Category: Breast Cancer Diagnosis

Genetic Testing

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Is Genetic Testing A Scary Road to Travel? It is one of the hot topics in the medical world, “Genetic Testing”. A recent report from NBC Nightly News reports on the the risks and benefits of genetic testing.  Why do individuals choose to do it? What are the benefits and risks? What is the cost? Is it covered by insurance? Does it risk an individual’s chances of further insurance coverage in the future if they test positive? My Own Personal Experience I can only speak from my personal experience and reasons to explore genetic testing for myself. There are certain criterion that determines if you are a candidate who will likely benefit from genetic testing. I fit two of those conditions. One, I had breast cancer at a fairly young age, 47. Two, I had a recurrence of the original cancer I had at 47 but more importantly a newly Continue Reading →

The Perfect Breast Shape and Plastic Surgery

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How I got to the “Breast” Shape Ever Twitter is such a valuable tool for me. A year ago my Twitter account was full of nothing but educational websites. I returned to school to attain my M.Ed. and I used it for the sole purpose of gathering information about the latest “speak” in education. I did not tweet, like, retweet, or DM (direct message). I only lurked and learned. The lurking and learning changed in October of 2014. School ended for me to focus on my health.  My Twitter account went from education to all things breast cancer and breast reconstruction. I entered the world of plastic surgery as a breast reconstruction patient after undergoing a double mastectomy following a second breast cancer diagnosis. It was a world I was unfamiliar with and had much to learn about both on an academic and emotional level. I was now following, being Continue Reading →

Bone Density and Aromatase Inhibitors

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The Devil and the Details Today was a four month visit with my oncologist after my second diagnosis of breast cancer one year ago.  One of the purposes of the visit was to discuss bone loss while on Arimidex, the Aromatase Inhibitor I will be taking for ten years, unless of course they come up with something new between now and then. I was diagnosed with both invasive and in situ lobular carcinoma (LCIS) in my left breast twelve years ago. After two lumpectomies to achieve clear margins, eighteen weeks of chemotherapy and six weeks of daily radiation I took Tamoxifen for five years. Last year I had a recurrence of LCIS in the left breast and a new and different cancer, ductal carcinoma in situ (DCIS), in the right breast. Because of the new cancer in the right breast and the fact I had a recurrence in the left Continue Reading →

Breast Cancer Education Act

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A Time to Educate I have spoken to many women in the past six months since I became an advocate for breast reconstruction.  I am frequently reminded by these women that the education, resources and information is simply not being discussed at the first stages of a cancer diagnosis.  I was fortunate to have the information regarding my choices for breast reconstruction the day I was told I was going to have a double mastectomy due to a second recurrence of breast cancer.  I want every woman to be able to have that conversation with their physician.  The front line of education has to start in the health care community.  We can add outreach through support of this bill. A Call for Support Let’s Close the Loop It is time we closed the loop in breast cancer education.  Women have a right to live beyond diagnosis, treatment and survival.  Women Continue Reading →

How Has Breast Cancer Changed You?

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Cancer: Connections & Catalyst Many articles and questions are posed:   “How has breast cancer changed you?” Here is one example  from the About Health website, just one from a myriad of articles published after doing a quick search on the topic. I think it’s fair to ask that question to anyone in any phase of life. How has the news of the day changed you? How has having children changed you? How has visiting a foreign country changed you? How has being married changed you? How has being divorced changed you? How has changing your hair color changed you? How has losing weight changed you? How has becoming a vegan changed you? Blah, blah, blah and on and on…… Individuals and Change Individuals are affected by events in life in either very positive ways or extremely negative ways.  So OK!! We’re all individuals and I get it.  My feeling Continue Reading →

Breast Reconstruction Fears After Mastectomy

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Breast reconstruction fears after a mastectomy and not knowing all of the steps involved prevent many women from making the decision to move forward with reconstruction.  My breast reconstruction journey began when I had my annual mammogram on April 2, 2014.  My radiologist informed me the mass she found in my right breast was highly suspicious of cancer.  I had to return to her office the next day to confirm this with a core needle biopsy (CNB). The results were ready five days later. My radiologist asked me the day she took the CNB if I knew of any breast surgeons to review results of the biopsy with me. I had been to see one about five years previously to have a benign cyst removed. I was very impressed with the surgeon and asked to schedule the results of my CNB to confirm whether I had cancer or not with Continue Reading →

Breast Reconstruction Phase 2 ~ Remembering Dates

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Today I will be seeing my plastic surgeon for the pre-op appointment for phase 2 of my breast reconstruction. People remember and celebrate dates for various reasons. I don’t know how this happened but I have had a strange collision of dates today. Cancer patients tend to remember significant dates and anniversaries in their minds for various reasons. It might be the day of diagnosis. Perhaps it was the final day of treatment. Today for me, it’s a combination of a couple of significant events and a day to celebrate as well. Memories Evoked I will admit that the final day of radiation and all treatments, October 15, 2002, sans five years of Tamoxifen, from my first diagnosis was very significant to me. I was raised a Catholic and October 15 was the feast day of my patron saint, St. Teresa. That was significant to me that those two dates Continue Reading →

“The Emperor of All Maladies” documentary

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Tonight is the beginning of the three-part documentary, “The Emperor of All Maladies: A Biography of Cancer”. The movie is based on the book by Dr. Siddhartha Mukherjee. It will air on PBS as a three-night, six hour documentary.  I was fortunate to attend a pre-screening of this important documentary last week. Hope and Inspiration ~ The documentary, “Winning by Living” was made about a local woman, Michelle Kirlew, in conjunction with our local PBS affiliate’s screening of the Ken Burns documentary. Michelle has pancreatic cancer. She is a wife and mother and at a very young age found out about her diagnosis. She is aware that death is likely very soon for her and is dealing not only with her illness and the side effects but all the emotional responsibilities that come with facing death. She had the courage to contribute to science by participating in a clinical trial Continue Reading →

A Reflection ~ Mrs. Jolie-Pitt

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The Media The past two days have been an explosion of conversations on social media, radio and TV about Angelina Jolie Pitt’s decision to remove her ovaries and fallopian tubes to prevent a very real possibility of developing cancer. Angelina carries a mutation in the BRCA1 gene and with a strong family history of cancer she made this very informed decision. The Critiques There will be critiques because of her star power. But she recognized that power to a good end. Strip that star power away and she is another woman, another wife, another mother who is making informed decisions about her health not only for herself but for those she values and influences. “I wanted other women at risk to know about the options. I promised to follow up with any information that could be useful, including about my next preventive surgery, the removal of my ovaries and fallopian Continue Reading →

Seeking a Second Opinion

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Inspired to Write About Seeking a Second Opinion I recently joined a closed Face book page about blogging. One of the questions posed in the discussion was what so inspires you to blog/write. The main focus and inspiration for me will always be to inform others about breast reconstruction. But, leading up to breast reconstruction was twice being diagnosed with breast cancer so one greatly influences the other. The inspiration for this blog came from a question posed on a completely different Face book page. The questions were regarding getting a second opinion and what your thoughts were on it. I felt inspired to share my thoughts. Life’s Book on a Cancer Diagnosis My experience with second opinions is a lesson to be taken out my life’s book on a cancer diagnosis and all that comes with it. The first time I was diagnosed with cancer was twelve years ago Continue Reading →