Tag: breast cancer

A Celebration of 10K Breast Reconstruction Flaps

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On May 21, 2022, I will be back in San Antonio, Texas for a celebration of 10K breast reconstruction flaps. This event is put together by the plastic surgery group who did my DIEP flap surgery in December of 2014. This day holds great significance for me. I am grateful to PRMA for their fantastic efforts and support putting this 10K race together to celebrate the 10K flap surgeries they have performed for those affected by breast cancer. Thank you to the sponsors who are generously supporting this race. Honoring All the Patients Who Have Chosen Flap Surgery The 10K breast reconstruction flaps race is being held in San Antonio. The real honor goes to ladies across the world who have chosen or are planning flap surgery after being affected by breast cancer and losing their breasts to the disease. Over the years since I started my nonprofit organization, DiepCFoundation, Continue Reading →

Can We Drive Change in Breast Sensation Through Webinar Attendance?

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We have become accustomed to attending online webinars. One I have watched from inception is the iBreastBook webinars. It was designed by oncoplastic breast surgeon Yazan Masannat. He is located in Aberdeen, Scotland. I continually learn from these webinars and appreciate the global presence of presenters and attendees. Yazan is driving change in breast surgery by exploring the latest surgical techniques in breast surgery in these online learning opportunities. The most recent one I attended I ask myself; can we drive change in breast sensation through webinar attendance?” Why is Driving Change in Breast Sensation Important to Me? The title of the webinar I am commenting on is, Mastectomy: What is New. The presenters were an impressive group of international surgeons in breast surgery. They are as follows: I am a patient who has experienced successful return of sensation to my breasts after DIEP flap breast reconstruction. It is equally Continue Reading →

Tribal Unity Sends all the Right Messages in Breast Cancer

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You may be familiar with the long running American television series, “Survivor.” The premise of the show is that each team begins on different tribes. At the end, the real benefits and strength of the team are when the separate tribes join together creating one tribal union. Alliances form and tribes forge through adversity. This is when tribal unity sends all the right messages in breast cancer in my corner of the patient advocate world. This is familiar to me in the world of breast cancer, breast surgery, and breast reconstruction. As a patient advocate, I see a variety of platforms on social media helping communities affected by breast cancer. I watch these separate entities support specific biology types of breast cancer, gender specific breast cancer, ethnic specific breast cancer communities, wellness and survivorship, and the various choices made in the decision process for treatment and surgery. They run a Continue Reading →

Fatigued by Being Affected by Breast Cancer?

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People are affected by breast cancer in many ways. A person diagnosed can be fatigued from treatments. Some effects may seem short-term after finishing chemotherapy, radiation, or having surgery. Those in the metastatic breast cancer community have life-long effects they face for the remainder of their lives. I am speaking of the long-term effects of fatigue and being affected by breast cancer in both of these groups. The Fatigue that Effects Daily Living        Fatigue from breast cancer can come in many forms. You may feel physically fatigued from having surgery or undergoing treatment. It disrupts your body’s system causing it to work overtime during the healing process. As you sit in your chair feeling this way, you may become sad, feeling helpless, as you watch others trying to take care of you when perhaps a week or month before surgery or treatment you were the one taking care of others. Continue Reading →

Episode 24: Sexual Health Program for Cancer Patients

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Sharon Bober, PhD, Psychologist, Dana-Farber Cancer Institute, and Assistant Professor in the department of Psychiatry at Harvard Medical School, chats with us on this episode of the DiepCJourney podcast. I met Sharon through the Scientific Network on Female Sexual Health and Cancer where she is the current chair of this organization. Our topic in this blog summary of the podcast; sexual health program for cancer patients. Why Sexual Health is not Often Talked About I feel the intimate and sometimes uncomfortable nature of the topic, sexual health, is one of the major reasons it is not often talked about at consult for cancer patients. Dr. Bober points out very few medical professionals have formal training in sexual health. Further, she points out managing sexual disfunction remains outside the bounds of normal conversation. A noticeably clear statement she makes is, “We live in a culture that is suffused with images of Continue Reading →

