Category: Tests and Scans

1900 Patients Share Stories About Breast Reconstruction

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Three short years ago in the summer of 2015, I opened a Facebook page dedicated to serve the breast reconstruction community. The Facebook page, https://www.facebook.com/groups/diepcjourney/ grew organically by word of mouth. We started out small, as so many new social media sites do. It is growing daily and now 1900 Patients Share Stories About Breast Reconstruction. What Do We Share? Think about this. You have just been diagnosed with breast cancer. Now you face the tsunami of information about to flood your brain; lab reports and waiting on results, treatment options, surgery, lumpectomy, mastectomy. Some days you feel overwhelmed, depressed, anxious, or even jubilant. Who will understand all these feelings? Who do I talk to who has been on this Journey? Think about this. You are told your best treatment option is to have a mastectomy. Perhaps, for peace of mind, you decide to have a prophylactic mastectomy because you Continue Reading →

Who Inspires You as a Breast Cancer Survivor?

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There are endless topics to write about when you blog as a two-time cancer survivor. Most weeks are planned topics, some topics are fun, and then there are delightful moments in your week leading to an unanticipated topic. You are inspired, and you know what the topic of your blog will be for the week. Who inspires you as a breast cancer survivor? This week it was my two friends, Jim, and Sean, who I met in my Livestrong class at the local YMCA. Both men have survived brain cancer. Both men endured physical impairment and fought to make a comeback to their now “new normal” life. I was at the gym doing my weekly workout. I had completed my cardio on the elliptical machine. I was finishing on weights. I do weights three to four times a week. The prescription I am on to keep my cancer at bay Continue Reading →

Breast Reconstruction: Seromas Evaluation and Treatment

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We looked at the pre and post-operative assessment of seromas after breast reconstruction in a previous blog and video. Here, Drs. Minas Chrysopoulo and Ramon Garza III of PRMA in San Antonio explain to the viewer how to evaluate and treat a seroma if it occurs after breast reconstruction. Seromas form because of your body’s natural healing processes. Think of a wound you get on the outside of your body. The body produces fluid as part of the healing process. You see fluid as with a scraped knee or a burn. Imagine the wound on the inside of your body that forms because of surgery. Your body is going to produce fluid internally due to the trauma of surgery. This fluid must be managed. Dr. C, as his patients refer to him, explains a seroma can happen anywhere someone has surgery. In breast reconstruction this can be in the breast Continue Reading →

Breast Reconstruction: Seromas Pre and Post-Operative Assessment

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Breast Reconstruction: Seromas Pre and Post-Operative Assessment Breast reconstruction complications are possible as is the case with any surgery. A possible complication in breast reconstruction is the development of a seroma. Here we look at the pre and post-operative assessment of seromas after autologous or implant-based breast reconstruction. I speak to two ASPS board certified plastic surgeons from PRMA in San Antonio, Dr. Ramon Garza III and Dr. Minas Chrysopoulo. I feel fortunate to share this information with the reader. The video in the blog will give a detailed explanation of pre and post-operative assessment of seromas. You can subscribe to DiepCFoundation YouTube channel after watching the video for a variety of educational topics on breast reconstruction. Dr. Garza begins the discussion by explaining who might be more prone than others to complications such as seromas after breast reconstruction. It is important to point out that their practice at PRMA Continue Reading →

When Breast Cancer Patients Experience PTSD

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When breast cancer patients experience PTSD, it can be triggered for several reasons. My own experience leads me to understand what triggers my PTSD after a second breast cancer diagnosis. I realize it is important to learn to control the mechanism that triggers the response. How do I do this? Awareness, speaking to others who have been through it and how they manage their own PTSD after breast cancer, realigning my thoughts to conquer the fear that PTSD brings on. My PTSD occurs because I was diagnosed with stage IV, metastatic and seven days later the diagnosis was retracted. I lived with that diagnosis for a week. I told my family and friends and they were sucked into the dark vortex that is the result of such a diagnosis. What happened? My healthcare team ordered scans after my second diagnosis. They saw lesions on my spine and that’s when the Continue Reading →

