Category: Personal Stories

DiepCJourney: What’s in the Name?

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Breast reconstruction awareness day, #BRADay2020 is this Wednesday, October 21st. I have cordially been invited to make a presentation at Microsoft this week to educate the attendees on options for breast reconstruction after mastectomy. I was asked by a dear friend, Thomas, a Microsoft employee, what the meaning was behind all of the DIEPC platform I began to build in January of 2015. So, I will begin by telling you about DiepCJourney: What’s in the name? After a second breast cancer diagnosis, I chose to have DIEP flap breast reconstruction after a double mastectomy in May of 2014. When I returned from my surgery, I began to write about it for more of a cathartic experience. I then discovered less than 25% of women and men are aware or told about their options for breast reconstruction after mastectomy. I began to think about how I could educate others about options, Continue Reading →

Breast Reconstruction Results, Should we Compare Photos?

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Breast reconstruction results, should we compare photos? This is a perplexing question in the world of plastic surgery for those affected by breast cancer. However, I see this question asked several times a week. I want to share my thoughts and why I feel it continues to be a topic I think breast cancer patients should give careful consideration to. When I lost my breast to breast cancer and began searching for a microsurgeon to perform my DIEP flap, I used their public website as a resource. It was full of information I needed to prepare for and understand the surgery I was about to have, DIEP flap, using my own tissue to rebuild my breasts. Seven months before my DIEP flap breast reconstruction, I had a skin sparing, nipple sparing mastectomy after a second breast cancer diagnosis. Those seven months were psychologically difficult for me. Twelve years previous to Continue Reading →

Wonder and Happiness: Pregnancy Post-DIEP – Part 2

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Emily is one of over 5,700 global members of the DiepCJourney Facebook group. I am honored to share her story of wonder and happiness: pregnancy post-DIEP – Part 2. More than a year later, I am finally prepared to reflect on the full experience of having a child after DIEP flap reconstruction. To recap, I am BRCA1+ and had a prophylactic bilateral mastectomy with DIEP flap reconstruction in June 2018 at the age of 36 and phase 2 corrective surgery with fat grafting in October 2018. I became pregnant with my 2nd child in April 2019 which left me wondering. At 38, after a full-term pregnancy with no complications, I was induced and delivered a healthy 7-pound 4-ounce baby girl on December 18, 2019, exactly one week after her sister’s 9th birthday. I wondered whether pregnancy would mess up my surgeon’s beautiful work. I am happy to report to all of Continue Reading →

Lost Breast Sensation after Mastectomy Restored 10 Years Later

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Tara begins by telling us the painful story of losing her mother to breast cancer when she was only eighteen. In an ironic twist of fate, Tara’s mother lost her own mother, Tara’s grandmother, from breast cancer at the same age. Having experienced this, she describes it as a “dark cycle that would just keep happening”. This is Tara’s story of lost breast sensation after mastectomy restored 10 years later. With other family members who had a cancer diagnosis, Tara was encouraged to have genetic testing by her then partner. She had no idea at the time what having genetic testing would actually mean and how it would change her life if she tested positive. When the results came back that she was in fact a carrier of a BRCA gene mutation, she went to see a surgeon to discuss what her options were. She was given two options. She Continue Reading →

Benefits of Delayed DIEP Flap Breast Reconstruction after Radiation

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I take the opportunity to interview Dr. Minas Chrysopoulo of PRMA about the benefits of delayed DIEP flap breast reconstruction after radiation. It is always a pleasure to have him on the DiepCFoundation Channel to educate others about topics for those affected by breast cancer. What are the Effects of Radiation? Dr. C begins by explaining radiation often creates significant changes. Radiation is recommended to decrease the risk of breast cancer coming back locally in the chest area. He points out there is some data to suggest it can improve survival. For these two reasons alone, it is a very important part of breast cancer treatment to discuss with your health care team. Techniques have improved in recent years in radiation, both the kind of radiation and how radiation radiation is administered for treating breast cancer. However, like many treatments for cancer, there are still side effects. Will the side Continue Reading →