Staying Connected in 2022

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We have rolled over another year of the calendar. Living through two years of a global pandemic has not been easy for any of us. There are traits we have learned about ourselves we did not know we were capable of, like patience and persistence. None of us anywhere on Earth were prepared to deal with all the rapid changes we continue to make because of the pandemic. And yet we have somehow stayed connected. I feel so strongly and see such immense value in staying connected in 2022. Staying Connected Through social media Whether you have one social media account or many, whether you have actually met your social media friends in person or not, Twitter, Facebook, Instagram, LinkedIn, and others, these platforms connect us in valuable ways. I think there are two important questions to ask yourself when using social media. The answer to question number one should Continue Reading →

Is Compassion an Action?

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I promised a dear friend I would write a blog on this topic after a conversation we had online one morning while sipping coffee. We spoke about the numerous ways folks have been off put by the circumstances we have all encountered over the past two years during the global pandemic. It seems fitting to write the blog during the holiday season and ask ourselves the question, is compassion an action? Compassion and the Origin of the Word We think of the word compassionate as being a verb. But the full meaning of the word “compassion” from Meriam’s dictionary states the definition of compassion as a “sympathetic consciousness of others’ distress together with a desire to alleviate it. I can see defined compassion as an action. Have you Ever been Called to Show Compassion Lately? A recent example I encountered myself happened this past week when I stood in line Continue Reading →

My DIEP Flap Breast Reconstruction Seven Years Later

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This morning I began my usual morning routine. I am an early riser. I open my laptop, check my phone for messages, begin sorting out emails to respond to, and begin my workday. But this morning marks a day on my calendar I never forget, or more appropriately, always remember. December 1, 2014, I was sitting on a gurney being marked up for my DIEP flap breast reconstruction. Writing about my DIEP flap breast reconstruction seven years later? How is that possible? Where did the time go? The Days and Months Leading up to my DIEP Flap My coffee is fresh and warm and my thoughts flood through my mind as I recall the events of the morning I showed up at the hospital. Yes, I showed up. But boy did that take a lot of decision making, planning, and a strong dose of physical and emotional fortitude in the Continue Reading →

How to Prepare for and Have a Shared Decision-Making Conversation

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Terri Coutee and Minas Chrysopoulo, MD FACS Shared decision-making occurs when your doctor (or any healthcare professional) collaborates with you to make the best healthcare decision. The optimal decision takes into account evidence-based information about the available treatment options, the clinicians’ knowledge and experience, and any factors you value in your decision-making. The patient brings their preferences, goals, lifestyle, support structure, …whatever they feel is important to them in making a decision. The physician brings evidence-based information and their expertise. Together, they find the “sweet spot” in the middle. Our aim is to offer recommendations for patient and healthcare professionals to prepare for and have a shared decision-making conversation. Most patients prefer this collaborative approach over deferring treatment decisions completely to their doctor. Unfortunately, in many cases patients may be reticent to initiate this type of conversation or simply don’t appreciate that they can. In reality, if the clinician doesn’t Continue Reading →

A Home for the Breast Cancer Quilt

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I first encountered DiepC Journey ~ Breast Reconstruction after Mastectomy Facebook group when researching my options for prophylactic measures due to carrying a BRCA1 gene mutation. I instantly connected with the vibe of the group. What a wealth of information! If you know the founder of DiepC Foundation and the accompanying Facebook group, Terri Coutee, you will know just how welcoming, no-nonsense, and warm she is in all her advice and education pieces. She works to give each member a personalized experience when interacting with her foundation and page and she has helped countless woman and men dealing with breast cancer or breast cancer risk. Terri and I clicked, we’re both in the Pacific Northwest, shared a mutual friend, and both chose the same reconstruction—DIEP flap (using tissue from the belly.) We even made a video together. My Breast Cancer Journey to a Twist But! Here’s where the twist comes Continue Reading →