, pain, and loss you did not know you would experience? Measured by the times you survived breast cancer? Can the emotional toll of breast cancer be measured? 2002: The Emotional Toll I had breast cancer in 2002 for the first time. The simple description: left breast lobular carcinoma with no lymph node involvement. The emotional toll kicked in for me on three strong fronts: There is no way to describe the moment you hear the words, “You have breast cancer,” or for that matter any kind of cancer. Telling your immediate family and beginning phones calls to extended family and friends caused me to cry endlessly. I lost weight without even trying. Sitting in an oncology office in front of a stranger listening Continue Reading →

Challenges, Accomplishments, and Understanding the Worth of Being A Caregiver

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A guest blog by Richard A. Coutee I asked our oldest son to write a guest blog about his experience with both my breast cancer diagnosis and my recovery through DIEP flap surgery. I cried when I read it. He hit the mark on the challenges, accomplishments, and understanding the worth of being a caregiver. In his words… My First Challenge as a Caregiver In 2001, I was a freshman at Washington State University. I remember a chilly day in January, I was in class shortly after returning from Christmas break. The professor teaching the class that day paused when a teaching assistant came in and handed her a note. “Richard Coutee? You need to call home as soon as you can.”  I was embarrassed that I was called out in front of everyone and wondered what news was so important that it couldn’t wait for me. That’s when I Continue Reading →

How to Host a Breast Reconstruction Community Gathering

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I want to extend a note of gratitude to the members of the DiepCJourney private Facebook page for their inspiration writing this blog, how to host a breast reconstruction community gathering. For the readers, this is a community of learning, support, and sharing. I began “The Journey” Facebook group in 2015 before starting my nonprofit, DiepCFoundation. Now, this community has become an integral part of the Foundation work. I am inspired daily by their curiosity about breast reconstruction surgery, support for each other, and the friendships made along the way. You can see on the Advocacy page I recently held a community gathering of local Journey members. I want to share some tips on how to host your own breast reconstruction community gathering. Tip #1 for you Breast Reconstruction Community Gathering Ask yourself why you are having it. What purpose do you want to accomplish? It might be for the Continue Reading →

The Rewards and Risks of Traveling for Patient Advocacy

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Let’s dispense with the not so good news first. It is far less than the good news I will write about regarding the rewards and risks of traveling for patient advocacy. The Risks of Traveling for Patient Advocacy Patient advocates I know go into this work with their eyes wide open when they travel to conferences or events for their work. We know what can and sometimes does happen. I wanted to talk about these first because they are short-lived risks. The fallout from any of the above items passes in a brief time. We deal with them as they happen knowing we will return to our advocacy work in no time because of dealing with any of the above-mentioned events. The Rewards of Traveling for Patient Advocacy This is the real magic sauce of being a patient advocate and traveling on behalf of the communities we serve. My work Continue Reading →

Tapping into Resilience in the New Year

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We can write down, talk about, and make all the New Year’s resolutions we want. However, what will sustain us throughout the year is our resilience and responding to situations that set us back or cause us to change direction in our lives unexpectedly. How are you going to be tapping into resilience in the New Year? When Life Events Become a Catalyst to Tap into Resilience There are distinct types of events in life that can cause us to pivot, adjust, and do our best to move forward. I am speaking about health events. A sporting accident, a catastrophic car accident, or finding you have a disease that could either take your life sooner than expected or change your life forever. These are only a few examples of life events that cause one to reexamine how they are going to deal with things moving forward. My experience dealing with Continue Reading →

Microsoft Give, Breast Cancer, Our True Outreach and Influence

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Five years ago, I began making yearly presentations at Microsoft in Redmond, Washington for their volunteer days known as Microsoft Give. Give days are part of their corporate responsibility when employees share time, donations, and skill. It was a sunny day in the Pacific Northwest as I rolled into the massive new parking lot of the Microsoft campus in Redmond in mid-October of 2023. My car was loaded with care package items the Microsoft team would be assembling after I presented my talk entitled, “Microsoft Give, Breast Cancer, Our True Outreach and Influence”. From their website this phrase could not have been more accurate the day I was there. Microsoft employees are passionate about giving time, money, and skills to address the issues facing our world. Microsoft Corporate Social Responsibility Breast Cancer Call to Action at Microsoft Give Day What is the issue facing our world attendees would be helping Continue Reading →