Dealing with the Aftermath of Breast Cancer and Surgery

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There is no instruction book for this. You are diagnosed with a potentially life-threatening disease. Yes, I know, our survivor rates and treatment have both improved over the years. But what those years mean to a person going through treatment or healing from surgery has an entirely different meaning. It is a difficult Journey dealing with the aftermath of breast cancer and surgery. Dealing with Breast Cancer Emotions Take a bag of rocks, all different sizes, colors, and shapes. Put them in a box and shake them. Shake them loud and hard. It is sometimes the internal noise, like shaking this bag of rocks, that gets to you after a breast cancer diagnosis and surgery. Anger, fear, unknowns, disbelief, shame, guilt. There is your bag of rocks. You feel all of these emotions, sometimes more. Were you equipped to deal with this? Did you expect this to happen in your Continue Reading →

What Inspired You to Choose Plastic Surgery? A Father’s Day Tribute

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I have interviewed a number of notable plastic surgeons on the DiepC Foundation YouTube channel about topics related to breast reconstruction. This interview evokes a special, more personal feeling. I interviewed my own reconstructive plastic surgeon, Dr. Minas Chrysopoulo, for this special Father’s Day Tribute. He discusses the reason, inspiration, and why he chose plastic surgery. It was time spent with his father watching the history of plastic surgery on “the tellie” growing up as a young boy in London. His profession in life has truly become his passion and it is evident as the video conversation unfolds. What inspired you to choose plastic surgery? A Father’s Day Tribute. The History of Microsurgery Imagine a young lad spending time with his dad, “a massive history buff”, as Dr. C says, watching World War I and World War II programs. It was their bonding time. He points out plastic surgical procedures Continue Reading →

Happy Mother’s Day Mom with a Grateful Heart

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I asked my Mom a pretty big favor in a recent phone call to her. “Mom, I would like to interview you for my Mother’s Day blog.”  There was a pause at the other end of the line. Knowing how important her privacy is to her, I reminded her I had written a couple of blogs about Dad. Mom remembered and found them in a file. She reminded me she kept a file about all the things I do in my patient advocacy work. I had no idea she had a file. We scheduled a time for me to interview her over the phone. This blog is for you Mom. Happy Mother’s Day with a grateful heart. When Emotions Run High Mom endured hearing, watching, and caring for me through two breast cancer diagnosis. The first diagnosis we lived close enough for her and Dad to drive and make more Continue Reading →

How Do You Maintain Your Health After Breast Cancer?

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Exercise has been part of my routine throughout my life. I am a middle child of three daughters. Dad always called me the tomboy in the family. I was the one he would throw the football to across the yard when I was growing up. He taught me how to throw a pretty good spiral. My family attended my high school track meets. When I was on a collegiate rowing team, they cheered on the sidelines of the river when I had a regatta in our hometown. But as an adult, I have been diagnosed with breast cancer twice. It stopped me in my tracks during various surgeries, chemotherapy, and radiation treatments. Now a healthy Nanna with all of that behind me, it is even more important for me to exercise and maintain my health after breast cancer. My Formula for Maintaining Health after Breast Cancer There are so many Continue Reading →

Learning Together During the Coronavirus

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I am an educator by profession. Although I switched from classroom teaching to becoming a patient advocate after a second breast cancer diagnosis and successful DIEP flap breast reconstruction, I am always energized when I can learn something new. Living through the global pandemic of 2020 has been one adjustment after the other for everyone across the world. It has been downright frustrating for me some days. This week, I felt uplifted. Some new tools and ideas opened up for me. I am grateful a world pandemic can also result in learning together during the coronavirus. Using Instagram LIVE During the Coronavirus Instagram has been a busy platform during the past few weeks. Those little circles at the top of your Instagram feed have been highlighted in red more than I have ever noticed. Notifications of IG LIVE have been frequently lighting up my phone. What is up? I turned Continue Reading →