Episode 4: Freudenspanne, the Real Reason We Want to Live Longer

I recorded Episode 4: Freudenspanne, the Real Reason We Want to Live Longer, in February of 2022. But I came to realize how timely this interview is as I prepare to attend the London Breast Meeting 2023. I have been asked to speak on a topic closely related to what my podcast guest, Zack Varkaris and I chat about.   I have been asked to speak on the topic of the impact of lifestyle factors on breast cancer risk and survivorship: nutrition, exercise and beyond. As I listened to this podcast again while on the elliptical today, it truly resonates with me as I prepare to leave for London. So much of what Zack speaks about, finding joy in life, healthy eating, exercise, who we connect with, our lifestyle choices, is pertinent to the importance of embracing these choices in breast cancer survivorship. How I Learned to Embrace the Philosophy of Continue Reading →

“The Patient Voice Has Been Heard!”

This was a huge week in the world of patient advocacy. Across social media airwaves, we learned that the S-codes for autologous breast reconstruction will be retained. It was a monumental accomplishment achieved because of the efforts of many organizations, surgeons, and breast cancer survivors across the United States. The title of this blog, “The Patient Voice Has Been Heard”, is a quote from someone who is a huge proponent of patient advocacy. I will reveal who the quote is from at the end of this blog. The Centers for Medicare and Medicaid (CMS) held a public hearing on June 1 of this year after a great deal of concern regarding news that S-codes covering autologous breast reconstruction would be sunset on December 31, 2024. The time frame alone struck fear in those planning reconstruction like DIEP flap. The victory hearing this decision was reversed by the voice of many Continue Reading →

We are Not Sleeping: Protect Women’s Health and Access to DIEP Flap

The publish date of this blog is July 22, 2023. If you look at the 2023 Congressional Calendar, you will find a “white out” section in the month of August. The United States Senate and House will both be on summer recess. I wish to inform all of Congress that we are not sleeping and continue our work to protect women’s health and access to DIEP flap. When faced with breast cancer and loss of breasts, there are several decisions to make. One of the most important decisions is whether to reconstruct your breasts or remain flat. Either way, it is a women’s choice and right to do so after the effects of a breast cancer diagnosis. DIEP flap is the most advanced, and in fact the best medical choice for reconstruction for many women. It is in danger of not being available to many and we are concerned. Our Continue Reading →

Democratization in Microsurgery: The Proximie System

Democratization is a noun. The meaning of democratization as it pertains to microsurgery is the action of making training and education available through technology, in this case, microsurgery in breast reconstruction. The chosen field of microsurgery requires hours of training and practice. Observing colleagues perform this sophisticated and complex surgery increases their own skill set with the primary goal being improving patient outcomes in breast reconstruction. My guests are going to discuss their cross-continental experience working live in the operating theater practicing democratization in microsurgery using the Proximie System. An Introduction of the Microsurgeons Using the Proximie System I invited back to the DiepCJourney podcast two internationally known microsurgeons. Dr. Joe Dusseldorp practices in Sydney, Australia and is a fellow of the Royal Australasian College of surgeons. He has a keen interest in microsurgery and did his training overseas to achieve this status. He is also trained to do robotic Continue Reading →

Introducing BulbPendant for Drain Management During Breast Surgery

The perfect solution for the management of Jackson Pratt bulb drains. From the HandandHand Medical website Successful recovery depends on the ability to heal without worry. But as physicians, patients and caregivers know, bulb drains are incredibly stressful. After surgery, the bulbs are loose, and patients do not know what to do with them. Drains can also become dislodged, requiring another procedure to replace them. BulbPendant for drain management during breast reconstruction not only solves these problems it relieves patients of the stress of dealing with bulb drains. Eliminating learning curves is a huge advantage. They (BP) are simple, so intuitive, it’s self-explanatory fitting 99% of all patients. The patient simply bows their head, keeping their elbows down at their sides while the neoprene band slides over their shoulders. The drain bulbs insert into the mesh pedant and easily clip into place, 30 seconds and you are done. BP is designed Continue Reading →

