Category: News

#SABCS 2017 through a Patient Advocate’s Lens

Posted on by

#SABCS 2017 through a Patient Advocate’s Lens #SABCS 2017 through a patient advocate’s lens is about my experience at the San Antonio Breast Cancer Symposium (#SABCS) 2017.  Two descriptive words that sum it up quickly from my personal standpoint are, exhilarating and exhausting.  I am an advocate for breast reconstruction options after mastectomy.  That is my wheelhouse so I carefully contemplated the benefits of attending.  But, there is no breast reconstruction without breast cancer.  I found it to be a profound conference on many levels both intellectually and emotionally and well worth the experience. A Robust Patient Advocacy Program My decision to attend was solidified after learning about the robust patient advocacy program that SABCS has.  Each evening, after the general sessions, patient advocates would gather to listen to selected “hot topics” of the day.  We could listen, interact, and ask questions. There were notable speakers and leaders in the Continue Reading →

Recap #PSTM16

Posted on by

Recap #PSTM16 Plastic Surgery the Meeting may seem like a distant memory but a recap of #PSTM16 from a patient advocate standpoint summarizes the value of my first experience as an attendee.  It was a fast and furious weekend for me at the Los Angeles Convention Center since I was only able to attend Friday through Monday.  I scheduled classes to attend, met with plastic surgeons, and walked the vendor floor learning about products specific to breast reconstruction. The Educational Programs The first class I attended was one that focused on Cultural Competence in plastic surgery.  I wanted to step outside the box of breast reconstruction a bit and understand the broader world of plastic surgery.  It was a valuable instructional course.  The discussion given by a variety of plastic surgeons at this session focused on recognizing and embracing cultural diversity in the workplace among plastic surgery co-workers as well Continue Reading →

Fairness in Reporting, Breast Reconstruction

Posted on by

Fairness in Reporting, Breast Reconstruction An on-line article was published on October 31, 2016, in The New York Times entitled, ‘Going Flat’ After Breast Cancer.  This is my commentary on that article after having survived breast cancer twice and choosing to reconstruct my breasts with my own tissue.  I want you to focus on the words “reconstruct my breasts”.  They are my breasts.  Every part of my breasts are me, my own tissue, my own blood source, my own skin, my own nipples.  My own breasts contained cancer cells and have been removed through the skillful hands of a breast surgeon and rebuilt by the skillful hands of a microsurgeon. The breasts I had before breast cancer were mine.  The breasts  I now have after breast cancer are mine.  Once my breasts had cancer.  Now, my breasts do not have cancer.  Therefore, I respectfully disagree with the last part of Continue Reading →

Pink & Blue Colors of Hereditary Cancer

Posted on by

Pink & Blue Colors of Hereditary Cancer I am not a BRCA gene carrier but tonight I will be hosting the premier of the movie, Pink & Blue Colors of Hereditary Cancer, in my city.  What is my interest then, you might ask? My Journey Through Genetic Testing I was diagnosed with breast cancer for the second time in 2014.  I had a double mastectomy because the cancer was in both breasts this time.  I knew a double mastectomy was the best course of action for me after asking, educating myself, researching, and having that all important, shared decision making discussion with my health care team.  I was diagnosed with breast cancer at an early age the first time. This was my second occurrence.  Those two criteria alone were enough evidence for my breast surgeon and oncologist to recommend that I have genetic testing.  From the National Cancer Institute: Several Continue Reading →

Being an Affiliate for Breast Reconstruction Awareness Day

Posted on by

Being an affiliate for Breast Reconstruction Awareness Day Many physicians, individuals, and organizations across the United States and the world choose to be affiliates for Breast Reconstruction Awareness Day.  Why?  A breast cancer diagnosis can be devastating, overwhelming and life altering both emotionally and physically.  We know that one in eight women will be diagnosed with some type of breast cancer in 2016 and well over 2,000 men.  Unfortunately, less than 23% of patients know what their options are for breast reconstruction after mastectomy.  That is the answer to why so many have chosen to become affiliates for Breast Reconstruction Awareness Day. “Closing the Loop” on Breast Cancer The message of the campaign is to “close the loop” on breast cancer.  Many women and men face surgery to remove the cancer and this surgery often leads to loss of one or both breasts, and thereby disfigurement.  “Closing the loop” means Continue Reading →

