Category: Podcast

Episode 2: Sexual Health Needs After Cancer

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Dr. Don Dizon is our guest on season 2, Episode 2: Sexual Health Needs After Cancer, of the DiepCJourney podcast. What are we discussing? Sexual health needs after cancer, a topic patients often have to bring up themselves to discuss with health care providers. Dr. Dizon tells us why this is the case and empowers patients with information to talk about this with specialists in cancer care regarding sexual health needs after cancer.  Don S. Dizon, MD, FACP, FASCO is Director of the Pelvic Malignancies Program and Founder of the Oncology Sexual Health First Responders Program, Lifespan Cancer Institute. He is the director of medical oncology at Rhode Island Hospital. Be sure to check out the DiepCFoundation YouTube video on the same topic with Dr. Dizon. What is the Definition of Sexual Health Needs After Cancer? I begin by recognizing the topic of sexual health is not often spoken about in clinic. Continue Reading →

Episode 5: A Young Breast Cancer Survivor Advocating for Survivorship

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Hil Moss is our guest on Season 2, Episode 5 of the DiepCJourney Podcast. A young breast cancer survivor (diagnosed at 28), Hil is an active patient advocate, mentor, and writer in the cancer community, and dedicates her time to raising awareness around the importance of early detection and longitudinal survivorship care. She is also an MBA/MPH Candidate at Yale University, with a focus on entrepreneurship and innovation in cancer care. She made the choice to leverage her own tissue to reconstruct her breasts having DIEP flap breast reconstruction. Hill shares her story from diagnosis, breast reconstruction, and through to her recovery. She shares her connection to the Breasties community and the advocacy work they share. Our call to action in Episode 5 with Hil, a young breast cancer survivor, is to begin doing breast self-exams at an early age. A breast self-exam for breast awareness helps you understand changes Continue Reading →

Episode 7: Lobular Breast Cancer

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In episode 7 of the DiepCJourney podcast we are discussing lobular breast cancer, also known as invasive lobular carcinoma (ILC), with Leigh Pate. Lobular breast cancer is the second most commonly diagnosed type of invasive breast cancer. Often an understudied subtype of breast cancer I ask Leigh to join me on the podcast to help our followers understand more about it. Leigh founded the Lobular Breast Cancer Alliance (LBCA) in 2017 and continues to work as a research advocate in the breast cancer and ovarian/fallopian tube cancer community. Leigh and I both have had lobular breast cancer. I have tucked my diagnosis, both of them, away in files and don’t pull them out to often. This is my way of coping with two diagnosis of breast cancer. Connecting with Leigh, precipitated my need to talk about this. Our goal is to explain lobular breast cancer to patients who have it Continue Reading →

Season 2, Episode 1: Breast Reconstruction Awareness in Australia

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It is with great honor I present Season 2, Episode 1: Breast Reconstruction Awareness in Australia of the DiepCJourney podcast. Connections made with patients and surgeons in the world of plastic surgery undoubtedly serve the purpose of improving patient outcomes. It is such a pleasure to be able to present this information and education on a global level from this fine Australian microsurgeon who has ignited breast reconstruction awareness in Australia. Dr. Joe Dusseldorp Ignites Breast Reconstruction Awareness in Australia The overriding mission through these global connections is “upping our game”. My guest, Dr. Joe Dusseldorp has certainly exhibited this. Not only is he an internationally trained microsurgeon, but he is a TEDx Talks presenter on personalizing medicine and how technology is making the incurable curable. I’m passionate about solving some of the difficult problems in plastic surgery, and applying the best that emerging technology can offer to constantly advance Continue Reading →

Episode 19: Delayed and Revision Breast Reconstruction

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Dr. David Light, MD, of NYBRA Plastic Surgery, is a board certified, fellowship trained plastic surgeon with a dual practice focused on breast reconstruction and aesthetic surgery. Our topic on Episode 19: delayed and revision breast reconstruction. Here is the summary of our conversation on the DiepCJourney podcast. Telemedicine for Delayed and Revision Breast Reconstruction Dr. Light performs over three hundred primary and revision breast surgeries per year. Besides DIEPflap, he also performs other microsurgical specialty flaps for breast reconstruction including the SIEA, PAP, LTP, and GAP flap. His practice also includes implant-based breast reconstruction. Microsurgery is a unique subspecialty of plastic surgery requiring further training. It involves anastomosis or tying together of blood vessels among other skills. For this reason, access  to microsurgeons is limited across the U. S. Many patients must travel to have autologous breast reconstruction, reconstruction using your own tissue with a blood source. Microsurgeons have Continue Reading →