Episode 20: Planning Your Breast Reconstruction

You have been diagnosed with breast cancer or find you are at high risk of getting breast cancer and are facing a mastectomy. Now what? If you choose to reconstruct your breast what does this process look like? Dr. Santosh Kale, MD, MBA is my guest on Episode 20 and planning your Breast Reconstruction, of the DiepCJourney podcast . He is a board-certified Plastic and reconstructive microsurgeon who practices in Gahanna, Ohio at Midwest Breast and Aesthetic Surgery outside of Columbus, Ohio. Along with his team at Midwest Breast he specializes in breast reconstruction (implant and tissue-based), aesthetic breast surgery, body contouring, and lymphedema surgery. Patient Considerations in Planning Their Breast Reconstruction Patients are inundated with information at the beginning of a diagnosis or finding they have a genetic mutation. They see an oncologist, breast surgeon, plastic surgeon, radiologist, and other medical specialists. Where does a patient begin the research and planning for their Continue Reading →

Cancer Survivors Day 2023

I did not title this blog “National Cancer Survivors Day” for one reason. Cancer is an international disease. How it is treated, the access to care, the stories of cancer survivors are global. We should celebrate every cancer survivor around the world, every day. I am glad there is one day set aside to honor us and bring awareness to what being a cancer survivor is. I salute all of us this year on Cancer Survivors Day 2023. Living “With a History of Cancer” Many are confused by the word ‘survivor’, but I feel this is a well-defined statement. There is a website dedicated to Cancer Survivors Day. This is the statement from their website. According to the National Cancer Survivors Day Foundation, administrator for the celebration, “A ‘survivor’ is anyone living with a history of cancer – from the moment of diagnosis through the remainder of life.” National Cancer Continue Reading →

Education about DIEP Flap: One Simple Rule

Can we assign one simple rule regarding education about DIEP flap breast reconstruction? Yes, this one simple rule is to listen. This is where it begins. I have learned from patients and surgeons that listening is the first action required to educate. It reveals what is important for patients and what they desire to understand about the process and decision to have DIEP flap. I have learned from surgeons it is important for patients to take the time to listen to surgeons to understand what they can achieve for a patient in a DIEP flap consultation.   My Introduction and Education about DIEP Flap I was a student in April of 2014 during my second diagnosis of breast cancer. In the months following my double mastectomy I did what I now tell others to do. “Do your homework to find the right plastic surgeon”. I listened to all breast reconstruction Continue Reading →

My Letter to CMS

I am a two-time breast cancer survivor. My first diagnosis I had left chest radiation that left me with tethered tissue that affected my range of motion and ability to sleep on my left side. Because of this, DIEP flap was the only safe breast reconstruction option for me. Had I had implants along with an expander placed first, I ran a very high risk of infection and further breakdown of the tissue due to the radiation. This is my letter to CMS preserving women’s right to choose DIEP flap. Instead, my highly skilled micro-surgeon removed a great deal of the scar tissue that resulted from the radiation and replaced it with new, soft tissue from the DIEP flap he performed on me twelve years after my first diagnosis. I now lay comfortably on my left side. Additionally, my range of motion is greatly improved. Patient Stories to CMS I Continue Reading →

Women I Know and Admire

May brings many celebrations that honor women. It is Mother’s Day weekend, but I have seen so much more on social media this month celebrating women. There are many women I know and admire, and I wish to celebrate them. The Mothers we Know and Admire They are not all with us, which gives me an even greater sense of appreciation that my ninety-two-year-old mother is still quite well and living. Admiration does not begin to embody all my thoughts and feelings for this woman. Not all mothers are admired through life and even after they have passed. It is the way of our fragile and emotional human nature. But for those who have been there for us you deserve some kudos and few more as we celebrate Mother’s Day this weekend. Wiping tears, listening, making tough decisions on behalf of their children, working exhaustively at home and in their Continue Reading →