Tag: breast cancer

Breast Reconstruction Decorative and Restorative Tattoos

Posted on by

Two patient advocates, both breast cancer survivors, walk into a tattoo parlor in downtown Seattle. Sounds like an intriguing story, right? It was. I had the honor to have patient advocate Kirstin Litz join me for an intense day of patient advocacy work in the great city of Seattle. Our day began with a cup of coffee for the road, of course. We arrived in the densely populated district of Capitol Hill early morning to visit Eric Eye. We were there to interview him about his work doing breast reconstruction decorative and restorative tattoos. I have never had a tattoo but after visiting Eric we talked about the possibilities of a decorative tattoo in my future. He asked me what I was thinking about. I told him I have deep Irish heritage and I love to dance. Van Morrison is one of my favorite musical artists. I explained to Eric Continue Reading →

National Doctor’s Day

Posted on by

Celebrate National Doctor’s Day? I’m in. These folks deserve a day of honor. Why? Long days and sometimes into the night in hospital and clinic. Hours of paperwork after time spent with their patients. Calming the fears of their patients. After hours calls from concerned patients. Putting back together diseased, damaged body parts. Comforting family members concerned about loved ones. Continued study and refresher courses to maintain licenses, expand knowledge, and improve skills. The list is exhaustive. The profession is noble. The talent is admirable. A Personal Note of Gratitude to Doctors I want to share a personal note of gratitude. My professional life has always focused on education. I was accustomed to interaction was with students, parents, colleagues, and administrators. My professional life took on a different role after a second breast cancer diagnosis, double mastectomy, and successful DIEP flap breast reconstruction. I felt it was important to educate Continue Reading →

Laura’s Journey Through Breast Reconstruction

Posted on by

I am honored to share another one of our Personal Stories featuring Laura’s Journey through breast reconstruction. On September 25th, 2017 I had two biopsies on calcifications in my right breast.  I had a biopsy on that same breast 5 years ago and it was negative for cancer.  It was a very unpleasant experience and I was quite aggravated that there was nothing wrong and I had such a bad time recovering that the whole event went into my book as awful.  But my OB-GYN called me the next afternoon after this biopsy and said “Well we weren’t so lucky this time.  They found cancer in both samples.”  But wait!  I have zero risk!  I have no family history!  I nursed all my babies for a year after they were born!  I don’t smoke! This can’t be right!! On September 28th, Hollis and I met with a wonderful surgeon named Richard Continue Reading →

The Eye of a Restorative Tattoo Artist for Breast Cancer Patients

Posted on by

There are those who choose their profession based on their interest and background training. Eric Eye was inspired to expand his practice and professional skill as a tattooer after learning about restorative tattoos for breast cancer patients. This blog is dedicated to Eric Eye after I spent time with him in his Seattle studio on Capitol Hill. Eric is the eye of a restorative tattoo artist for breast cancer patients. The streets of Capitol Hill are an eclectic collection of ethnic restaurants, music shops with vintage albums, coffee shops, parking meters lining the streets waiting to be fed, and above ground wires strung from telephone poles draped like spider webs across the streets. There are businesses sharing the same brick and mortar in a single block separated by walls and glass windows with entrances leading to long narrow hallways and locked corridors. A Breast Cancer Patient’s First Visit to a Continue Reading →

El valor de una 2ª opinión para la reconstrucción mamaria

Posted on by

El valor de una segunda opinión para la reconstrucción mamaria es, afortunadamente, algo que tiene el potencial de dar esperanzas a las mujeres que han sido rechazadas en una consulta inicial para una reconstrucción mamaria autóloga. Tuve la fortuna de hablar con dos cirujanos certificados, el Dr. David Song de MedStar Georgetown y el Dr. Minas Chrysopoulo de PRMA en San Antonio. Ambos son cirujanos plásticos que rutinariamente realizan una variedad de cirugías reconstructivas de mama con tejidos de la propia paciente con gran éxito. ¿Qué es la reconstrucción mamaria autóloga? La reconstrucción mamaria autóloga consiste en utilizar el tejido y los vasos sanguíneos subyacentes de otra área del cuerpo de la propia paciente para crear un seno nuevo y suave después de una mastectomía. ¿Por qué a veces las mujeres son rechazadas por los cirujanos plásticos o se les dicen que no son buenas candidatas para la reconstrucción mamaria Continue Reading →

