Category: Emotional Recovery

Your spouse/partner; telling your children; telling your parents and siblings; reaching out to friends; friends who latch on for the drams of it all; when to ask for help; how to be grateful for help

Wonder and Happiness: Pregnancy Post-DIEP – Part 2

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Emily is one of over 5,700 global members of the DiepCJourney Facebook group. I am honored to share her story of wonder and happiness: pregnancy post-DIEP – Part 2. More than a year later, I am finally prepared to reflect on the full experience of having a child after DIEP flap reconstruction. To recap, I am BRCA1+ and had a prophylactic bilateral mastectomy with DIEP flap reconstruction in June 2018 at the age of 36 and phase 2 corrective surgery with fat grafting in October 2018. I became pregnant with my 2nd child in April 2019 which left me wondering. At 38, after a full-term pregnancy with no complications, I was induced and delivered a healthy 7-pound 4-ounce baby girl on December 18, 2019, exactly one week after her sister’s 9th birthday. I wondered whether pregnancy would mess up my surgeon’s beautiful work. I am happy to report to all of Continue Reading →

Dealing with the Aftermath of Breast Cancer and Surgery

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There is no instruction book for this. You are diagnosed with a potentially life-threatening disease. Yes, I know, our survivor rates and treatment have both improved over the years. But what those years mean to a person going through treatment or healing from surgery has an entirely different meaning. It is a difficult Journey dealing with the aftermath of breast cancer and surgery. Dealing with Breast Cancer Emotions Take a bag of rocks, all different sizes, colors, and shapes. Put them in a box and shake them. Shake them loud and hard. It is sometimes the internal noise, like shaking this bag of rocks, that gets to you after a breast cancer diagnosis and surgery. Anger, fear, unknowns, disbelief, shame, guilt. There is your bag of rocks. You feel all of these emotions, sometimes more. Were you equipped to deal with this? Did you expect this to happen in your Continue Reading →

The Power of Patience in the Pandemic

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Do you feel like you are tapped out as we enter into the second half of 2020 continuing to adapt to a new kind of society since the coronavirus outbreak? I seem to have felt it more this week than any other. The common question starting most conversations seems to be, “How are you doing?” This is really asking, “How are you holding up through the pandemic?” How are you practicing the power of patience in the pandemic? A bit of Pandemic History The plague, a fatal infection arrived in Constantinople in 541 CE, Common Era, sometime used in place of AD. The plague spread across Europe, Asia, north Africa, and Arabia killing nearly 30 to 50 million people. This was half the world’s population.    The Black Death, a pandemic in Europe in 1347, took a shocking 200 million lives all in just four years. Science, not being as Continue Reading →

Please Do not Tell Me Not to Worry

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You arrive for your yearly mammogram, CT scan, ultrasound, or blood work. It could be any number of medical tests to determine if you have breast cancer, your breast cancer has metastasized, you are called back to have further testing, the list goes on. The appointment can elicit worry days before when you view it on your calendar knowing it is coming up. Then you wait for results. Or you wait a few more days for a recall on a mammogram when they “find something suspicious” that was not there a year ago. What do you say to someone who shares this news with you? Did you tell them not to worry? They are probably thinking, “please don’t tell me not to worry”. Mammograms can Cause Worry There are those who are having their first mammogram ever. Whether you are 24, 40 or 84 is really does not matter. The Continue Reading →

Happy Mother’s Day Mom with a Grateful Heart

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I asked my Mom a pretty big favor in a recent phone call to her. “Mom, I would like to interview you for my Mother’s Day blog.”  There was a pause at the other end of the line. Knowing how important her privacy is to her, I reminded her I had written a couple of blogs about Dad. Mom remembered and found them in a file. She reminded me she kept a file about all the things I do in my patient advocacy work. I had no idea she had a file. We scheduled a time for me to interview her over the phone. This blog is for you Mom. Happy Mother’s Day with a grateful heart. When Emotions Run High Mom endured hearing, watching, and caring for me through two breast cancer diagnosis. The first diagnosis we lived close enough for her and Dad to drive and make more Continue Reading →

