Microsurgery in Breast Reconstruction after Mastectomy

I had the opportunity to attend the American Society of Reconstructive Microsurgeons meeting recently. As a patient advocate attending, I was particularly focused on microsurgery in breast reconstruction after mastectomy. It gave me the chance to have in depth conversations with plastic surgeons who dedicate intense hours of training to become microsurgeons.  The conference attendees included medical students interested in this specialty, plastic surgeons who are currently in fellowship training for microsurgery, and those seasoned veterans sharing the latest techniques and methods of surgical skills to achieve optimal outcomes for patients. The ASRM conference took place at a hotel with all of the sessions easily accessible. This conference felt comfortable, informal, and intimate to me. These microsurgeons reflected the feeling, this group is like a small tribe who understand the rigors of microsurgical training and how it can positively change the lives of patients. Why Should you Find a Microsurgeon Continue Reading →

Why I Can’t Wait for the New Decade in Breast Reconstruction

We have sent best wishes for the New Year to our social media friends. This year ushered in a new decade. Many of us wonder how things will change in the next ten years. This blog may be my time capsule for the upcoming decade. I would like to check back in 2030 to see what items in this blog will change and improve and why I can’t wait for the new decade in Breast Reconstruction. A New Decade of Shared Decision Making in Breast Reconstruction The topic of shared decision-making is at the top of my list. The practice of shared decision-making with the plastic surgeon who performed my DIEP flap is what made my breast reconstruction so successful. I see progress! Dr. Chrysopoulo developed a decision making tool, the Breast Advocate app, this past decade to give patients a voice in their decision making with their health care Continue Reading →

Patients Share Tips on Finding a Breast Reconstruction Surgeon

I spent hours, days, and weeks searching for a plastic surgeon to perform my DIEP flap breast reconstruction. It was not an easy task. I learned a lot from three other patients, Whitney, Rene, and Tamara, who share with us their criterion and tips on finding a breast reconstruction surgeon to perform their DIEP flap surgery. Whitney’s Tips for Finding a Breast Reconstruction Surgeon She tells us she had time to look for a plastic surgeon because she chose to have a prophylactic bilateral mastectomy with DIEP flap breast reconstruction. Whitney carries a gene mutation putting her at high risk to develop breast cancer. Watching her own mother pass from breast cancer when Whitney was in her early twenties was instrumental in her decision to have breast reconstruction, especially with two young children at home. The first decision was the type of surgery to have. She chose DIEP flap. It Continue Reading →

DIEP flap Breast Reconstruction: Value of a Team Approach

DIEP flap Breast Reconstruction: Value of a Team Approach Researching a highly skilled, board certified microsurgeon is the first and most important step in your DIEP flap breast reconstruction process. But what additional criteria might you look for? After having a detailed, shared decision-making conversation with my breast surgeon, I soon realized in DIEP flap breast reconstruction there was great value in a team approach. There are microsurgeons who work as a team during DIEP flap breast reconstruction for a variety of reasons. After my double mastectomy I researched several plastic surgeons across the United States viewing their websites to find those who work as a team. I wanted both team members, the microsurgeons, to be highly skilled and have a high rate of success.  There is other criteria I have listed on my resource page under the heading, “Board Certified Plastic Surgeons by Region”. These suggestions should also be Continue Reading →

1900 Patients Share Stories About Breast Reconstruction

Three short years ago in the summer of 2015, I opened a Facebook page dedicated to serve the breast reconstruction community. The Facebook page, https://www.facebook.com/groups/diepcjourney/ grew organically by word of mouth. We started out small, as so many new social media sites do. It is growing daily and now 1900 Patients Share Stories About Breast Reconstruction. What Do We Share? Think about this. You have just been diagnosed with breast cancer. Now you face the tsunami of information about to flood your brain; lab reports and waiting on results, treatment options, surgery, lumpectomy, mastectomy. Some days you feel overwhelmed, depressed, anxious, or even jubilant. Who will understand all these feelings? Who do I talk to who has been on this Journey? Think about this. You are told your best treatment option is to have a mastectomy. Perhaps, for peace of mind, you decide to have a prophylactic mastectomy because you Continue Reading →

I Had DIEP Flap. Do You Know What That Is?