The Value of a 2nd Opinion for Breast Reconstruction

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The value of a 2nd opinion for breast reconstruction is fortunately something that has the potential to give women hope if they have been turned down at an initial consult for autologous breast reconstruction. I had the fortune to talk with two board certified microsurgeons, Dr. David Song of MedStar Georgetown and Dr. Minas Chrysopoulo of PRMA in San Antonio. Both plastic surgeons successfully and routinely perform a variety of autologous flap surgeries with great success. What is autologous breast reconstruction? Autologous breast reconstruction is using another area of the patient’s body using the tissue and underlying blood vessels to create a soft, warm, new breast after a mastectomy. Why are women sometimes turned down by plastic surgeons or told they are not good candidates for autologous breast reconstruction? Here are some of the reasons Dr. Song and Dr. Chrysopoulo mention in the video: Well trained colleagues in plastic surgery Continue Reading →

The Gripping Fear of PTSD after Breast Cancer

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This blog is long overdue. I like to write when I’m clear headed and have done research on the topic I am writing about. Not today. Today, after surviving breast cancer twice, I am once again experiencing the gripping fear of PTSD after breast cancer. It happens when I go for routine tumor markers, scans, or experience a new ache or pain. Today is emotional while I wait on test results, but I couldn’t feel more determined to finally share why PTSD feels like a choke hold around my throat.  Today I wait for the results with fear; fear so many breast cancer patients experience. The wait, the PTSD, all comes with the heavy burden of hearing you have breast cancer. Our Responsibility as Patient Advocates I spoke to a friend and colleague yesterday, a fellow patient advocate, about our responsibility to share our lived experience and voices with the Continue Reading →

DEXA Scan after Breast Cancer & DIEP flap

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It is important for many breast cancer patients to monitor their bone density health. One monitoring test is the DEXA scan after breast cancer and DIEP flap. This is a segment of a comprehensive article from the National Institute of Health. Women who have had breast cancer treatment may be at increased risk for osteoporosis and fracture. Estrogen has a protective effect on bone, and reduced levels of the hormone trigger bone loss. Because of treatment medications or surgery, many breast cancer survivors experience a loss of ovarian function and, consequently, a drop in estrogen levels. Women who were premenopausal before their cancer treatment may go through menopause earlier than those who have not had breast cancer. Results from the NIH-supported Women’s Health Initiative Observational Study (WHI-OS) found an increase in fracture risk among breast cancer survivors. I recently had a DEXA scan and I was pleased with my results.  Continue Reading →

New Game Changer App for Anyone Impacted by Breast Cancer

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I am a breast cancer survivor.  I have had breast cancer twice.  I had two lumpectomies my first diagnosis.  I relied on the visits to my oncologist and breast surgeon to inform me of my options and what the treatment, side effects, and recovery would be like including chemotherapy and radiation.  That was in 2002.  My second diagnosis in 2014 resulted in double mastectomy.  I wore prosthesis for seven months before I decided on DIEP flap breast reconstruction. Many patients complain their surgeons essentially just told them what their treatment would involve without much discussion.  What if someone said you can be actively involved in deciding your breast cancer treatment plan?  Many of us use a variety of apps on our mobile devices and computers every day. Those apps serve many different purposes to suit our individual needs. Would having an app for shared decision making in your breast cancer Continue Reading →

DIEP flap Breast Reconstruction: Sights and Sounds of the Hospital

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DIEP flap Breast Reconstruction: Sights and Sounds of the Hospital Your senses can become fine tuned to the sights and sounds of the hospital stay after your DIEP flap breast reconstruction.  Whether you have been in hospital before or not there are many things to deal with when you are out of the comfortable environment of your own home and bed.  Our five senses, taste, touch, sight, smell, hearing, connect us to everything around us.  Let’s look at what that means while recovering from DIEP flap breast reconstruction during your hospital stay. Tastes The taste that you have in your mouth post-surgery can only be described by the individual.  My perception is one of a medicinal, antiseptic taste.  You have been anesthetized for a long period and the drugs used will linger on the tongue.  Your mouth will be dry and you will not be allowed fluids of any kind Continue Reading →