A Letter to My DIEP Flap Sisters

A Letter to My DIEP Flap Sisters I hear from a number of DIEP flap sisters when they are having upcoming surgery for phase one or two of breast reconstruction. Some currently have cancer. Others have gone through their cancer surgery and treatments and are at the point they can now physically proceed with DIEP flap surgery. There are those of you who are having prophylactic mastectomies due to a gene mutation and still others are ready to complete phase two and finalize their journey. There is excitement and exuberance in their comments. I am so excited I have a date for my surgery! My insurance has been accepted for my DIEP flap! My surgery is just two weeks away! I will be able to look back soon on this entire process and be able to move on! I know how you feel. I sense your anticipation in removal of Continue Reading →

October & Pink

October is the month that you can find pink in a vast array of merchandise in every imaginable form. You find it in retail stores, on websites, the shoes of NFL football players, pink M & M’s, pink, pink and more pink. Some of the very products that slap the pink ribbon on their merchandise contain chemicals known to increase the risk and occurrence of breast cancer.  A bit unsettling, right? October vocabulary Pinktober, Pinkaholic, Pink outs, Think Pink. I think breast cancer patients who have had it with the whole pink thing might even come up with a new slogan: Pink Stinks! Don’t Forget the Guys and Be True to Blue! We all read stories about what having breast cancer does to the men and women who are diagnosed. Yes, men! Don’t forget to wear blue for the guys! You can read this blog summary of a podcast I Continue Reading →

Breast Cancer Patient Education Act of 2015

The Breast Cancer Patient Education Act of 2015:  Re-introduced May 5, 2015. As stated on the Congress.Gov website: Amends the Public Health Service Act to direct the Department of Health and Human Services to provide for the planning and implementation of an education campaign to inform breast cancer patients anticipating surgery about the availability and coverage of breast reconstruction, prostheses, and other options, with a focus on informing patients who are members of racial and ethnic minority groups. To the Members of the 114th Congress of the United States: Close to 12% of women will develop invasive breast cancer over the course of her lifetime. 2015 alone will bring an estimated 231,840 new cases of invasive breast cancer. According to statistics from Breast cancer.org 60,290 new cases of non-invasive breast cancer will be diagnosed. Surprisingly, and a little known fact, there will be approximately 2,350 new cases of invasive breast Continue Reading →

TEDx Talks and Human Relationships

Video

This particular TEDx talk,  “Connect or Die: The Surprising Power of Human Relationships” happens to be one of my favs. Ophthalmologist, Starla Fitch, M.D., makes a keen analogy about how we “see” other people and how that can often be a distorted view through the “human lens”.

The real gift of sight is that it allows us to truly see each other and connect.

~ Starla Fitch, M.D.

A Chance Meeting on a Walk

I walk frequently in my neighborhood for exercise. Walking alone is my preference since I wear my headphones and enjoy listening to my playlist. I do, however, stop to chat briefly with neighbors but this one particular morning walk I was distracted by the t-shirt a woman was wearing, a woman I did not know. She was wearing a t-shirt for a walk she had done for breast cancer awareness. I somehow felt drawn to stop and ask her if she was a survivor, too. Her answer leads me to believe that I should have looked at her through a different human lens and not assume she was a survivor herself because of what she was wearing. Her daughter had cancer but, she explained, she also lost her daughter to cancer.

I offered her my sympathies but I stopped very quickly at that and ask her how she was doing. Sorry only goes so far. I can only imagine how many times she has heard that response from others. Her daughter had only been gone a few short months. She told me she has her good days and bad. We chatted briefly about it but then got on to other topics. I remember on my worst days of dealing with breast cancer I simply wanted to talk to someone about anything but cancer. So, we did.

I found out she was traveling to France the very next day to see family. As I listened to her carefully I noticed a faint accent. She was French but had been living in the states for quite a number of years. Having taught English language learners in my classroom I’m a sucker for accents from any country and I commented on hers, faint as it was. We chatted about travel and how long we had both lived in the neighborhood.

The Connection

I noticed a necklace she was wearing as well. It was the pink ribbon symbol that represents breast cancer. Not only was she wearing a shirt, she had on a necklace, too. They both, honestly, were a bit worn. I sensed it was a closeness she carried of her daughter who was no longer physically with her but that she must think of daily. What a difficult thing for a mother to have to deal with every day. That was something I knew nothing about, losing a child to cancer. It was my lesson and privilege that day to see her through a new human lens and to make a connection with her.

We hugged before we left and hoped we would see each other again on another walk. I suspect if we do, that we will be exchanging contact information to share a cup of coffee, more chat, and make an even deeper connection.

I thought about Janine, my new friend, the quick relationship we developed because of our connection, and her upcoming trip. I’m sure she will benefit greatly from a visit with her sister in Paris.

