Tag: breast cancer

Breast Reconstruction for Stage IV Breast Cancer

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I have embedded a video with my guest Dr. Minas Chrysopoulo, current president of PRMA in San Antonio, Texas on the topic of breast reconstruction for stage IV breast cancer. We share our common thinking that we do not believe we would have been having this conversation ten, or even as recently as five years ago. It is a topic worthy of discussion. Dr. C shares information in the slides to guide those with stage IV breast cancer through the decisional process of considering their options for breast reconstruction. Development of Decisional Apps and Treatment for Stage IV Breast Cancer A convincing motivation for me having this conversation with Dr. C is that he is the developer of the Breast Advocate® app. This free app is co-created by leading specialists and patient advocates. I have been on Dr. C’s advisory team since the inception of the app and have watched Continue Reading →

Volunteers Moving the Mission of DiepCFoundation Forward

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Since before opening DiepCFoundation.org in the summer of 2016 I have been surrounded by volunteers. Being part of a nonprofit organization requires time, talent, and passion. I could not do this without our volunteers. This blog is dedicated to those who have and continue to believe in the mission of the Foundation. Every day I see volunteers moving the mission of DiepCFoundation forward. The First Volunteers for DiepCFoundation It all began with a phone call. Late in the day in February of 2016 the surgeon who performed my DIEP flap breast reconstruction called encouraging me to open a nonprofit foundation. Thank you, Dr. Minas Chrysopoulo, for taking time, for volunteering to make that phone call after your workday in surgery on your way home. I promised him I would begin giving this consideration. A month passed and I was visiting our oldest son and daughter-in-law to help with the care Continue Reading →

Microsurgery and DIEP Flap Breast Reconstruction and all it’s Worth

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I chose this topic for my weekly blog after doing a retrospective look at the writing, interviews, podcasts, and connections I have had over the past few years since having my own DIEP flap breast reconstruction. I love talking about DIEP flap. It is sophisticated and intricate surgery requiring great skill and expertise. I often refer to it as a profession of passion. Patients who choose to undergo this surgery spend long, often agonizing hours searching for a microsurgeon to perform their surgery. They spend equally long recovering from surgery. Thus the topic I have chosen to write about this week: Microsurgery and DIEP flap breast reconstruction and all it’s worth. Microsurgery: A Profession of Passion I am so fortunate that microsurgeons share the story of who inspired them to choose microsurgery. It is a glimpse into the human side of their lives and why they chose to do DIEP Continue Reading →

Benefits of Yoga after Breast Cancer and Breast Reconstruction

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This summary is an interview I had with my former oncologist, and now dear friend, Leona Belle (Dr. Leona Downey, a retired medical oncologist) about the benefits of yoga after breast cancer and breast reconstruction. Because Leona is a breast cancer survivor and has had breast reconstruction she speaks about her own Journey through diagnosis, treatment, surgery, and recovery. A Medical Oncologist Turned Yoga Instructor Leona is a trained medical oncologist. She lived in Tucson, Arizona working in both academic and private practice for ten years. Leona expresses how much she enjoyed being able to help others who were diagnosed going through what is a very challenging time in their lives. She did a pivot after ten years in practice realizing she wanted a slower pace of life and to do something different. Leona retired at a young age and moved to Puerto Vallarta, Mexico with her husband.  Her goal, Continue Reading →

Resilience and Hope in Breast Cancer and Breast Reconstruction

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These seem like very strong words to define one who has been diagnosed with breast cancer or going through breast reconstruction. I believe people in either of these circumstances possess both hope and resilience. There are unpredictable forces in our life that move us forward. I consider resilience and hope in breast cancer and breast reconstruction as two of those forces. Resilience When Diagnosed with Breast Cancer When you hear or read the word, resilience, it seems like a strong word to define someone who has heard the news they have breast cancer. What I am really trying to convey is that whether you think you have resilience or not, you are actively showing that you do. How? By putting one foot in front of the other each moment, each day after being diagnosed. It is not to say you must stay positive, you are being courageous, or acting tough. Continue Reading →