Episode 17: Journey of the Caregiver

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Caregivers are called upon in the most unexpected ways through disease, an accident, surgery, or treatment. This is the story and journey of a thousand miles, two breast cancer diagnoses, multiple surgeries, and the story of how my son, Brian, taught me more about this role and what it means to be a compassionate caregiver on Episode 17: Journey of the Caregiver, on the DiepCJourney podcast. No Instruction Book for a Caregiver When a friend or loved one faces a health event and you know they will need assistance, your call to duty to be a caregiver begins. There is no payment for this role and certainly no instruction book. Both the patient and the caregiver shift their daily routine and begin to think in terms of strategy to help the patient. Considerations can include any or all of the following: This can all become overwhelming and require a great Continue Reading →

Episode 24: Sexual Health Program for Cancer Patients

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Sharon Bober, PhD, Psychologist, Dana-Farber Cancer Institute, and Assistant Professor in the department of Psychiatry at Harvard Medical School, chats with us on this episode of the DiepCJourney podcast. I met Sharon through the Scientific Network on Female Sexual Health and Cancer where she is the current chair of this organization. Our topic in this blog summary of the podcast; sexual health program for cancer patients. Why Sexual Health is not Often Talked About I feel the intimate and sometimes uncomfortable nature of the topic, sexual health, is one of the major reasons it is not often talked about at consult for cancer patients. Dr. Bober points out very few medical professionals have formal training in sexual health. Further, she points out managing sexual disfunction remains outside the bounds of normal conversation. A noticeably clear statement she makes is, “We live in a culture that is suffused with images of Continue Reading →

Episode 14: Nipple Graft, an Innovation in Breast Reconstruction

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New innovations are born out of passion, vision, clinical trials, and a scrupulous process of providing patient safety. In this episode of the DiepCJourney podcast, I speak to Billy Heim, COO of BioAesthetics. He is part of a team who developed an innovation in breast reconstruction, the NAC Graft, nipple areola complex graft. Here is the summary of Episode 14: Nipple Graft, an Innovation in Breast Reconstruction, of the DiepCJourney podcast. I am joined by Minas Chrysopoulo, MD, FACS, an internationally recognized expert in breast cancer reconstruction and shared decision making. He is president of PRMA (Plastic Reconstructive Microsurgical Associates). Dr. Chrysopoulo founded Toliman Health and is the creator of Toliman’s flagship app, Breast Advocate®, the world’s first shared decision-making app for breast cancer treatment and breast reconstruction. Saving the Nipple/Areola in Breast Surgery Dr. Chrysopoulo points out that a lot depends on the specific diagnosis. If there is an Continue Reading →

Episode 16: Options for Breast Reconstruction after Mastectomy

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When a person faces a mastectomy due to breast cancer, they have options to reconstruct their breasts. The options include using an implant, using the patients own tissue, or choosing to remain flat with aesthetic flat closure. Dr. Steven Pisano of PRMA, Plastic Reconstructive Microsurgical Associates, in San Antonio, Texas discusses all the options for breast reconstruction after mastectomy in Episode 16 of the DiepCJourney podcast. The Voice of an Expert in Breast Reconstruction after Mastectomy Dr. Pisano is one of the original founders of PRMA in San Antonio. He started the practice in 1994 with partner Dr. Peter Ledoux to serve the San Antonio area with general breast reconstruction surgery. Since that time, they will be on track by the end of 2021 to perform over ten thousand flap breast reconstruction surgeries for patients from all over the world. They now have a team of eight highly skilled microsurgeons Continue Reading →

Episode 18: Breast Cancer, the Patient Voice in Social Media

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Sharing your story as a breast cancer survivor on social media requires authenticity, creativity, vulnerability with keen knowledge of navigating the responsibility of telling stories that benefit the reader. I have learned a lot from my guest on episode 18, breast cancer, and the patient voice in social media with Marie Ennis O’Connor. She guides many breast cancer writers as a social media consultant, keynote speaker, and digital storyteller. Her creative work can be found at Journeying Beyond Breast Cancer. Marie’s work spans the globe, and her impact creating a cross continental family of writers is immeasurable. I am excited to share the summary of the DiepCJourney podcast for her presentation, The Weekly Roundup, on Twitter. How Marie Began to Use her Patient Voice Marie was diagnosed with breast cancer in her early thirties. The two myths she faced and shares with us are: She only knew breast cancer to Continue Reading →