What special human relationship has taken you by surprise?  Do you look at that person through a different lens now than you did when you first met?

Open your eyes, look at each other, and make the connection…. today.  I see you!

Delayed DIEP flap Breast Reconstruction

Delayed DIEP flap Breast Reconstruction ~ My Story Delayed DIEP flap breast reconstruction, my story, my experience, will hopefully give others considering this method some insight into your planning. In a perfect world immediate breast reconstruction, reconstruction done at the same time as a mastectomy, results in the best possible aesthetic outcomes for a number of reasons.  But, we all know breast cancer is not a perfect world. There are Reasons Patients have Delayed Reconstruction: Adjuvant therapy Adjuvant therapy may be necessary after a mastectomy. If there are lymph nodes that have tested positive for cancer and chemotherapy or radiation is recommended, this could delay your reconstruction. My story: No lymph nodes tested positive and radiation was not deemed necessary. However, because of the type of cancer I had, left breast recurrence from twelve years previously and a new cancer in my right breast, I was encouraged to have the Continue Reading →

A Letter to “Life it Up 365”

To my friends, Dana and Colleen, at Life it Up 365: I found your website, “Life it Up 365” in late July of this year. After reading it I had an idea for my own private Face Book page. I wrote a blog entitled, “Breast Cancer, Breast Reconstruction & New Challenges”. I posted it to my private Face Book page with this comment: What have you done as a result of your cancer diagnosis or finding that you are BRCA positive? Have you tried something new? Has it been fun, frightening or both? Share your story with us at the Journey in a brief comment response. I will compile your responses into another blog and share them with Dana and Colleen at Life It Up 365 in early September. I didn’t get as many responses as I thought I might but the ones I did receive from my members are Continue Reading →

Maintaining Health Records during a Cancer Diagnosis

Maintaining Health Records during a Cancer Diagnosis This is a post about the importance of maintaining accurate health records during a cancer diagnosis. But, today is probably one of the most difficult posts I have written in a while because of the events listed in this post that happened withing a month’s time to me and my family in 2014 during the time of my second breast cancer diagnosis. Why I do What I do I am an educator for all options of breast reconstruction after mastectomy.  After much research on my part to find a skilled, compassionate and qualified plastic surgeon; I had a very positive experience.   I know that all women are not told about their choices for reconstruction like I was.  Additionally, some have not had the powerful and positive experience that I did. I share my experience through outreach and  I educate others in hope of Continue Reading →

Breast Cancer, Breast Reconstruction & New Challenges

Breast Cancer, Breast Reconstruction & New Challenges What new challenges have you taken on since being diagnosed with breast cancer?  What have you had to deal with after losing your breasts to cancer, or finding out that you are a BRCA gene carrier? I was inspired to write this blog based on an article seen on social media from Living Beyond Breast Cancer. I include my BRCA friends in this post because I advocate for all choices of breast reconstruction and we have all had the perspective of experiencing some difficult decisions regarding our health. Events in life, good or bad, change us. They catapult us into decisions that we likely would not have come to based on the event. Being diagnosed with cancer for the second time in 2014, facing a mastectomy and then delayed DIEP flap reconstruction later that year, reset my compass. A Side Trip on my Continue Reading →

Infusion Therapy: Facing your Fears

Prolia Injection at the Infusion Therapy Center I went to the infusion therapy center at my cancer center today to have the first of my Prolia injections to treat bone loss. I would be getting them twice a year.  Since I am taking an AI (Aromatase Inhibitor) and additionally have a family history of osteoporosis, my oncologist recommended I start the injections. I do not have a fear of needles. I had a CVC line for chemo thirteen years ago and was fully awake when they inserted that. I have had multiple IV sticks for breast cancer and reconstruction surgeries and blood drawn. I always watch them put the needle in for both and tell them where my good, “go to” veins are. No problems. Today was a simple subcutaneous injection at the back of my arm. I had the option of having it in my abdomen but I looked Continue Reading →

Bilateral Prophylactic Mastectomy

  Bilateral Prophylactic Mastectomy ~ Is it Right for You? When I read an article about BPM posted on Facebook by my reconstruction surgeon I knew immediately what the letters stood for and so do those in the BRCA and cancer community. Out of pure curiosity I searched on the internet the “meaning of BPM” without adding “medical” to the search. You get some interesting as well as hilarious results: British Prime Minister, Beam Position Monitor, Business Performance Management, Blood Pressure Monitor, Beats per Minute and my favorite, Butt Pumping Music! The Angelina Effect Bilateral prophylactic mastectomy became a popular news topic after Angelina Jolie shared that she reduced her risk by nearly 90% of ever getting breast cancer because of choosing a BPM. She tested positive for the BRCA1 gene mutation and her mother died of ovarian cancer. I wrote a previous blog on this and completely understand why Continue Reading →