Patient Advocacy in San Antonio

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I am sitting in my office looking out the window at softly falling snow. The cold temperatures of winter have settled in. It is a great day to reflect while sipping on a cup of warm tea after a week at the conference followed by a week spent with family. It is a strong finish wrapping up 2022 and patient advocacy in San Antonio. Patient Advocacy Focus at SABCS The hashtag #SABCS2022 was seen on Instagram, Twitter, and LinkedIn during the first week of December. This was my third time attending the San Antonio Breast Cancer Symposium conference. I was an active part of the Alamo Breast Cancer Foundation (ABCF) Patient Advocacy Program this year. It required a great deal of planning and preparation. The first year I attended in 2016 I was a newbie. I wasn’t even sure if I should be attending after just opening my nonprofit organization, Continue Reading →

Tips for Getting Through the Holidays During Breast Cancer

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I have written about this topic before but each year I seem to learn something new. I hear from other people about being diagnosed or having surgery toward the end of the year. This can throw an extra wrench into holiday plans since so many people celebrate a number of different holidays in December. I learn from them and share my tips for getting through the holidays during breast cancer. My Tips for Managing your Phone Time This Thanksgiving, I gave myself a gift. I called family and close friends in the days leading up to Thanksgiving and told them I was turning my phone off the entire day of Thanksgiving beginning at bedtime the night before. I did not turn it back on until the morning after. They had the ability to get a hold of me in an emergency. I wanted to make sure of that. It was Continue Reading →

Ways of Giving Back

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There are many ways to give back to nonprofit organizations. Whether you are a patient, caregiver, surgeon, individual or corporate entity, or know someone who has been affected by breast cancer, at DiepCFoundation we want to share ways of giving back to the community we serve. Donate Your Time or Share a Testimonial There is nothing more rewarding than standing beside a volunteer at an event we are part of. These are patients who have been through this surgery and know first hand what to say to those who attend these events. We are grateful and will continue to reach out to our volunteers at these events. Writing a Testimonial and sharing it on our social media accounts is so appreciated. You can write it anonymously or we are happy to use your name and tag you on social media. Patients write testimonials telling us that viewing our DiepC Foundation Continue Reading →

Acknowledging Those Who Give Their Time for Breast Reconstruction Patients

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We come to a season of reflection, giving, and gratitude. I want to take a moment to honor all those who give selflessly of their time helping me in my pursuit of educating and supporting those who are affected by breast cancer. Acknowledging those who give their time for breast reconstruction patients is important to me. Those World is Full of Giving People Talk on the street says we have been through a lot the past couple of years. ‘Tis true. I don’t think it is necessary to rehash the events or effect from all that has occurred and shaped our world since early 2020. News headlines inundate us changing our mood, focus, and daily living. And yet, through all of this I continue to witness a world full of giving people. In my corner of the world helping breast reconstruction patients, those giving people seem to come from every Continue Reading →

Opportunities in Patient Advocacy

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I feel so lucky to meet patient advocates who are passionate about their work in various breast cancer communities. Whether we have met in person at a conference, in training, or online I feel the positive impact of their work daily in my work as a patient advocate. I sat down with two of those advocates in this DiepCFoundation educational channel interview to discuss opportunities in patient advocacy. Alamo Breast Cancer Foundation I met Denise Barlow and Sandra Stewart Stanford in December of 2016 at the San Antonio Breast Cancer Symposium after opening DiepCFoundation earlier that year. They both welcomed me with opened arms and guided me through the full week of sessions inviting me to join the patient advocate meetings each evening. It was through them I learned about patient advocacy training at Project LEAD. The Alamo Breast Cancer Foundation was started by Dale Eastman in late 1992-93-time frame. Continue Reading →