Breast Reconstruction Awareness Day

Posted on by

Breast Reconstruction Awareness Day BreastReconstruction Awareness Day has gone global and that’s great news for breast cancer patients!  The focus of these events is to educate and raise awareness about options for breast reconstruction after mastectomy.  Many of these events are held in the month of October in conjunction with Breast Cancer Awareness Month.  The choice to have breast reconstruction is a very personal one.  It involves a great deal of planning and requires a lot of information to make the best possible decision for each individual patient, both female and male.  It is not for everyone but the key take away and message of the Breast Reconstruction Awareness Day campaign is that everyone has the right to be given the information and to be educated about this topic. Breast Reconstruction after mastectomy is rarely a one-step surgical procedure.  Most reconstruction options require more than one stage.  What are those Continue Reading →

#BreastCancerRealityCheck

Posted on by

#BreastCancerRealityCheck The hash tag #BreastCancerRealityCheck was ushered in on October 1, 2016.  The purpose was to bring awareness to the true reality of breast cancer.  Social media participants were given the opportunity to speak through this hash tag and tweet about how breast cancer has affected them personally, professionally and otherwise.  Here’s what @curmdgeo (AKA Cancer Curmudgeon… love the name!) says about the hash tag. On October 1st, include #BreastCancerRealityCheck every time you tweet your truth. It can be a personal story, a picture, facts that people need but do not get from the sugarcoated coverage of this devastating disease. #BreastCancerRealityCheck Not Over! Ever! October 1st has come and gone.  October has not.  #BreastCancerRealityCheck should be revisited more than once a year, in my humble opinion.  Why?  Because this year alone an estimated 246,660 new cases of invasive breast cancer are expected to be diagnosed in women in the U.S., Continue Reading →

A Tearful Golden Moment at #PSTM16

Posted on by

A Tearful Golden Moment at #PSTM16 I unexpectedly had a tearful golden moment at #PSTM16 the last evening I was there.  #PSTM16 was the first conference I have attended since opening a non-profit 501c3 Foundation to support and empower patients with education about options in breast reconstruction.  I will have many more blogs to write about my experience at the conference but this was truly a golden moment for me in more ways than one. An Evening of Celebrating Twitter Connections and Friendships It was at one of many special events that occurred at the conference.  This particular event was arranged by Dr. Karen Horton, one of the many talented plastic surgeons I engage with on Twitter and other social media venues to push out valuable information to patients interested in breast reconstruction.  The event was sponsored by Allegan and it was an absolutely lovely evening.  Allergan made it memorable Continue Reading →

Goals: #Plasticsurgery #BreastReconstruction, #PSTM16

Posted on by

Goals: #PlasticSurgery, #BreastReconstruction, #PSTM16 are what I’ve been rolling over in my mind for the past few days.  Tomorrow, September 23, 2016, bright and early as the sun rises I will board a plane to Los Angeles to the largest plastic surgery convention of the year, Plastic Surgery the Meeting 2016, #PSTM16. My goals for the meeting Attend educational events focused on the breast reconstruction aspect of plastic surgery. Explore and understand the latest practices and developments in breast reconstruction. Engage with vendors to learn about their products. Ask these vendors why their product is so important in the breast reconstruction process. Catch up on any new legislative news pertaining to #BreastReconstruction. Learn as much as I can about tips in networking and Social Media for #BreastReconstruction and #plasticsurgery. Report back to patients in blogs about what I have learned at the meeting. Meet more board certified ASPS surgeons who Continue Reading →

My #REASONS2STANDUP

Posted on by

What are my #REASONS2STANDUP?  Tonight is the #StandUp2Cancer telecast.  According to a live interview today on Facebook with Katie Couric, this is an effort of collaboration among scientist and not one of competition.  She was seen with a colon cancer patient and Dr. William Nelson, Director of the Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins.  This is a night to support and honor all those facing cancer. I was actually told about this movement from my oldest son soon after my second cancer diagnosis in May of 2014.  I have to say I was a bit misty-eyed when I received a text from him asking me if I was following the group on Facebook. This is my #REASON2STANDUP!  Two years ago, we were in doubt if I would ever see his then unborn son, my grandson.  Two years ago, I watched my youngest son describe my 2nd diagnosis as Continue Reading →