DiepCjourney®

Prosthetic Nipples After Non-Nipple Sparing Mastectomy: an Option for All

Posted on October 8, 2019 by Terri

A Guest Blog By Naturally Impressive, LLC Some women are able to successfully do nipple sparing mastectomy and some are not, for a variety of reasons. Many of us are surprised to find out how emotional it is to look in the mirror and see a missing nipple (or two!). It’s almost like our reflection is shouting back at us “You’ve had cancer” which can hinder our growth into a more positive self-image. Most women are aware of the options of surgical nipple reconstruction or nipple-areola tattoos, but an option that is less known and often overlooked is nipple prosthetics as a short or long term option. For any of these scenarios, consider Naturally Impressive nipple prosthetics as an elegant way to “have nipples” that look very real and stay on securely for weeks. You want nipples, but aren’t sure which choice yet. You plan to have surgical nipple Continue Reading →

DiepCFoundation attends the GRYT Virtual Cancer Conference

Posted on October 2, 2019 by Terri

I have attended a number of conferences as a patient advocate since opening DiepCFoundation in 2016. Traveling takes time and financial resources. I am happy to share with you a virtual conference you can attend from the comfort of your home. Come with me as DiepCFoundation attends The GRYT Virtual Cancer Conference held Saturday, October 5th, 2019. How to Participate in the GRYT Virtual Cancer Conference The conference will be “open” from 8am-9pm Eastern Standard Time. During this time, you can listen to a variety of speakers and attend breakout sessions from a number of organizations across the cancer community. You can also visit the Exhibit Hall to interact one on one with the hosts of the virtual booths. They will be available during various times of the day to answer questions from participants. Ongoing Resources after the GRYT Virtual Cancer Conference There is an added advantage and ongoing resources Continue Reading →

What is Breast Reconstruction Awareness Day?

Posted on September 28, 2019 by Terri

Each year in October, a day is set aside to provide education to women and men about what options are available for breast reconstruction. Medical practices, plastic surgeons, and organization across the country host various events inviting those who need resources and information about breast reconstruction. Attendees to BRA Day events include those affected by breast cancer. Let’s take a closer look at topics covered and answer the question of what Breast Reconstruction Awareness Day is and the information it provides. Options for Breast Reconstruction Autologous breast reconstruction: Using the patient’s own tissue to reconstruction the breast. Implant-based reconstruction: Using an implant filled with silicon or gel to recreate the breast. Autologous tissue and implant combined I had autologous, DIEP flap breast reconstruction. The lower tummy tissue is disconnected along with the underlying blood vessels (deep inferior epigastric perforators). It is then reconnected to the breast area to create soft Continue Reading →

My Journey with Breast Cancer

Posted on September 16, 2019 by Terri

My journey with breast cancer began as a 6 year old little girl that watched her mother battle the disease in May of 1987. My mom didn’t undergo breast reconstruction (I don’t even know if they gave her the option) so she remained flat after a single mastectomy was performed followed by chemotherapy. In May 1991, the disease returned, and it has metastasized to her bone. She ultimately succumbed to the disease 2 ½ year later in December of 1993. I was 13 years old. I spent a majority of my 30’s undergoing genetic testing, scans, self-breast exams, and biopsies at the recommendation of various physicians including my ob-gyn and a hematologist I had visited due to iron deficiency in my first pregnancy. 2 biopsies had already come back negative. Then on Thursday, November 15th after having undergone a 3rd biopsy on the same breast, I got the call that Continue Reading →

Patient Advocacy at Plastic Surgery the Meeting

Posted on September 14, 2019 by Terri

Preparations begin for the fourth year in a row for me to attend PSTM, Plastic Surgery the Meeting in San Diego. This is the annual national conference of plastic surgeons both nationally and internationally to present the latest in plastic surgery techniques. It includes all aspects of plastic surgery, including aesthetic and reconstructive practices. My patient advocacy at Plastic Surgery the Meeting will focus on breast reconstruction. The Value of Social Media and Patient Advocacy at Plastic Surgery the Meeting The first year I attended I was the tenderfoot, the novice, wandering the expansive convention center in downtown Los Angeles not even knowing the layout, what sessions I could attend, or the flow of the conference. I opened my nonprofit, DIEPCFoundation.org the month before I attended my first PSTM in September of 2016. Many attendees did not know who I was. However, they recognized me because of my presence on Continue Reading →

Trust in your Breast Reconstruction Surgeon

Posted on August 30, 2019 by Terri

How do you know when you have complete trust in your breast reconstruction surgeon? I can share my experience, but I am not you. My breast cancer experience was unique to my circumstances. It was my second occurrence of breast cancer. I had a double mastectomy and for seven long months lived without my breasts. Then I had what is known as delayed DIEP flap breast reconstruction. I honestly felt like a mangled mess the day I first saw my plastic reconstructive surgeon for my initial consult. I had skin sparing, nipple sparing mastectomy. Looking down at the folds of skin laying on my now breast-less chest wall always made me towel off quickly after each shower to put something over the area left marred by breast cancer. Each side of my chest looked different since I had radiation twelve years previous on my left side only. Scarring, tightness, and Continue Reading →

Breast Reconstruction From the Clinic to the Canvas

Posted on August 16, 2019 by Terri

It is a remarkable patient experience from the clinical consult for breast reconstruction to the day the plastic surgeon begins the process of rebuilding a patient’s breasts. Whether you have breast cancer or are having a prophylactic mastectomy to reduce your risk of getting breast cancer, breast reconstruction begins the day of your initial clinic visit. It culminates the day of surgery, on the canvas, the skin and tissue your plastic surgeon has to work with. The Journey from the Clinic to the Canvas A plastic surgeon begins to look at all aspects of the canvas. They work with different coloration from pale white to the deepest hues of browns and everything in between. Is the canvas rough, smooth, or does it have its own unique characteristics; previous scars, moles, stretch marks? What is the suppleness of the skin, the canvas? The surgeon might be working with young, taut skin, Continue Reading →

Patience and Persistence: Pregnancy Post-DIEP – Part 1

Posted on August 3, 2019 by Terri

When I found out in September 2014 my cousin had been diagnosed with breast cancer and subsequently found out in January 2015 that I am positive for the BRCA1 gene mutation, I felt like time was not on my side. At the time my daughter was four years old and I had dreams of a second child. However, my husband and I didn’t feel it was the right time to try. Fast forward to early 2016, the time was finally right, and we began to try for baby number two. We tried for two years with no success. We even saw a fertility specialist and confirmed that we had all the right parts in all the right quantities to have another baby, we just needed more patience and persistence: pregnancy post-DIEP – part 1. By Spring 2018 I was wrapping up a Master’s degree and decided I just couldn’t wait Continue Reading →

Allergan Textured Implant Recall

Posted on July 25, 2019 by Terri

Why the Recall for Allergan Textured Implants? There has been recurrent media coverage over the past year about a rare subtype of lymphoma that has been diagnosed in a small but increasingly reported number of women who have textured implants. It is called breast implant-associated anaplastic large cell lymphoma (BIA-ALCL). From the FDA website: BIA-ALCL is not breast cancer – it is a type of non-Hodgkin’s lymphoma (cancer of the immune system). In most cases, BIA-ALCL is found in the scar tissue and fluid near the implant, but in some cases, it can spread throughout the body. At this time, the overall incidence of developing BIA-ALCL is considered to be low; however, a BIA-ALCL diagnosis is serious and can lead to death, especially if not diagnosed early or promptly treated. In most patients, BIA-ALCL is treated successfully with surgery to remove the implant and scar tissue surrounding the implant; however, Continue Reading →