I Had DIEP Flap. Do You Know What That Is? Picture this scenario. You walk into a physician or health care provider’s office after having DIEP flap breast reconstruction. They ask you to discuss your current health and why you came into the office for a visit. A standard question, right?  You are in a gown sitting on the exam table with only your underwear on under the gown. You know they are going to do a full exam and ask you to open the gown. Before they begin the exam, you say, “I had DIEP flap. Do you know what that is?” The answer is often one of two replies, “Oh yes, I see. You had a TRAM Flap.” Or, “No, I have no idea what a DIEP flap is.” This is when the education begins. The physician says, “Well, let’s take a look.” I open my gown and Continue Reading →

Surgical Loupes Used in Breast Reconstruction

Sometimes we like to have fun at DiepCFoundation. This video about the surgical loupes used in breast reconstruction was one of those moments. Dr. Ramon Garza of PRMA in San Antonio was kind enough to bring his surgical loupes for me to try on. Dr. Minas Chrysopoulo, his team member at PRMA, looked on with amusement when I tried to focus while maneuvering my hands to appreciate the magnification. What I noticed most was adjusting to the depth perception while I had the surgical loupes on. Dr. Garza verified it takes a lot of training and hours spent in the operating room learning how to use the surgical loupes and the technical aspects of the surgery. He states the following: Good optics allow micro-surgeons to do what they do. The surgical loupes help to see very tiny, delicate structures. Function always overrides form in microsurgical breast reconstruction. The surgical loupes help Continue Reading →

DIEP flap Breast Reconstruction: Did I make the right choice?

YES! I did make the right choice having DIEP flap breast reconstruction! Each December marks another year and anniversary of my DIEP flap surgery. I remember so much about the dark, cool, morning we left for the hospital, feeling calm, prepared, and ready on December 1, 2014. The time between my double mastectomy in mid-May of 2014 and my breast reconstruction were some of the most trying days of my life. In 2002, after my first breast cancer diagnosis, I had been through 2 surgeries, eighteen weeks of chemotherapy followed by six weeks of daily radiation. This was physically demanding because I was so sick and felt so weak. Fast forward twelve years to 2014. Waiting for my breast reconstruction was psychologically trying. Each month that passed after my double mastectomy only decreased my self-image as a woman due to the loss of my breasts and seeing myself in the Continue Reading →

Breast Reconstruction Awareness Day

Breast Reconstruction Awareness Day BreastReconstruction Awareness Day has gone global and that’s great news for breast cancer patients!  The focus of these events is to educate and raise awareness about options for breast reconstruction after mastectomy.  Many of these events are held in the month of October in conjunction with Breast Cancer Awareness Month.  The choice to have breast reconstruction is a very personal one.  It involves a great deal of planning and requires a lot of information to make the best possible decision for each individual patient, both female and male.  It is not for everyone but the key take away and message of the Breast Reconstruction Awareness Day campaign is that everyone has the right to be given the information and to be educated about this topic. Breast Reconstruction after mastectomy is rarely a one-step surgical procedure.  Most reconstruction options require more than one stage.  What are those Continue Reading →

Parallels between Fly Fishing and Breast Reconstruction

Do fly fishing and breast reconstruction have anything in common? Are there parallels between fly fishing and breast reconstruction? Let’s explore some facts and then I’ll tell you about my own personal experience at the Casting for Recovery event I attended. First of all a bit of history about the program directly from their website: Casting for Recovery was founded in 1996 in Manchester, Vermont, by a breast cancer reconstructive surgeon and a professional fly fisher. Casting for Recovery’s innovative program focuses on breast cancer survivor-ship and improving quality of life, and has garnered endorsements from medical and psycho-social experts. Awarded 501(c)(3) non-profit status in 1998, Casting for Recovery has inspired international efforts in Canada, UK/Ireland and New Zealand.  To date, Casting for Recovery has conducted more than 500 retreats, serving nearly 7,000 women nationwide.  In 2014, we held 42 retreats in 36 states, serving 600 women. I am going to take the very Continue Reading →