DiepCJourney Celebrating Five Years in Unprecedented Times

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Five years ago, on March 17, 2015, I published my first blog for DiepCJourney.com. I felt excited and anxious. Today, on March 17, 2020, those feelings, excitement and being anxious manifest themselves in a completely different way. We are at the tip of the iceberg in the United States as we grapple with how to deal with a global pandemic, the worldwide Coronavirus outbreak. This blog will be marked as a time capsule. I had no idea DiepCJourney would be celebrating five years in unprecedented times. I had an idea what I might write in this blog as 2020 rolled around knowing it was the fifth anniversary year. But now things have changed. I want to share my concerns and gratitude to all of the amazing readers over the past five years. My Concerns for Readers of DiepCJourney at this Unprecedented Time The blog continues to grow and evolve. What Continue Reading →

Breast Reconstruction Photo Sharing: Should We?

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This is a multifaceted question with a range of answers. I face this question a lot. Those who are considering breast reconstruction want to know what their post-surgery body and breasts will look like. I know I did. There are a variety of situations those affected by breast cancer are portrayed in media and photography. I want to share my personal thoughts, tell you a touching story, and consider the answer to the title of this blog, “Breast Reconstruction Photo Sharing: Should We?” Public Breast Reconstruction Photo Sharing The media and those in business have an end result, to reach a wide audience and to draw them in. This is often done through artistic and visual enticement. There is a certain curiosity and arousal that is the end goal to draw people into an article, event, photo, or social media post. I understand the business aspect of this, but I Continue Reading →

Breast Cancer: When All is not Merry and Bright

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I do believe remaining positive is an integral part of breast cancer survivor-ship and healing. I hear others say it frequently. However, there are times when all that encompasses this disease as a patient advocate sucks you under. Perhaps it is the short days as the Winter Solstice arrives. The long winter nights glow with holiday lights. At the same time, the events of this month have made me realize with breast cancer, not all is merry and bright. Metastatic Breast Cancer I have spoken with too many friends this month who are stage four metastatic. Some attended the San Antonio Breast Cancer Symposium despite their exhaustion from treatments. They went to make a difference as patient advocates. Even though I didn’t attend this year, it is a grueling conference when you are feeling good. I can only imagine they must have collapsed into their hotel beds at the end Continue Reading →

My Journey with Breast Cancer

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My journey with breast cancer began as a 6 year old little girl that watched her mother battle the disease in May of 1987. My mom didn’t undergo breast reconstruction (I don’t even know if they gave her the option) so she remained flat after a single mastectomy was performed followed by chemotherapy. In May 1991, the disease returned, and it has metastasized to her bone. She ultimately succumbed to the disease 2 ½ year later in December of 1993. I was 13 years old. I spent a majority of my 30’s undergoing genetic testing, scans, self-breast exams, and biopsies at the recommendation of various physicians including my ob-gyn and a hematologist I had visited due to iron deficiency in my first pregnancy. 2 biopsies had already come back negative. Then on Thursday, November 15th after having undergone a 3rd biopsy on the same breast, I got the call that Continue Reading →

Finding Trusted Breast Reconstruction Resources

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You are newly diagnosed with breast cancer, going through treatment, or just found out you carry a gene mutation and are at high risk of developing breast cancer. It seems important to begin  to explore all your options for breast reconstruction. Your mission, finding trusted breast reconstruction resources.   The thought of any surgery is scary to you. You have the information your health care team gave you. Now you want to talk with someone who really gets it but more importantly someone you can trust. Family and friends are there to support you but can sometimes feel smothering. They try their best to help and console you. Sometimes you need time away, to think, to formulate questions, to find firsthand experience about the choices you know you are facing. Can You Find Trusted Breast Reconstruction Resources in Facebook Groups? We live in the age of social media, so you Continue Reading →