Honoring My Sweet Friend Valerie Hewson Wright

Posted on by

Today I honor the passing of a life well-lived. Valerie Hewson Wright lived a life a love and vibrancy through a breast cancer diagnosis and most recently, metastatic breast cancer. I am angry, pissed to be quite honest, and deeply saddened at losing a friend to this insidious disease we have yet to find a cure for.  Val and I never met in person, but I feel so very close to her and why I weep today at her passing. Our Nonprofit Connection When I began thinking about opening my own nonprofit Foundation in 2017, I would call Valerie and ask her questions about the logistics of running an organization to help others. She successfully opened VforVictory Foundation to mail drain holders out to breast cancer and breast reconstruction patients after their surgery. She worked tirelessly for these women and why I leaned on her for her advice. Her famous Continue Reading →

Waiting for a DIEP Flap Surgery Date

Posted on by

Ruth is one of over 2,400 global members of DiepCJourney Facebook group. I am honored to share her story here. The wait for her DIEP flap breast reconstruction surgery has been challenging for Ruth on many levels. She tells us her personal story and what it means waiting for a DIEP flap surgery date. Delayed DIEP Flap: The Wait Begins It was October 2014 when I received my breast cancer diagnosis. I live in a small beautiful, city tucked away in the south east corner of British Columbia. Though I was able to have a mastectomy and chemotherapy locally, unfortunately our hospital does not have the facilities to offer either radiation or reconstructive surgery. It was decided having a mastectomy would be the first course in my treatment. Opting for immediate reconstructive surgery would have meant a delay as well as travelling over 500km to Kelowna or over 800km to Continue Reading →

The Elusive Nipple Solution After Breast Cancer Surgery

Posted on by

For many of us going through breast cancer, by the time we get through diagnosis, surgery, treatment and breast reconstruction, we have an eager anticipation of the final step of getting nipples to help us feel whole and complete. It seems like it should be simple, but often it drags on and on without a satisfactory solution.  Surgical nipples flatten, tattoos fade, prosthetics fall off. I was really fortunate. After my unilateral mastectomy in 2007, while I was still in the breast reconstruction process, my innovative husband was inspired by my plastic surgeon to develop a silicone nipple-areola for me. What a gift! It makes me feel so joyful to look in the mirror after showering or while dressing and see the symmetry of two nipples. It eases some of the sting of what breast cancer has taken from me as a woman.    My Husband & I had no Continue Reading →

Managing Breast Reconstruction and Breast Surgery During the Holidays

Posted on by

Many of us are preparing our homes and making travel plans in December. It is a gathering time for friends and family for many of us. However, there are those who will be managing breast reconstruction and breast surgery during the holidays. I had my DIEP flap breast reconstruction in early December and was one of those patients. Here are my tips on managing breast reconstruction and breast surgery during the holidays. Breast Cancer does not take a Holiday I do not think anyone intentionally plans to have any type of breast reconstruction and breast surgery, especially this time of year. I certainly did not. Breast cancer does not take a holiday, nor does it take anyone’s plans into consideration. In fact, it disrupts the lives of those diagnosed and going through treatments and surgery during this time of year. Recently diagnosed breast cancer patients have doctors’ appointments, pre-surgical tests, and Continue Reading →

The Latest on BIA-ALCL and What A Patient Advocate Reports to Her Community 

Posted on by

The Latest on BIA-ALCL and What A Patient Advocate Reports to Her Community As a patient advocate for breast reconstruction I am often asked questions about recent findings and reports in the news. This week I was asked questions about the latest NBC News article, and the same topic reported in other media outlets. Theses stories were on the safety of breast implants and a rare disease, BIA-ALCL, Breast Implant-associated Anaplastic Large Cell Lymphoma. I listened attentively as I watched the nightly news and read articles across other media venues. I immediately thought to myself, this was going to understandably stir concern and controversy in my community. It did. I was asked questions about the reports presented this week in the news media from women who currently have implants or are planning to for breast reconstruction after breast cancer. My immediate concern was to calm their fears and share what I Continue Reading →